“How common is hemochromatosis (HHC) in your state?”

Flyers for each state are based on the 2009 US census numbers multiplied by .043 which represents the potential for homozygous or compound heterozygous variations of the HFE gene according to this reference: *Steinberg KK, Cogswell ME, Chang JC, Caudill SP, McQuillan GM, Bowman BA, Grummer-Strawn LM, Sampson EJ, Khoury MJ, Gallagher ML. JAMA. 2001 May 2;285(17):2216-22. Prevalence of C282Y and H63D mutations in the hemochromatosis (HFE) gene in the United States.

The combinations of genetic mutations represented in this flyer include C282Y/C282Y; H63D/H63D and C282Y/H63D. The grand number does not account for carriers, which is a much greater number.

Use these flyers to raise awareness in your state with healthcare providers or with members of Congress (Senate or House) who appropriate funds to the Department of Health and Human Services which go to the US Centers for Disease Control and Prevention for education and training of healthcare professionals and to the National Institutes of Health to fund research about hemochromatosis.

Download your state's form

CALL TO ACTION

US Hemochromatosis Patients—if you live in any one of these STATES:
Alabama, California, Connecticut, Hawaii, Illinois, Iowa, Kansas, Louisiana, New Jersey, New York, Maine, Minnesota, Mississippi, Montana, New Hampshire, Ohio, Oklahoma, Pennsylvania, Rhode Island, Texas, Virginia, Washington, or Wisconsin. We need your help! Fill out the form below and we will be in touch!