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Iron Deficiency

Iron Deficiency

You can now purchase Ironology™ Iron Panel to determine or confirm both your iron status and the adequacy of your natural antioxidant defenses by clicking above 

Per request this section will focus on iron deficiency, which can be acquired or inherited.

343 comments (Add your own)

1. polly wrote:
I believe I have anemia, but my blood work doesn't make sense. My main symptom is feeling cold, and it has got to the point where the circulation to my toes and fingers is cut off in response.

Other intermittent symptoms include chest pain, can't sleep because my heart is racing, constipation, and pain in the upper right abdomen. The medics have done front line tests and come up with nothing, except depression. Of course, I feel low, I don't feel particularly well a lot of the time.

My serum ferritin was 19, but this test was done on a day when I had swollen finger joints and then my whole immune system went into overdrive and I had to calm it down with antihistamine; does that mean my true level could be even lower?

When I started supplementing with iron, there was a dramatic improvement to how I felt - within 30 minutes of eating beef washed down with iron water, I suddenly got restored circulation in my toes which started to hurt as they warmed up again. I woke up the next morning feeling not just okay, but happy.

However, my hemoglobin reading is 15. What's going on? The symptoms match everything on your chart. But low ferritin and normal hemoglobin doesn't match with anything. Can the tests be wrong? I'm at my wits end with my doctor, who just wants to give me anti-depressants. Please help.

Sun, March 13, 2011 @ 4:30 PM

2. Lisa wrote:
I also have low ferritin with a normal hemoglobin. This is called iron deficiency and iron supplements and change in diet can boost your ferritin levels.
Your ferritin level may have been increased because of your inflamation.
You should probably go back on another day when you have no inflamation and have the test repeated to know for sure. The next stage after ferritin (iron stores) have been depleted is iron deficiency anemia where your red blood cells in the marrow are made smaller and therfore cannot carry as much oxygen.
My ferritin level is critical and I have many unpleasant symptoms everyday including depression, pain in joints, numbness in feet and hands, extremely painfull shooting pains in arms, legs and tougue (yes, my tongue) that wake me up at night, restless leg syndrome, extreme fatigue...and the llist goes on.
I got my doctor to agree to an iron infusion and I am looking forward to seeing how this will affect me.

Tue, March 15, 2011 @ 8:38 AM

3. Knowpeace wrote:
Hi Lisa, I have had several iron infusions. They help to ease some of your symptoms as your numbers get better, but that can take a little while. I am prone to allergic reactions, but did not have any. I lay in a recliner, the nurse offered a warm blanket :-), they set you up and you get your iron. I'd get a 'funny stomach' a couple hours after, but I didn't get sick. I just didn't want to eat. The next day I usually slept and watched tv because I'd ache. I have discovered that those symptoms likely had nothing to do with my infusions, but I'm sure you feel that way already because of your anemia. I wish you well. Ask questions, trust your nurse, and relax. It's not a bad experience.

Thu, April 7, 2011 @ 10:23 PM

4. Ronna Sneary wrote:
Hi Lisa, I have just started my first series of iron transfusions yesterday. I am iron deficient. My iron level is 4, my hemoglobin is 8, and my platelets 66. I agree with Knowpeace. The only side effects that I have experienced are swelling in the feet, ankles and hands, and not wanting to eat. I go for my second transfusion today. I know this will take awhile, but hopefully it will help me. I hope it helps you too!!!!

Fri, April 8, 2011 @ 8:35 AM

5. Pat O wrote:
Hi everyone. My name is Pat & I am 65 years old. I have spent all day researching causes of low ferritin levels and those searches have led me to this site. A brief history of my medical saga is that, although I was often sick as a child, after reaching puberty I was disgustingly healthy until the day after Thanksgiving in the year 2000. That Friday I woke up feeling like I'd been run over by a truck during the night & haven't had any long term improvements since. After the first 18 months I was dx'd with an auto-immune condition - Mixed Connective Tissue Disease with an overlap of lupus, scleroderma and sjogren's which was later changed to a definite Systemic Scleroderma diagnosis. Usually skin involvement is the first symptom but I have more of less skipped that part & gone right to organ involvement - esophagus motility, gerd and intestinal inflammation as well as some beginning pulmonary lung tissue hardening.However, overall, the autoimmune stuff has not been as bad as later developments. I next began having TIA's which led to discovery of, not one but two congenital heart abnormalities which were allowing clots to pass through the heart to the lungs & onto the brain. So, these holes were patched up by a fancy new procedure in 2004. Until 2006 I was doing ok with a lot of meds, diet, exercise etc. Then I started having neuro problems and after another 18 months of debilitating symptoms including horrible vision problems, falling over on my face in public places, & staggering around like a drunk & after 5 brain MRI's it was discovered I had a condition called Chiari I which is literally your brain falling out of your skull & pressing on your brain stem which can cause all sorts of really bad things to happen. This was also deemed "congenital" & I was lucky enough to have the one of the best neuro surgeons in the country & he corrected this with a really nasty surgery. Morph to Jan 2009 when I woke up feeling like the truck that hit me in 2000 had backed up over me again. Since then it's been one thing after another including (finally) extremely low ferritin, B12 & D levels BUT with all other blood work being within the "norms". My primary & rheumatologist both thought that I was probably having a GI bleed due to the scleroderma and NSAID use so went back to the GI doc for tests - all ok , then onto scans & MRI's to rule out any gyn cancers etc - again ok. So, my primary bascially put me on supplements including iron & after a few months the b12 & d were back to ok & the ferritin was up to 15 & she then discontinued that even though I was still feeling horrible. In the past year I've been dx'd with Polymyalgia Rheumatica and then Temporal Arteritis which is inflammation of the connective tissues and cranial arteries & have been up & down on high dose prednisone therapy with mixed results.
Thank you for sticking with me so far - that wasn't as brief as I intended - NOW, my questions......since Christmas my low energy level has been going farther down & this week I had my primary do a ferritin check & it came back as SIX!! She said to start iron supplements again but (again) had no explanation as to WHY this keeps happening - she even said to me that "extreme fatigue is not caused by low iron levels". I think this is an unacceptable answer & is mainly because she is as frustrated at this as I am but I'm done with this being a "patient" patient. I "think" it might by Amenia of Chronic Disease but might be Iron Deficiency Anemia instead & it sounds like treatment is different for each. Can anyone tell me what type of doctor I should see to get to the bottom of this?? Is it a Hemotologist? an Endocronologist? or someone else...??? Also, if you have any other advice for me regarding how to deal with this horrible fatigue - any type foods (I don't eat much red meat because it kills my stomach) but am not a vegetarian either. It's gotten so that I cannot exercise at all - walking down my driveway for the morning paper seems like a 5 mile run - & the lack of exercis is just making all of my autoimmune and inflammatory problems worse so I'm ready to try just about anything to get back to my version of normal.

Again, thanks for listening to my soap opera & any help will be much appreciated.


Sun, April 10, 2011 @ 12:00 AM

6. TOM G. wrote:

Sun, April 10, 2011 @ 1:20 PM

7. Pat O wrote:
THANKS TOM!! I'll certainly give it a go..Hope this helps your wife & me too. I figure I spend so much money on useless tests that tell me what's not wrong that any money spent on something that just might help is money well spent!


Sun, April 10, 2011 @ 4:47 PM

8. Nancy wrote:
I have a B-12 and Iron defieiceny and recieve monthly B-12 injections and ferritin infusions as needed. I have developed some significant memory issues and wonder if this may be associated with the iron deficinies?

Sun, May 1, 2011 @ 5:35 PM

9. Faith wrote:
My doctor suspects mds altho 2 yrs ago marrow biopsy was normal. Have had severe id anemia 3 years or so. Several blood transfusions and iron infusions. Yesterday, received another 1000 mg iron infusion. (Ferritin was 3, hgb 8.) This lasts about 3-4 months. Also had the 250 mg infusions over several weeks last year. Also lasted about 3-4 months.
Doc is flumoxxed ... Have also had ,MANY tests that ruled out any internal bleeding. Any ideas?

Fri, May 6, 2011 @ 12:24 PM

10. TOM G. wrote:

Tue, May 10, 2011 @ 2:13 PM

11. Faith wrote:
Update -- took an ambulance ride to ER last Thu. Had to get 2 units blood, spent a night in the hospital. Still a conundrum ... was fibby, shocky, unable to sit or stand ... Now after blood transfusion, I feel better. Still looking for clues about causes. Any ideas, anyone?

Sun, May 15, 2011 @ 6:32 PM

12. Mommy2boys wrote:
I was told, over a year ago, that I have iron deficiency. I have been on iron supplements ever since. My numbers keep falling and symptoms are worsening daily. My last iron level was 25 but hemoglobin has stayed within normal range (last taken on Wednesday June 8, 2011) . As of Wednesday of last week, I have been blacking out, dizzy, weak, feeling nauseated, completely exhausted, headache, and feel like my insides are always shaking. For the past few days I have been in tears and feeling completely helpless. I feel like there is something really wrong. Is all of this normal? Should I be worried that something else is wrong?

Sat, June 11, 2011 @ 2:56 PM

13. Kate wrote:
Hi Mommy, I have B12 and iron deficiency anemia. I take b12 injections every two weeks and 100 mg of iron per day. My iron and ferritin were really low and I felt what you are describing. That internal shaky feeling that made me think I was having constant anxiety (went away as my numbers got better). Wanting to cry all the time over nothing (went away as my numbers got better). I also get weak and feel nauseous often (still experiencing). Exhaustion, headaches both symptoms I was having as well (still have but less severe). As my iron, ferritin and B12 have gone up, most symptoms have all improved. I still have RSL and joint/body aches and am cold all of the time, especially my poor feet. Even when it's 90 degrees out, my feet are so cold! Keep after you doctor to get your numbers up. I think we forget what normal feels like but your doctor should be working with you to feel normal. Remove the symptoms by fixing or treating the cause- not the symptom.

Sat, June 18, 2011 @ 1:02 AM

14. Kate wrote:
I take 1000 mg of iron per day not 100. That was a typo.

Sat, June 18, 2011 @ 1:03 AM

15. Erin wrote:
I have been in the same place as Kate. Doctors can be less than helpful when it comes to iron and anemia symptoms. I have tried dozens of iron formulas and had a bad time with most of them. I have had good results with "gentle iron" by Solgar, 25mg tabs. I take two 25mg iron capsules in the am and 2 at noon and 2 in the pm. I take 400mg of Magnesium and 1000mg of Vitamin C with the iron. I also take a iron free high B vitamin multi-vitamin. I have not had significant change in HGB, HCT or other CBC numbers, but my ferritin went up a lot, 16 to 44. My iron sat and iron are still at 5 and 7, they never seem to improve, with anything. I do feel less joint pain, less RLS, less weepy, but I do still have headaches and fatigue. I would not take this much iron without my doctor's supervision and routinue iron labs, it could be unsafe or deadly for some people. Finally I am having procedures to check for GI bleeding. I am also at a loss for understanding why iron supplements aren't working as well as they should, and why I feel so rotten a lot of the time. So while I search and try to feel better I have had good luck with the gentle iron and the above combination of minerals and vitamins, it is not a cure, but it has been helpful for me. I also have a strict dairy free diet and keep a lighter weight. I hope this information may be helpful.

Fri, June 24, 2011 @ 10:51 AM

16. Julie wrote:
I have been trying to find out information about what the 'normal' recovery time for iron deficient anemia after receiving iron by iv should be. I had been mildly anemic for several years (and I have Sjogren's Sydrome and lupus like one of the people above) and tried oral iron but it didn't do anything. In February, my hemoglobin was 9.5 and hematocrit was 28.8. In May it was rechecked and hemoglobin was 8.9 and hematocrit was 27.7 and my iron level was 3 so my primary care doc sent me to a hematologist.
I have to be honest and say that I wasn't super impressed by his personality (he kind of dismissed what my husband and I said about symptoms) but I didn't want to wait to find someone else because I felt so crappy. I had five treatments over the course of 11 days (and had some of the stomach upset and aching joints that were mentioned but I was okay with it if it worked) and on the last day of treatment, my hemoglobin was 10 and my hematocrit was 31.4. Maybe I'm being unreasonable about my expectations but I was hoping that it would be higher. I have felt a little better since the treatments but I'm having trouble evaluating if it is the treatment or the fact that the school year is over and I'm not teaching 8 hours a day at the moment. I'm trying not to be whiney but fatigue and aches aren't something that you can show someone else so while everyone started out as sympathetic, they're not as much now.
I have been searching everywhere to find out what the rate of increase over the course of the treatment is generally but can't find anything. The hematologist told me that it would work because it didn't have to go through my digestive system but I want some actual specifics. i was diagnosed with lupus 15 years ago and everything that could be weird has been at one time or another but it's so frustrating to be patted on the head and told to go wait. If I had listened to that advice 15 years ago, I would still be diagnosed as 'depressed due to multiple miscarriages' rather than finding out that the miscarriages came from the lupus and that I would not carry to term without medical intervention. I've had two children since the diagnosis and feel to this day that I had every right to be depressed about losing children and still be able to say that something else wasn't right. I hate it when people look at a person and say, 'oh, she's depressed,' instead of 'well, I would probably be depressed too if I hurt everyday for 17 years' - it took two full years of pain, hospitalizations, kidney stones and other issues to force my insurance company into sending me for the tests that finally led to the lupus diagnosis.
Anyway, sorry for the rant. As odd as this may sound, it was sort of a relief to find something after days of searching and that other people are also having some difficulties but are still doing their best to live their lives. I wouldn't say I'm Miss Sunshine but when I'm not exhausted and hurting, I do love teaching, love my kids and doing stuff with them, and love being alive, sick or not. So if you got lost in my narrative - I'm trying to find a place where I can find out what rise in blood levels I can look for after 5 IV Iron treatments. The doctor is going to check 30 days after treatment which is the week of July 19. Quite honestly, since I don't really care for his bedside manner, I want to know what the numbers should be if mine are different.
If someone knows a good website where I can find more than generalities, I would appreciate it. Thanks!

Fri, June 24, 2011 @ 8:10 PM

17. Mommy2boys wrote:
Thank you for responding. It is good to hear that I am not alone!

A quick update. I have seen a gynecologist and I will be going to pre-op the first week in July. I have by diagnosed DUB (dysfunctional uterine bleeding). Evidently I have such a heavy period that no matter how much iron I take, I lose too much blood every month for it to do any good. I have been taking only 50 mg of iron daily due to intense nausea. I have found that any more than that and I can't even eat that day or the next (I have spent hundreds of dollars on different kinds with no relief). I have started taking Emergen C everyday with my iron and that seems to give me a little more pep (not like I can go go go, but it helps get a couple loads of laundry done!).

I completely understand where you are coming from. I have been fighting the exhaustion battle for almost two years. At first, my husband was very understanding. However, now it has turned out to be a huge burden on my entire family. Because my symptoms aren't visible (like scarring or bleeding would be) my family often forgets how rotten I really feel. Recently, friends have decided that I need to be seen for depression. I don't agree. I think that I am so down because I am sick. It is hard to be excited about things when you feel so bad. I can't wait to start feeling better on the inside and go back to enjoying life with my family!

Sat, June 25, 2011 @ 11:42 AM

18. Tanya wrote:
Hi. I went to my GP last week as I've been feeling very tired physically, and emotionally finding little things very hard to cope with for about 4 or 5 days each month at about the same time in my menstral cycle. My doctor gave me a blood test and wrote to me saying that my blood stores were low and that I should take one or two 200mg iron tablets a day for a few months. I've been taking two a day for a week and they are brilliant - I didn't realise how little energy I had and I'd just put my generally grumpy mood down to psychological issues. So - my question - as I think this is a problem related to blood loss and as my fatigue was noticably different at different times of the month, can a blood test that was taken when I was sort of ok be accurate - i.e. can my iron levels fluctuate every day or are they a pretty constant sort of thing? Also if they do fluctuate then It doesn't seem that sensible to stop taking the tablets after a few months if I'm still losing too much blood. Also (sorry) two tablets is double the dose of one - could I be taking too much iron? Thank you so much.

Fri, July 1, 2011 @ 11:05 AM

19. JG wrote:
My husband has had a number of health issues in the past couple of years. He was diagnosed with Type 2 Diabetes about 3 yrs ago. He lowered carbs & sugar in his diet, started exercising regularly, lost aoubt 45 lbs, got the diabetes & cholesterol levels into better range. But he has been placed on a lot of meds to control high blood pressure and cholestoral (3 different drugs for each), plus 1 med for the diabetes. About 2 yrs ago, he saw a nephrologist because our primary care doctor suspected his kidneys were being affected by the high blood pressure and diabetes. He was diagnosed in Stage 3 of Kidney Disease. Then 15 months ago, he began experiencing anxiety & panic attacks, also digestive problems with pain, pressure and discomfort in his stomach. In about a month he lost an additional 15 lbs., experienced extreme insomnia, and depression. About this same time the nephrologist told him his iron level was too low and the best way to improve it was iron infusions; he had 1 per week for 4 week. However, the other syptoms continued. After extensive tests to rule out gall bladder, colon problems, etc, and 2 trips to the emergency room, he saw a cardiologist. The cardiologist found 2 blockages in his main artery and placed 2 stents in the artery. The pain & discomfort improved immediately; however, due to the insomnia, depression, anxiety, etc, doctors had now added 3 more meds (1 for anxiety; 1 for depression, 1 for insomnia). The cardiologist added a blood thinner & increased his daily dose of aspirin from 81 mg to 325mg. Iron levels were within normal limits for 8-9 months after infusions. Now they are at record lows; all other numbers for cholesterol, high blood pressure, and diabetes are great, But he is now taking 11 prescription meds, aspirin, plus viatmins & supplements, and is scheduled for another 4 weeks of iron infusions. I'm concerned that possibly the medications and all the doctors are causing as many problems as they are helping. He now sees a primary care doctor, cardiologist, nephrologist & psychiatrist every 3-6 months each.

Sat, July 9, 2011 @ 11:16 AM

20. Dani wrote:
Hi poli
Test for hypothyroidism

Sat, July 9, 2011 @ 11:23 AM

21. Dani wrote:
Iron infusion iron gluconate x iron sucrose

After 2 iron infusions with ferric gluconate I had a infusion with iron sucrose.
NO COMPARISON!! With Ferric gluconate I had so many side effects ( nausea, cramps, diarrhea, malaise, extreme fatigue) iron sucrose: nothing at all!

Sat, July 9, 2011 @ 11:34 AM

22. Melanie wrote:
Hi Mommy2boys and Tanya. I had fatigue, no energy, low iron etc. most of my adult life. And it's so true--your family starts to get frustrated with you, because you don't "look" sick. After four children, I also had excessive monthly bleeding (thought it was "normal" perimenopause stuff!). My gynecologist performed a uterine ablation and it was like someone flipped the energy switch on! I also found out I have PMDD (think PMS multiplied by 1000!), which is being helped greatly by Cymbalta. I urge any woman with heavy menstrual bleeding and low energy/fatigue and low iron, Hb or ferritin levels to find a gynecologist who understands the connections between all of these things.

Mon, August 22, 2011 @ 10:29 AM

23. Melanie wrote:
Hi again. This time I am hoping someone can give me advice about my 15-yr old son. His entire life, he has had excessive sleep needs. He will sleep 12 hours a night, be exhausted all day, nap for 2-3 hours at various times during the day and still be grouchy, and then go to bed and fall asleep right away. Until puberty, he was also chubby, even though his diet was (and still is) very good. For the past 6 years, he has seen numerous doctors at the best children's hospitals, had sleep studies, bloodwork, lung function tests, EKGs and psychoeducational testing. This is what the doctors came up with: excercise-induced asthma, GERD, periodic limb movement disorder (PLMD) and ADD. He has been on provigil, Adderall, clonidine, levo-dopa, asthma inhalers and Zantac at various times over the years. We would see temporary improvement, but he hated the side effects. We have discontinued all of the meds at this point. Finally, a doctor paid attention to the periodic limb movement disorder and had my son's ferritin levels checked (Before, bloodwork only checked for Hb and hematocrit and they were always normal). Sure enough, he has low ferritin (first result was 4 mcg/L). He went on iron supplements, and ferritin got up to 15 mcg/L after 3 mths. His PLMD improved minimally, based on sleep study results, and the fatigue and ADD seemed to be helped by Adderall. The doc said he was satisfied with this, but couldn't answer my question as to why his ferritin levels are low. So, here is my query. Is iron deficiency without anemia the main problem we should be investigating? Based on the hours of research I've done, it seems like many of his diagnoses could arise from his low ferritin levels. I'll throw in a few more things--he has always been a huge milk drinker (24+ oz a day), has occasional migraines and has had two dizzy/fainting spells in the last year. These three things can also be linked to iron storage or absorption problems. I would greatly appreciate any advice on what kind of doctor we should see (hematologist, neurologist...) and the next step we should take to unravel this increasingly frustrating situation for my son and us (he essentially is stumbling through life half asleep). Thank you!!

Mon, August 22, 2011 @ 11:05 AM

24. Mommy2boys wrote:

I want to say up front that I am not a Dr. and my medical knowledge is only based on experiences of my own or that of my family...

Having said that. We found out about 8 months ago, through our own investigation, that my nephew (12 years old) has a milk intolerance. He does not get really sick or have hives or anything like that. However, he stays tired, irritable, and we noticed that he was gaining weight around the middle. I have first hand knowledge of food allergies and suggested to my sister she put my nephew on a milk free diet. By milk free, I mean all milk... even the milk that is found in processed foods (to know if it is there for sure you have to learn how to read labels). Within about 4 weeks we noticed a huge difference in his weight and attitude. His waist line decreased and he wasn't so quick to snap. His attention level and tolerance level both increased. That left us with the sleep issue. We started him on melatonin (I would not suggest this without talking to a Dr. because melatonin could interfere with hormone levels and cause different issues).

I guess the one sure thing I would want to check is B Vitamin levels. Have they done that yet? Aside from that, I would try to see if it is something that he is eating. I know it sounds like a stretch, but you would be surprised how much things we eat can affect our bodies! The first think I would cut is milk. It takes about 2 weeks for milk to leave your systems so you will have to be milk free longer than 2 weeks to see any results. If you are interested in trying this, let me know... I have taken two kids and myself through this process and will help if you want.

As for what doctor to see next. Tough one! I have found that even when you go to the same kind of doctor, with the exact same symptoms, you can get a different diagnosis and a different action plan. For instance, my sister had been having major stomach issues. She went to 3 different GI docs. It wasn't until the last one that she found out she has a rare bacterial infection, Strep G.

Best of luck to you and your son!

Sun, August 28, 2011 @ 3:02 PM

25. Valerie wrote:
Hi! Wow I have been have huge revelations about my "low iron!" Doctors have told me for years to "just take iron pills, you're a little low on iron." Now at age 53, I find that I am not even absorbing all that iron in pill form. I also had no knowledge of all the foods that inhibit iron absorption until I found this website and did further research. No doctor ever even said you have anemia, it was "you're just a little low on iron." After another recent blood test I was told I had low iron and I finally challenged what I was hearing and said I take iron supplements regularly, how can this be? The NP finally did listen and did follow up iron tests. Turns out I had a very low iron binding factor-40 when it should be close to 100. I started having numb/cold feet a few years ago and thought it was neuropathy- it is not- it tested negative and my quadriceps fatigue after about an hour of walking. The last doctor said to just wear compression shorts and never checked blood issues. I am now ruling out spinal stenosis before I say this is from anemia. Even my NP who is following up to rule out other neurological causes didn't treat the anemia that seriously. I have had to find resources like this IDI website on my own. I did start taking liquid iron instead of pills and that helped a little to raise my numbers. Now I am watching all the foods that inhibit iron absorption. I now realize I have to demand followup treatment and testing and perhaps go to a hematologist. Any other ideas are welcomed.

Sun, September 11, 2011 @ 6:41 PM

26. Valerie wrote:
OOPs! I need to correct myself in my last post. My serum iron was only 40 and should be about 100. My iron binding factor was also low.

Mon, September 12, 2011 @ 5:59 PM

27. Elizabeth wrote:
Have just found this website. Could someone advise me if I have anemia. I am on ferrous sulphate 325mg twice daily prescribed by my consultant who has said that my serum ferritin is low. It is 26. Have been to see another consultant and was asked as to why I was taking iron supplements as my iron level was normal. I had been told by the consultant who prescribed the iron that it would take 6 to 12 months to restore my iron levels and to feel better. But now I am totally confused as to whether I should actually be taking iron supplement or not. Could someone please advise.

Thu, September 15, 2011 @ 6:26 AM

28. Marty wrote:
I have been under the care of a gastroenterologist since 1986 for Crohn's disease. I also have iron deficiency anemia. I had a bone marrow biopsy done and the biopsy showed "0" iron in the bone marrow. My hgb is slightly low, 10.6 as of last week but my ferritin level stays between 1-3. When my ferritin level is low, I have no energy, itch all over, extreme shortness of breath with exertion, and have extreme muscle & joint pains. I get iron infusions occasionally but only when my hgb. is below 9. My doctor states he doesn't want to give me iron infusions very often "because it could have serious side effects" I can't believe any side effects could be worse than the symptoms I'm having now. I can truthfully say the iron infusions make me feel like a different person. I get 3 doses in 3 days. After the 2nd infusion, I can tell a huge difference in my energy level. I told the doctor I'm going to start bootlegging the iron if he won't give it to me when I feel I need it. I highly recommend iron infusions!

Mon, September 19, 2011 @ 3:15 AM

29. candyt wrote:
I am a 64 yr old diagnosed with primary (genetic) hemochromatosis. Initial treatment was phlebotomy (only 2 1/2 units). Prior to that I also had been diagnosed with chronic Depression, Chronic Fatigue Syndrome and have had weight loss surgery. Fatigue has been a constant and it gets harder to manage My ferritin stays low and has gotten down to to 2 at one point. In the past I was treated with REPLIVA twice with good results, but it has been removed from the market (can't find much info on why) and I do not absorb oral iron. I have had iron infusions several times, but they don't make me feel much better. Has anyone else had similar problems?

Thu, September 29, 2011 @ 12:21 PM

30. Tania wrote:
I have had low ferritin for years. Levels of about 3-9. I have tried every supplement on the market, and my levels are not increasing ( I can imaging what they would be like if I had not taken any supplements). I feel like life is going by, and I can not catch it. I feel like I am going crazy. I am so tired. I am working out, but have gained no muscle in a year. My cardio is horrible. I even feel that certain fabrics on my skin are intolerable. The always wanting to move my legs is so frustrating as well. I am set to have four Venofer infusions, one every two weeks. Does anyone know how long it takes to work? I have two young children, and a husband who need me.

Wed, October 12, 2011 @ 4:53 PM

31. Kim wrote:
I don't see on here where people are being checked for Celiac Disease. This can be done with a simple blood test for transglutaninase Antibodies (tTGA) . This is the most common cause if you can't get your iron levels to increase with supplementation and there is no obvious cause found, i.e. bleeding. Quite possible to be an asymtomatic celiac. My husband has it and only had neurological symptoms, no gut symptoms at all! The villi in the small intestine are damaged and therefore cannot absorb the iron. Must be on a gluten free diet in order for the villi to grow back and takes strict adherence to the diet. It takes a few months for the villi to fully recover so be patient. Googleq celiac disease and anemia. Not many docs are very good at looking for this.

Wed, October 26, 2011 @ 4:26 PM

32. Marcie wrote:
New to the site and very frustrated and looking for anwsers, which I guesseveryone is. Dx with Iron def March '10 but decided to try to boost myself with diet. Plus was sick of seeing physicians and having tests (had liposarcoma-no longer have to do frequent f/u-Hey). Anyway had low ferritin/iron levels but hct/hgb were low but never got to bad considering how low my ferritin level was (4). After failed oral started IV Iron & finished 8 infusions (they changed med 3x-once due to a reaction & the other was the change on formulary). Saw my doc who decided on maintenance therapy. I felt better as well and my blood actually was getting red instead of black. Prior to starting maintenance which is every other week Iron infusion for 10 wks I became symptomatic (extreme, very emotional, palpitations, very short of breath, etc.) & y blood was blood was black (noticed when IV was started) Saw the doc who put me back on every week for 10 wks of Iron infusions. Now that decision was made because I called & was concerned on how I felt because my labs were never different. Basically my hct/hgb in normal range as well as my iron/ferritin & TIBC. They could use a boost & be higher but were in normal range. The one value TIBC saturation % basically though has never changed (been very low-from 2 to an 8). I asked why & was told they do not know. My concern is whether they are missing something and maybe I have something else going on. Being worked up for heavy menstrual period for cause but nothing unusual. I am perimenopausal and bleeding slightly more but never really had any issues with my reproductive. Always heavy periods but not convinced that is the culprit. The GI workup is (-) so what else could it be and how do I get it worked up to know for sure. Any ideas or suggestions? Seeing a hematologist but thinking I should see someone else (different speciality) any ideas on that as well.
I thank you in advance for reading & possibly replying to this post. Best to you all n your own challenges with this iron dilemmia.

Mon, November 7, 2011 @ 10:35 PM

33. Buffy wrote:
I've been experiencing symptoms of anemia but can't seem to get my doc to take me seriously. He says my numbers aren't low enough for me to be symptomatic. Fatigue, excess shedding of my hair, any basic exertion makes my heart race.... My RBC, HGB, and HCT seem to stay just under the normal range. My FE is 29, and percentage of saturation is 8. But my Ferritin is 51 which is in the normal range. Does anyone have any suggestions? Do these numbers indicate iron deficiency? My menstrual cycle is very regular, but extremely heavy.

Any advice would be appreciated.

Wed, November 9, 2011 @ 7:33 PM

34. Mary wrote:
Hi Buffy - my story is very similar to yours except my ferritin is 40 (still in the normal range). I've been reading that in order to stop shedding & regrow hair, your ferritin should be at least 70, and some information says it should be 100. I'm in the process of eating more iron-rich foods along with vitamin C - I'm desperate to feel better. I'll even eat liver if it makes things better! I am also going to ask my doctor about supplements.

Thu, November 10, 2011 @ 12:19 PM

35. Buffy wrote:
Mary, thanks for the info. I didn't know that about the ferritin level. I also make a point to eat iron rich foods, cook on cast iron (I read that trace minerals can be absorbed), and I also juice kale and spinach and drink wheat grass daily. I'll draw the line at liver though! I remember having to eat it as a child. Good luck to you.

Thu, November 10, 2011 @ 4:47 PM

36. Jen wrote:
I Have IDA as well as most of you and have recently been refereed to a hemotalagist. My blood work is way out of whack Serum Iron was 2 Ferritin 2.6 and Percent saturation of 7. They told me to change my supplement to Ferrus Gluconate and take it twice a day with vitamin c. I was curious if anyone knew what I should expect at the hemotologist visit as they assess me for Iron infusions and how that process would work. Also they told me I may need my bone marrow tested has anyone had that done?

Fri, December 30, 2011 @ 6:03 PM

37. Cindy wrote:
My anemia adventure started back in August 2011. I was feeling really crappy and was having real bad back pain. Went to the emergency room and found out during a bunch of blood work that I was mildly anemic. Followed up with my GP and after a barrage of more blood test was told it was chronic disease anemia. At this time my iron was normal everything out of wak was around my red blood counts and my protein was low. Its been down hill since, because of getting no true cause answers and getting more frustrated and worse by the day started seeing a hematologist by this time I had paid another visit to the ER this time for low potassium and magnesium and hemo was getting lower. I didn't have the energy to do anything started missing a lot of work I was tested for bleeding from my gastro specialist and I found out my beta carotenes were low. Kept getting worse started seeing the hema in November had an Iron infusion first week of December my ferritin serum jumped up to 470 so now its high but my saturation is still low and my hema came up to almost normal 11.8 but I have been fighting a lot of respiratory issues started with bronchitis and than christmas back at the ER and was diagnosed with pleurisy. Specialist retested my beta and now liver counts and my beta is down to 5 so my immunity is compromised right now. I was told 3 weeks from the infusion I would feel like a new woman. Still waiting for that new woman because she never showed up. My husband and I are very frustrated and need answers but so far nothing on what is causing this. As far as my blood work its always been pretty normal accept for by type II diabetes which its the one thing that is under control now. Imagine that! My mom had mylodisplasia syndrome and I am concerned this is the onslot of it but they have yet to do a bone marrow test and I am not quite sure why not. Never feel like I am asking the right questions.

Wed, January 4, 2012 @ 9:02 PM

38. wrote:
I am a 65 year old women who has been in petty good health until some blood tests revealed I was borderline iron deficient. After repeating the RBC a few months later, it was found I had a very low ferritin level--5--but was not yet anemic. My doctor said this was a precursore to anemia and I should get it checked out with a hematologist. I am looking for causes--I know bleeding somewhere in the body could be a cause but I had a colonoscopy in the last 5 years along with a endoscophy which diagnosed GERD and take an acid inhibitor everyday. It was after taking Omeprazle that my blood levels changed so I was wondering if anyone else had experience with a drug inhbiting acid might interfere with nutrient absorption.

Tue, January 17, 2012 @ 11:41 AM

39. Fayth wrote:
I've been dealing with various levels of ID since I was 12 years old. I have been on ferrous gluconate for years to deal with it. In spring 2011 my iron level was at a four fo my doc put me on FerraMax, easier to absorb, when I went back 2 months later my levels dropped to 2. She referred me to a heatologist and changed my oral iron Proferrin, supposedly the best oral iron there is. I got into a special combination clinic held at the Women's Health Centre here, where I am now seeing a Hematologist and Gynocologist at the same time. The hematologist has put me on Venofer treatment once every two weeks, while the gyn is having me get every type of ultrasound available and has put me on cyclokapron during my period to try to control the bleeding. I have had 4 iron infusions and although my iron and hemaglobin levels are up, my symptoms aren't getting any better. I'm still exhausted and freezing all the time, I keep getting sharp pain in the upper left abdomin, always nauseous, no appetite, headahces, ect. SHouldn't my symptoms be alleviated somewhat by now?

I was diagnosed as borderline hypothyroid about 5 months ago and have been taking synthroid ever since. I was also hospitalized 2 years ago with acute cholesystitis and had to have my gallbladder removed. I was 29, not over weight, low-fat diet and had been experiencing episodes since the age of 12 as well.

Should I be pushing for a different diagnosis? Something is obviously wrong.


Fri, January 20, 2012 @ 1:07 PM

40. Dylmansmom wrote:
I have severe iron deficiency. Almost any activity at all causes my heart to race and I am short of breath all the time!!! I have terrible restless leg syndrome, I have a lot of trouble sleeping, constipation and I am tired and cold ALL the time!!! I was told to take 325 mg of iron twice a day but I am unable to take this. Everytime I take an iron supplement I feel horribly nauseous and usually vomit!!! I just cant take this anymore!!! I have never heard of an iron infusion, maybe I should ask my doctor about this. I have depression issues too, I'm not sure if its from the deficiency or because of it.

Sat, February 4, 2012 @ 5:00 PM

41. Kim wrote:
Dylmansmom- I have the same problems with the iron my doctor prescribed makes me extremely sick and I cannot take it. I learned that when pregnant women cannot keep their prenatal vitamins down the docs will have them take the "Flintstone's Children's Vitamins with Iron". I have been taking them and have been able to raise my ferritin level from 2 to 28 in three months. I am careful not to drink milk, coffee or tea or eat any dairy when I take them as these can bind with the iron and block absorption. I also take 3 vitamins at a time and make sure to take with a meal high in iron. I haven't gotten sick to my stomach at all since I started doing this and so far it is working. At least these are better than nothing. Hope this helps!

Mon, February 6, 2012 @ 6:12 AM

42. Lisa wrote:
Have any of you had stool samples done to eliminate a bleed in your bowel.
That's my problem...I am losing more iron via a bleed than I am taking in,
About to have another colonoscopy.

Wed, February 8, 2012 @ 5:27 AM

43. sam wrote:
Ive has several test done to find out why my hemaglobin is always so low i stay at a 7 even tho im getting iorn therapy every month. Im always super tired and never feel good at all and just dont know what to do anymore. What can be causing my rbc to always stay so low my dr is good but he hasent given me an answer on whats wrong with im looking for some answers please help

Wed, February 15, 2012 @ 12:59 AM

44. Anette wrote:
To ALL that experience low iron levels;

Have any of you tried eliminating GLUTEN? You must understand that when you are gluten intolerant, your stomach lining becomes so damaged that vital nutrients such as IRON can not be digested, and your brain literally starves for what it needs to function appropriately. Gluten intolerance is a MAJOR cause of unexplained anemia, thyroid issues, autoimmune responses, fatigue, psychological issues, and much more. Gluten is a major cause of AUTOIMMUNE DISEASES so you must heal your gut first by eliminating gluten from your diet and you will see huge improvements in autoimmune issues, energy levels, and most importantly; anxiety and depression. It's so easy to do and you'll know within 2-3 weeks if you are someone who would benefit from this. Also, you have to understand that gluten intolerance is not detected on a blood screen so western doctors don't know to recommend this. MOST naturopaths are all about this, and after 10 years or feelings extremely anxious and "off" I finally feel WELL thanks to going gluten free.

The crazy thing is that if you're gluten intolerant, each time you ingest gluten you are causing your system to go into stress, inflammation, and overdrive. Imagine how happy your body will be once you take away this toxin. Look into yourself, google gluten intolerance and learn more about it for yourself.

I urge you all to try this. It can't hurt you and it may be the best thing you've EVER done for your health!

Best of luck to you all!

Sat, February 18, 2012 @ 12:37 AM

45. Susan wrote:
I totally agree with Anette regarding the gluten. Long story short, I went off of gluten twice, once 2 years ago for a short time, only be told by the drs. to go back on, no reason, not to eat it. Fast forward to last October, diagnosed with horrible anemia. Ferritin at a whopping 3. Took myself off of gluten and my tummy has never felt better. The Drs are still telling me that that is not the issue, but to bad, I am actually feeling human again. Now, just finished up my third iron infusion and waiting to see if it worked.

Good luck to everyone!

Thu, February 23, 2012 @ 6:50 AM

46. Michelle wrote:
I have recently been diagnosed with iron deficiency anemia. I was wondering if anyone had any advice about what the best/strongest brand of iron suppliment was? I am tired of feeling tired! Want to get started on something effective as soon as possible. My diet is almost totally non dairy, a do green smoothies and juicing. Lots of beans/nuts and some meat...so, I think I'm doing all I can in this department. Thanks for any advice.

Fri, February 24, 2012 @ 12:52 PM

47. andrea wrote:
Help! I've read everyone's postings and can relate to most. I am 44 female, w/Ferratin 7.8, RBC 3.98, Hemoblobin 11.4, and HCT 34.4. I realize these are a lot of numbers, even I can't figure it all out! I've had one doctor tell me Ferritin @ 7.8 was reason for iron/blood transfusion. My Internist just keeps blowing me off. Even ER dept. sends me home. I've been Rx'd 50,000 unit vit. D, 325 mg iron 3 x's day (but I usually vomit), and am nauseaus, migraines EVERY DAY. Restless Leg, freezing, depressed, irritable, and I miss having a life. My children and husband have "lost" their mother and spouse. I am so dependent on my husband, I feel like an infant.

Any advice? I'm so grateful...............

Sun, February 26, 2012 @ 5:15 PM

48. Miskin wrote:
Intersting reading all your comments.
I was in hospital yesterday having an iron infusion all day. 6 hours in all after the inicial tester that they do. I had one in Novemwber but unfortunately all the iron i had has dissapeared again. I was diagnosed with water mellon stomach and am waiting to see a consultant to see if this is the cause of the loss of iron. I do not have periods as early menopause so it's not that.been tested for coeliac as runs in the family but was negative. other than that i do have a rare blood disease but my heamotologist says the tummy is the problem, when i had an endoscopy the consultant then said i will need laser surgery/ Problem is i am still iron deficient and feeling like all you other people on this site, feeling done in and fed up.....

Tue, February 28, 2012 @ 1:08 PM

49. shell wrote:
Hi there I have a low b12 and low iron I have jabs of b12 and put on iron tables 3 times aday 325mg I've been taking these every day yet feel nobetter went bk to the doctors had yet other blood test done and I just been told that my iron is still droping so now don't no what to do I feel awful all the time just wanna sleep and I really have to push myself to do anything I get upset tummys and feel sick my head never feels as if it belongs to me . I think I'm 33 yrs old I shudnt be like this I've also dorped from a size 12 to a size 8 .

Thu, March 1, 2012 @ 9:33 AM

50. Miskin wrote:
You need to keep bugging your doctor to get sorted. Sounds like you need an infusion to have a full load of iron all at once......after a few days you will feel alot better. Ive just had infusion and three days on i feel much better. Before like you my head didnt feel like it belonged to me. go to the dctors again!!!

Thu, March 1, 2012 @ 1:58 PM

51. Miskin wrote:

Sun, March 4, 2012 @ 6:03 AM

52. Erin wrote:
For the past few years, I've experienced being really cold, very tired and fatigue and I would chew ice like nothing. I finally was diagnosed with really low iron, it got as low as 1.5 and the Dr. was wondering why I wasn't in the hospital, but I think because my body did it so gradually that it just got used to it, plus I have children and you have to go on about your day. They gave me an iron infusion and it came up a little but then it would drop again over the course of 3 to 4 months. Now I just got back from the Dr. and I have to have another iron infusion, this is the fourth time, and I don't want to continue having these, plus I feel that their just covering up the problem not finding out why my body is not holding on to the iron.They have sent me to my Gyno to check out my periods and they also sent me to have a colonoscopy and that came out fine, but why does my ferritin keep dropping so low but my hemoglobin doesn't. That doesn't make any sence.

Mon, March 5, 2012 @ 4:34 PM

53. Mark Spencer wrote:
My wife has been anemic it seems all her life. Recently she found a Dr. who understood her condition. He did the test and her iron level a 2. he said he did not know how she was able to get up each day.She eats ice constantly and when she doesn't have ice she chews her hair. He started giving her iron transfusions and they really worked. But,soon after that I lost my job and insurance and she can no longer receive the infusions. She has now gotten worse than before.She can barely walk a few steps before she is exhausted. Her heart is skipping beats. She is chewing ice again. She can not see a Dr. because we have no insurance and even if she could there is no insurance to cover the cost of treatment. I am very worried about her as I watch her get progressively worse. Are there any supplements out ther that will help her. Iron supplements make her incredibly sick. So does infusion,but,she tolerates it. If anyone has any advise it would be greatly appreciated. I am very worried about the results if I can't help her.

Wed, March 7, 2012 @ 5:25 PM

54. Marie wrote:
My daughter was recently diagnosed with Celiac and her ferritin level was 4. She is on a gluten free diet. Her doctor does not want her taking any supplements at this point. Does anyone know how long it takes before she will see improvements in the ferritin level?

Sat, March 10, 2012 @ 2:55 PM

55. Debbie wrote:
I am anemic and have had 7 iron infusions. My iron level is still @ 9 with an iron saturation of 1%. Not sure what to do next.

Sun, March 11, 2012 @ 2:27 PM

56. Erica wrote:
I haven't had serious medical issues ever. I'm anemic and have in the past taken B 12 shots but haven't taken iron or B 12 shots in quite some time. Yesterday evening while stopping to pick up a food order, I was cramping a little cause my cycle will be starting soon. I hadn't eaten since twelve that day and it was about 5:15. I went in, asked where the restroom was and the next thing I knew I was on the floor and someone was asking me if I was ok. Paramedics came and they said my blood pressure was 90/6 or something like that. Sugar level was 78 which they said was good. I asked them to take pressure again because it was low at the dentist once and when they did it again it was normal. The paramedics did pressure again and it was 110/68. Could this have been because of low iron?

Thu, March 15, 2012 @ 8:49 AM

57. Dawn wrote:
for all of us that are unwell and low in iron, i know that if we cooked everything in a cast iron pot/pan that would help and also the dessicated liver you can buy is supposed to be good. I really feel for the gent who's wife needs the infusions and no insurance, do try liver and iron pots. go back to the olden days :)
A lot of my symptoms are due to my thyroid supplements not being used properly in light of my deficiencies. Low ferritin\iron and some other nutrients stops proper thyroid hormone metabolism which equals feeling rubbish.
Then of course on top of that the anemia symptoms and low zinc and ,roteins aghhh I feel terrilble, i am bedbound with fatigue, breathlesness and pain, and even typing this is hurting my arm muscles. So weak.
Blood tests showed liver enzymes so i am a tad worried.
Please get better everyone. Would try the iron pots thing myself but i cannot cook for myself.

From the lady with the racing heart and legs but isn't really moving far`lol.
hugz Dawnx

Mon, March 19, 2012 @ 4:58 AM

58. Tootired wrote:
I have just found your website at 3:00am. I am up again with an upset stomach, insomnia and out of breath. I have had a history of very low ferritin. 2-3. My doctor only pays attention to me when i become anemic. Today's labs reveal I am anemic,really low ferritin 2 , b12, and thyroid numbers moving from hypo to hyper. I am exhausted all the time.
I paid $30.00 for a b12 short and was told i couldn't see a doctor without an appointment. I gave the nurse my symptoms, the doctor told her to tell me to go to the ER if I felt that bad! She wouldn't even speak to me personally.

I had 2 iron infusions in about 1.5 years ago and they worked pretty well. My underlying concern is why the ferritin is so low, and why we have no doctors to tell us what this is a symptom of. Everyone is saying the same thing.

I am also a regular blood donor. Is this a bad idea?

Wed, March 21, 2012 @ 3:20 AM

59. Jakmac wrote:
I am 50 years old - Female. My ferritin is 6. Saturation 1%. Hemoglobin normal. (I think he said 130?)
I had gallstones/gallbladder removed at age 18. Dx with Hashimotos at age 25. Have always had symptoms of fatigue. I have been taking B12 shots for 25 years.
I had a hemorrhage after the birth of one of my children (so I am wondering about iron avidity)
Exercise often gives me symptoms of arthritis - but those tests are normal as well.
Last five years have had Roseacea on face.. it actually looks like a lupus rash but the one test I did for lupus came back normal. I've gained 50lbs in the last five years.

What works for me: Magnesium supplements have greatly helped me over the years - I have to take 500mg at night otherwise don't sleep well. Vitamin C usually makes my face go red.
I have recently started taking HCL Betaine supplements with my iron to address absorption problems (WHAT A HUGE DIFFERENCE IN NAUSEA AND NO CONSTIPATION PROBLEMS)
Here is my question:
When ever I start taking iron supplements - I get intense aching in my hips and shoulders after a few weeks. Although I have better energy and less shortness of breath (I have problems walking up stairs or any hills) but I can usually walk on flat surfaces. I am worried that I am getting iron overload - although that doesn't make sense. My fear is that the problem is with the ferritin but not with iron in my body. Does anyone have any information on this?

Fri, March 23, 2012 @ 9:27 AM

60. Jakmac wrote:
post script about the supplements: I also take 5mg of folic acid fairly regularly. For those people with insurance problems. I buy B12 over the counter - for about $8 - and this has about 10-12 doses in it.. and I give myself the shots in my thigh at home. Not a big deal and much easier than having to make monthly appointments with doctors and nurses.

Fri, March 23, 2012 @ 9:31 AM

61. sickallthetime wrote:
After seeing all of these horrible symptoms, and having them for two years, and having had doctors tell me I was making it up, and try to send me to a mental institution....

..even when they finally ran the tests and, by modern guidelines, my numbers are off, and they refuse to update their practices..

..having had my doctors tell me to ignore my swollen hands, or that maybe it's because I am fat (I gained 50 lbs BECAUSE of being sick. I used to be a highly active 135 pound woman with tons of energy, now I'm fat because I can't stand)..

..my best advice is to realise that you're never going to find a good doctor unless you're royalty or a celebrity, and jump off a bridge. I wish I had done so, when I could still walk well enough to get out to one.

Sun, March 25, 2012 @ 3:55 PM

62. Doodlesquat wrote:
Oh, yeah--I got all the same stuff. Over the past year, I have had 14 iron infusions. Been checked for Crohn's disease, celiac disease, had upper GI series twice as well as two colonoscopies and 2 fecal occult X3 tests. You name it, they tested it, probably twice and ruled it out. I DO have RLS and have had it for 30 years and I DO have migraines also and have had since childhood.

Questions to ask you guys:
Have you noticed the RLS gets much worse as you get more anemic?
Notice breakthrough symptoms during the day and maybe the symptoms become abdominal?
And the migraines increase?

Here's a couple of facts you might be interested in:
* about 25 % of long time sufferers of RLS become iron deficient anemic.
*Several independent research studies point to a genetic cause for RLS and its link to both migraines and the need for iron in the brain.

Thu, March 29, 2012 @ 12:27 AM

63. Farzana wrote:
Hii... i am 5 months pregnant and asked to take iron supplements.. but the problem is wenever i take iron tablets i get violently sick.. infact my body becomes extremely weak.. i start having loose motions too.. n the whole day i have a very heaavy feeling in my stomache... n hence i do not eat anything... please help.. is it ok if i dont tak the iron supplements??

Thu, March 29, 2012 @ 3:51 AM

64. Jakmac wrote:
To Farzana. Many people are able to tolerate a liquid formula called "Floradix' that you buy in health food stores and this is usually just fine for helping keep up your iron stores in pregnancy. However, if you are very anemic and that is why you are being asked to take iron supplements, that may affect your baby and your pregnancy, not to mention you will feel extra tired so you should keep working with your doctor/midwife!

Thu, March 29, 2012 @ 8:22 AM

65. Mamzie wrote:
Could someone please tell me what kind of iron tabs to buy when the dr. tells you to take 325 mgs of Ferrus Sulfate. I had been taking Integra F once a day which did not bring up my Ferrin rate ( at four currently) I am still anemic and my white and blood cell count has halved in two since the needed blood trasfussion back in Sept. All tests have been neg. for bleeding out ect. Thanks Female 53 who is sick of being sick and tired

Thu, March 29, 2012 @ 2:52 PM

66. hopethishelps wrote:
Just a few thoughts.....Low Ferritin that is me..until I went to a blood disorder doc.:
hematologist, that is when I received Iron transfusions..definately a boost to mood, energy.. be persistent, don't give up ..advocating for yourself to feel better.
to the posts who have taken iron rich foods and supplements: but iron level does not improve:
have doc./NP Nurse Practioner check an H-PYLORI test, this is a blood and breath test. if you are + then you will be put on antibiotics. +h-pylori will cause stomach ulcers and inflammation and prevent iron absorption in the gut. (it as thought that ulcers were once caused by stress but it is from a bacteria in gut)!
To the posts who need a good source of Iron over the counter' BIFERA seems to be a good choice,: Keep tryin sister soldiers' and the men who support us!

Sat, March 31, 2012 @ 10:58 PM

67. Nina Gallo wrote:
I hope someone can give me some insight. I recently had a heart attack (1mo ago).
I'm now taking Plavix & Aspirin 325, both daily. My recent labs show the following:
RBC...2.75 (low), Hemaglobin 8.6 (low) & Hematocrit 25.9 (low). The odd thing is that my total iron level is 214 (high) & Platelets 359 (wnl). While I feel cold & somewhat tired, thats nothing new & tolerable. I have been somewhat depressed, but that's expected after a cardiac event, I would think. Do you think it's a GI bleed? I'm not experiencing any abdominal pain and my stools look normal. Thanks

Mon, April 2, 2012 @ 4:42 PM

68. hopethishelps wrote:
Nina: why do you take high dose aspirin?... did doc recommend??

this maybe cause of internal bleeding?? i wud recommend GI doc to evaluate.

Wed, April 4, 2012 @ 11:12 AM

69. Emily wrote:
I am 17 years old and I know very well that I have anemia through the news of my school nurse. My school nurse had given me a blood test and they had tested it at a nearby health clinic. I got the results back about two months ago which is how I found out. I was prescribed iron supplements (Ferrous Sulfate pills 67mg= a day's worth of iron for a normal person) and have been using them every day for the past two months along with a cup of orange juice.
I signed up for a bi-annual blood drive that has been held at my school hoping that my iron levels were normal. However I was wrong. During that time, the doctors (phlebotomists??) had to check my blood pressure, iron levels, and blood sugar. They used the automated blood pressure machine 7 times on me until they did it manually (weird, huh?). After that they checked my iron and blood levels, and it wasn't until then that the doctor had told me that all three tests showed that I have low but normal blood pressure, low iron, and low blood sugar. Then they had to deter me from being a possible blood donor until I am better.
But that is crazy since I enjoy having some form of glucose (such as chocolate!) every day and have been taking iron supplements since my last checkup.
I told my physiology teacher this but it kind of freaked me out when she said that she heard of a story similar to mines where a friend of hers had the same problem as me, as the friend had it as a result of a stomach ulcer. Now I'm really scared and I don't know who to go to besides a doctor (but I am a slave to the evil medical insurance corporations that frequently changes policies that screw honest people over, so I cannot go). :/
What is going on with me?

Fri, April 6, 2012 @ 4:35 PM

70. Kristen wrote:
I saw a sleep specialist last week because I have been sleeping terribly and am exhausted constantly. I'm foggy at work and it's really starting to impede my performance, which is bad since I recently started a new job. I don't want to lose it over this! My doctor talked to me about my symptoms which, aside from terrible sleep include achy legs that "fall asleep" constantly when I'm sitting still, and an inability to get comfortable. Surprise, surprise, it's RLS. My ferritin was 25 and the doc said it should be over 60 to be normal for me. So, I am going to be scheduling IV infusions (I've struggled with anemia before and I know I can't stomach iron pills). He said I should feel some relieve almost instantly. Is that true? How long does it take to start feeling and sleeping better??

Mon, April 9, 2012 @ 2:27 PM

71. H.B. wrote:
I'm in the same boat as most of you above in regards to the iron and gluten etc. When you've had an iron shot, is it normal to have swelling (like a hard bump about 2 inches) in the location of the shot? I'm assuming yes, but wanted to see...
My B12 shot, no swelling.

Wed, April 11, 2012 @ 12:45 AM

72. Ruth Dorn wrote:
64 yr old have so many surgeries feel frustrated that I feel so bad all the time knee replaced two hips major back surgery pulmonary valve replaced Now I can't walk 25 feet without getting out of breath went to ER blood count so low could have been fatal got 5 or 6 blood transfusions spent almost 3 wks in hospital had colonscopy and upper GI done no bleeding finally said I OD on coumadin was pure hell tied to IV S and heart monitors sent me home did well for 2 wks then gradually went back to the pain in stomache and shortness of breath Just had bloodwork done and everything fine but blood count low again doctor dumbfounded said will consult with a specialist and told me to take iron 325 mg found this site and getting excited hoping found a cure also everytime I had surgery had kidney problems wondering about erythropoitin factor any thoughts? I just have been in this pain all the time and couldn't describe what I felt Hope this is my answer

Thu, April 12, 2012 @ 6:41 PM

73. kraut wrote:
I was very tired all the time until my doctor did blood work for vitimin D and I was quite low. So now I take 4000 iu per day and feel fine. Your can also replace vitimin D by being in the sun. It's the sun shine vitimin.

Thu, April 12, 2012 @ 8:16 PM

74. mommapearl wrote:
I had gastric bypass surgery last June and my iron is dropping every time I go to my follow up. I am taking 2 chewable iron pills a day and 2 ferra sumate iron pills a day. It seems like the more iron I take the more it drops. They said I am ALMOST a candidate for the infusion. Any suggestions?

Tue, April 17, 2012 @ 11:49 AM

75. Tina wrote:
I feel like I cannot even get up without getting so out of breath. Last check my iron level was 20 and hemoglobin 9.6 back in February. I at least could get up and move around before a little bit. I have very very heavy periods which could be the cause. They say I have a Polyp and they say will remove that but want me to gain weight. This all started back in august when I was short of breath so I ended up in ER to find out Potassium was very low had to get 4 bags. I am wondering is my potassium really low again or because I am anemic now is that why I can not even move. I am wondering if I need blood transfusion and some iron injections ? Has anyone been so short of breath and needed transfusions or iron injections right away for it ? I am also afraid of that too.

Mon, April 23, 2012 @ 9:40 AM

76. Julia wrote:
Hi, my name is Julia.
Please ! Is there anybody who can help, I have low iron for over 25 years and don't know what to do because the body doesn't absorb the iron. I take iron pills and eat foods rich in iron but very little is absorbed. What can be done to improve this condition? Thank you.

Mon, April 23, 2012 @ 5:46 PM

77. Renika wrote:
I was at school and on my way to class i started feeling weak & tired in my body. As i sat in my next class preparing to write i was shaking while writing and i went to see my school nurse. I mentioned to her i had low iron & that my cycle was on, she checked my blood pressure it was normal but i still believe that i'm anemic. What do i do?

Thu, April 26, 2012 @ 5:42 AM

78. Emily wrote:

I have hypothyroidism, and low iron is a symptom and sometimes a cause of this. This site has been extremely helpful to me and my mom who suffers from the same thing. http://www.stopthethyroidmadness.com/ferritin/

Maybe some of you have hypothyroidism, or adrenal fatigue. I take 30mg of Natural Desiccated Thyroid Hormone every morning and it has changed my life. Read the symptoms on the site I mentioned to see if you have it. http://www.stopthethyroidmadness.com/long-and-pathetic/

Best of luck!

Thu, April 26, 2012 @ 9:56 AM

79. Gina Torres wrote:
I start my 1st iron infusion this thursday. Do I have anything to worry about? Symptoms? Can I return to work the next day?

Sat, April 28, 2012 @ 6:52 PM

80. candie wrote:
Hey everyone. I have been trying to do some research to see if I should consult a hematologist. I was having SEVERE symptoms: dizziness, fatigue, exhaustion, confusion, lack of ability to focus, lack of awarenss of times, bad memory, overall fuzzy vision ect. Had my levels done at the begging of this month.

Iron total 11 out of 40-175 mcg/dl
Transferrin saturation 3 out of 15-50%
Ferritin 3 out of 10-154 ng/ml

Hemoglobin 10.0 out of 11.7-15.5 g/dl
Vit D 25-oh total 4 out of 30-100 ng/ml
Vit B12 serum 232 out of 200-1100 PG/ml

My doc put me on 325mg of iron 3xday with vitamin c and prescription strength vitamin d once a week for 3 months.

She also ordered tests to see if I'm bleeding internally. After 3 weeks I do admit to feeling an improvement but I am starting to feel the exhaustion return.

I'm concerned as to whether I should see a hematologist and at what point a blood transfusion is needed.

I can not go back to how I was feeling and I'm worried that that is the direction I am heading.

Any advice would be appreciated.

Sun, April 29, 2012 @ 4:13 PM

81. Gary wrote:
I have been feeling tired fatigued dizzy weak etc. I discovered I had blood in my stool so had a colonoscopy done and found out that i had a bleeding polyp. Who knows how long it had been bleeding for. My iron levels were all within the normal range but at the very low end, with the exception of my FE which was mid range. My saturation was 15%. I just started iron supplements. I want to encourage everyone to get colon screened if not by a simple blood stool test or a colonoscopy if you are near 50.

Mon, April 30, 2012 @ 2:49 PM

82. Missy wrote:
I used to feel like the odd woman out, until I read all of your entries. I am GIAD (GastroIntestinal Absorbtion Disfunction)- meaning I don't absorb iron from any oral source (e.g. food, oral iron supplements). I also have consistent small intestinal bleeds. I strive to reduce loss of blood any way I can. I have had an ablation to slow menstral bleeding down and I am on prilosec (acid reducer and ulcer healer) meds for the rest of my life along with other intestinal health supplements to optimize healthy digestive tract. I had a hematologist that helped me after the original discovery and diagnosis, who has since retired. When my iron panel levels drop I get Iron IV for 6 weeks and I get back to feeling like a vibrant me. I have a high base line Hemaglobin 14.9. When my Sat rate gets in the teens and my ferritin gets in the low 30"s, I get all the symptoms of anemia (fatigue, palpations, temperature swings, short of breath, leg cramps and restlessness, dizziness). My new hematologist says- "your HGB is still normal range so you are fine. I can hardly sit at my desk and stay awake and I am fine? I am so frustrated. I have to wait until I bleed out and my levels drop to threatening levels in order for my insurance to pay for the Iron infusion. I am so frustrated with the ignorance in the medical field about iron levels. So we all have to wait until we pass out or bleed out to qualify for treatment. If any of you are GIAD, I would be most grateful to hear words of encouragement and Ideas of how to feel better with all the "standard of care" red tape.

Thu, May 3, 2012 @ 1:25 PM

83. Gina Torres wrote:
My Hemotologist told me my iron is in the single digits (what does this mean?) and I will be getting iron infusion weekly for 4-6 weks. I felt like something was wrong with me because I am always tired I look forward to taking naps. I am hoping this is one of the symptoms because I am tired of being tired. Can someone please tell me what to expect after the infusion and is being extremely tired part of the symptoms? My story I had Gastric Bypass and recently had it reversed. Gina

Fri, May 4, 2012 @ 8:01 AM

84. Naomi wrote:
I really just wanted to say I am so glad I found this site. Though my ferritin and hb levels remain low and my symptoms continue, to know I am not alone in suffering with this is a real comfort.
I have been anemic for nearly 2 years and had a lot of misdiagnosis along the way, I have been treated with blood transfusions as I also have a blood disorder but am about to have my first iron infusion and I am really hoping it helps. I have had to be persistent with my doctors and they have acted only because of research I have done a lot of the time!
I suffer with a lot of the symptoms listed above, particularly fatigue and dizziness but it was only when my hair started breaking off (something people could physically see) that I started to get listened too.
Here's hoping that this next treatment works, if not I will keep pushing and won't give up! Good luck to you all. X

Sat, May 5, 2012 @ 5:52 PM

85. t.w. wrote:
Hi. Ive had rls for years and finally saw a sleep specialist who said my ferretin was 12 and said that alone could cause rls. The thing I'm concerned about is he gave me iron supplements 3 times a day but as I gradually increase my dose to that amount a day, it gives me increasing joint and muscle pain. The pain dissipates and then starts up after I take another dose. Does anyone know why it's causing me pain? It otherwise seems to help with my rls and fatigue and strangely enough has helped my depression......

If anyone has any input about the joint and muscle pain after taking iron supplementation please let me know. Thank you.

Sun, May 6, 2012 @ 1:49 PM

86. Emma Mayers, Dallas wrote:
i have a doctor’s appointment in two days. i wonder what’ll happen.

my hgb level is extremely low, even lower than it was the last time i had a blood analysis. i know the doctor’ll want to put me on iron pills but they make me constipated so she can take them herself if she really wants to. i’m not about to feel like shit for the next few years (and i will have to take them for at least a few years because my brother has the same problem and he’s been taking them for at least a year now - he, however, does not have any problems with constipation, which i did when i tried to take them).

also, i’m pretty sure putting me on both iron pills as well as something with a laxative effect (be it actual laxatives or something with the effect) will fuck me up even more. iron pills are already harmful for the liver (ha, the irony).

maybe i’m just way too picky. i don’t eat liver, i don’t eat beetroot, i eat too little red meat as i would like to not eat it at all, i.do.not.like.taking.pills. i would eat spinach if my parents would buy it.

and even though she probably will not say a thing about this because doctors seem to be blind when it comes to illnesses that have started due to mental problems, then if she does ask me if there’s any other reason behind my deficiency (other than genes, as i was already born with low hgb), i fucking hope she won’t tell my mother (who, i think, has a doctor’s appointment right after me - not sure why, though). she can’t, right? i’m an adult, no matter how much i’d like to deny that.

Mon, May 7, 2012 @ 5:18 PM

87. Donna wrote:
Ferritin is 7.5
Hemocrit 35.4
Platelets 354

Does that make any sense at all?

Tue, May 8, 2012 @ 5:10 PM

88. Missy wrote:
Donna- your HGB is probably within a normal range too right now, but with ferritin that low you are becoming fast iron deficient. Think of HGB HCT and Platelets as the Roof. The Frame and support beams of your blood level house are the Iron, Ferritan, Saturation rate, TIBC. As your iron warehouses empty (for whatever reason that is) your Sat, Iron, Ferritan numbers will drop and your TIBC will go up. Then your roof numbers will start to drop. (HGB, HCT, Platelet count, Red Blood cell size). That is why you can feel like crap, but still have "normal range" roof numbers.

Fri, May 11, 2012 @ 7:31 AM

89. Missy wrote:
Naomi, I, like you, felt really alone until I read all of these comments. I have also done a lot of research and have found that I have to push to get doctors to understand that "Normal Range" - is statistical. We, the small percentage out here are outside the statistical range. We get "grouped" or misdiagnosed. My FAVORITE in the the beginning was an old heart doctor that was looking at my good heart tests after I started having lots of palpitations due to anemia. He said to me that Women in their forties often have heart flopping because of stress in their heads, and that if I could just stop "creating" worries in my head then my heart would stop flopping. I sat there in disbelief....was this 1960? Needless to say, I stated politely but firmly that he needed to either retire or get back into med school and I left. Later I found out from a REAL doctor that anemia causes your heart to flop around in your chest like a fish out of water. How hard was that??? We all just have to keep pushing our doctors to step out of their normal comfort zones of "Standard" and make them look at the whole picture. We all know our numbers and bodies and symptoms better than anyone else. Also remember that doctors are not gods. They are human. They have bad days and good days like the rest of us. Don't put them on a pedestal and don't agree with everything without asking questions and doing your own due diligence. In the end, it is your energy and your life that is sacrificed and you cannot share yourself with your family if you don't have the energy to keep your body running right.

Fri, May 11, 2012 @ 7:55 AM

90. Gary wrote:
I had low iron serum (53 mcg, range 45-160) and low saturation % (15, range 11-70). Had a bleeding polyp that was removed a few weeks ago. Red blood cells low at 4.12 range 4.15-5.75. Ive had the dizziness weakness (esp in my legs), tinlging in my hands and feet, vision issues, especially at night. Ive also had some wierd muscle/bone pain in arms and hips. Has anyone else had wierd pains with anemia? Thanks!

Mon, May 14, 2012 @ 10:14 AM

91. Gary wrote:
adding to above post, my ferritin was normal at 152ng (range 22-322), but I read somehwere that ferritin is not a good level to look at for anemia. I also have a reverse T3 problem that could explain the normal ferritin. Tx

Mon, May 14, 2012 @ 10:17 AM

92. Gary wrote:
Also, has anyone ahd any gastro issues with low iron anemia? I had a bad gallbladder removed 6 months ago. Tx

Mon, May 14, 2012 @ 10:37 AM

93. Beth wrote:
Just curious on what people who understand these results would say....my recent test results were: IronBinding Capacity: 558 (250-450 ug/dL normal; Iron, Total 26 L (35-155 ug/dL normal); Transferrin Saturation 5L (15-55% normal); Unbound IBC 532 (150-375 ug/dL normal) and Ferritin, Serum 5L (13-150 ng/mL normal). So it appears there is iron in my body but not being absorbed??? What do I do and what kind of doctor could help me?

Mon, May 14, 2012 @ 11:32 AM

94. Gary wrote:
In my opinion you need iron supplement and to figure out why your iron is low. I would go to your GP or a hematologist asap. Those are some low numbers.

Mon, May 14, 2012 @ 12:36 PM

95. Kathy D wrote:
Hi all,
I've read the majority of the comments, and i sound like so many of you.
Frustration has overcome my body, which is most likely causing me to be very anxious. As many of you, I've been in and out of many doctors offices seeking resolution. I too have gone from digestive problems to low iron saturation. Most recently diagnosed with a rare condition, Erythromelalgia (EM) Which is condtion where the feet burn, and become very red, gets worse in the heat. I do not think that this is the main source of my condition, this may be secondary. My face is very pale in color, my tongue is red, and hurts, fatigued the majority of the time. My last blood tests, determined that my iron saturation was on the low side. I've asked to be referred to a hematologist, but doctors will not refer me. I'm seeing a acupuncturist at this time, and that'sgoing well. She looked at my tongue and said that my vitimins are not being absorbed as needed, and I was most likely in iron. I'm taking additional supplements that are natural. I will keep in touch and let you know the outcome....hope to feel better soon, Kathy ps. in addtion I'm looking into D-Ribose.

Sat, May 19, 2012 @ 1:16 PM

96. Kathy D wrote:
most likely low in iron (correction in above comment)

Sat, May 19, 2012 @ 1:18 PM

97. Gina Torres wrote:
So far I have had 2 iron infusions. I do not feel any different. So I am not sure if it is working. Maybe the 1st couple of days I feel ok, but I feel I am still tired.

Sun, May 20, 2012 @ 11:39 AM

98. hopethishelps wrote:
Just wanted to get an idea if any of you are able to work?

Most of us are women.....with family, house, pets to take care of, and need to work..

Are you able to work? If so how has it affected your ability to work?

Wed, May 23, 2012 @ 12:22 PM

99. cindy wrote:
I recently wanted to donate blood, but i was told tha my blood leve is fery low that i cant donate. so i have been adviced to take Iron supplement tablest, how is it going to increae my blood level??

Fri, May 25, 2012 @ 4:58 AM

100. Gary wrote:
After a few weeks on iron my rcb, hgb and hct have come up:

rcb from 4.12 to 4.79
hgb from 12.8 to 14.2
hct from 40.3 to 46.6

Having my iron levels tested next week and am stopping iron supps today. I also started on Testosterone supplement and I think that can incerase these numbers.

Fri, May 25, 2012 @ 10:45 AM

101. Sick of doctors not helping wrote:
Hi everyone I have been having a ton of strange symptoms that my doctor had no answer for over a year now the worst part is that they seem to come and go so I can never get an answer. But the symptoms always have included shortness of breath bowel trouble fatigue sleeping trouble and waking up with jittery internal shakes. I Aldo had a period of for a bout a month I couldn't sleep because I had shooting pains in my legs below the calf. One doctor said lymes another said it's my thyroid another said menopause. I also have low body temperature and get times where I get waves of goose bumps and thx chills followed by lightheadnesz and sweating . Here is the blood test results iga serum 235 ferritin 27 rdw 247 platelets 247 is it iron deficiency ? I see my ferritin is very low. How could the doctors miss that?

Mon, May 28, 2012 @ 7:59 AM

102. Sick of doctors not helping wrote:
My other symptoms have also been feet hurting inthe morning some numbness in the right side of face and tingling numbness in feet and hands

Mon, May 28, 2012 @ 8:02 AM

103. danielle wrote:
I'm very concerned now about an iron deficiency that i was diagnosed with last october. My doctor reccomended I take iron suppliments but.. I ignored her because I eat mainly green leafy vegetables, red meat, lentils, whole grain cereals fortified with iron. I have always eaten a diet high in iron, until october of last year I have always had a high iron count and low vitamin d. Never took the prescribed suppliments for the low vitamin d either and I ended up getting over the deficiency anyways. I eat extremely healthy, i always have. Why all of a sudden did I become iron defficient? And despite my high iron AND vitamin c intake could I still have this defficiency? The onlynmedication i take regularly is adderall 20 mg, but I have been on this medication for nearly 4 years, and acetamenophen lately because I have been getting severe headaches and joint pains, and even more recently chest pains. I have also been unable to sleep through the night or even fall asleep some nights at all for a few months. This has been getting progressively worse and I have tried over the counter sleep aids such as dipenhydramine (carefull not to take this too close to my daily dose of adderall because i know it is a potentiator) but i stopped taking them because they did not help me sleep at all and increased the involuntary muscle.movements and tremmor that I have always had, sometimes causeing a facial tick or increased jerking mothions (i have always had a very noticable tremmor in my hands and arms, but now it is in my feet and i get regular muscle spasms an dtwitches, ive seen doctors about this but they referred me to a neurologist that I could not afford to go see, because they couldn't find anything obvious causing these things like parkinsons.) Lately i have also started noticing digestive issues and stomach cramping, and regular insomnia that is beyond what I cannhandle. 2-3 all nighters in a row is unacceptable, i can barely think and i feel horrible. I also occasionally get numb or tingly fingers and toes, like the sensation when you hit your funny bone.

Could all these things be connected? Does anyone have any idea what is going on with me? I feel like im losing my marbles. And I'm scared.

Fri, June 1, 2012 @ 6:41 PM

104. Carol wrote:
Four years. That is how long I have been seeing drs. hematologist and gastro. I have some internal bleeding but my hematologist does not believe it is main cause of my anemia. Sent to another hematologist for a second opinion and he seems to agree the problem is one of absorbtion. My hemoglobin has dropped to 8. Drs appear to be puzzled. Have had many procedures and a stack of lab reports and inch high. Anyone with similar?

Sun, June 3, 2012 @ 7:06 PM

105. Jenn wrote:
I remember always having slight anemia throughout my life, but I just was actually diagnosed with it after going to the doctor because I have been getting daily headaches, feeling lightheaded almost all the time, nausea.

My lab results say: iron 39 (standard 52-150), TIBC 512 (standard 240-400), % saturation 8 (standard 15-50).

My Vit. D levels were also found to be deficient.

Is this low enough to be causing these symptoms? I have heavy periods which I suspect to be the culprit. I've also had sooo many other mysterious symptoms over the last couple years. I had a weird virus two years ago that usually only people with HIV get (so some mysterious immune thing was going on). I've had a lump in the throat sensation for months, that's gotten a little better but my throat still feel weird (never found the cause), random lymph nodes swelling from time to time. Could these be caused by iron deficiency?

My doc called in Ferrous Sulfate, Vit. D,and Vit. C to the pharmacy for me to pick up tomorrow. Have to admit after reading about so many people having trouble with the ferrous sulfate I'm nervous as I tend to be really sensitive to almost everything I take.

Tue, June 5, 2012 @ 4:05 PM

106. Kiwi wrote:
Hey, you guys..

Well I have had an iron deficiency for awhile now, I have had 2 blood transfusions and ofcourse, afterwards I felt very healthy.. Now after some years I feel horrible, always having headaches, always weak && I feel very fragile.. I take iron pills, calcium pills, && stool softners.. Ill admit I haven't in awhile && when I do it just makes me more sick.. I'm 22 && I feel like I'm dying.. Haven't been to the hospital yet, for some odd reason I'm scared of what they might tell me... But I'm also sick of this pain && weight loss..

Sun, June 10, 2012 @ 12:15 PM

107. Keri wrote:
I have been feeling so unbelievealbly ill for such a long time that I went and saw my doctor.. I have heart palpatations, joint pain, and lots of other stuff. The tiredness is the worst! My doctor has given me some iron medication, but all I do is throw them up. Its very upsetting! I have 2 kids, and husband that doesn't really understand what I'm going through. Niether do any of the rest of my family. I don't know much about some of the tests that I read on here, but she did say my iron was like a 5 or whatever that means. She said basically there is no iron in my body. I tried to see if she would do the iron injections, but she said those could cause some bad risks, and she didn't want to do that. My question is this level low enough to get a blood transfusion, or Iv iron? I am at my wits END! I cry all the time, because I cannot do the things I used to could.. I can't take my kids anywhere for very long, and I have gained weight which is not like me. It's good to see that I'm not the only one suffering from this kind of thing. If anyone has any suggestions at all please let me know. My doctor gave me the tandem plus.. pills I can't take them.. I may find a new doctor! I so need some support!

Thu, June 14, 2012 @ 10:04 PM

108. Keya wrote:
I am 26 and currently pregnant with my second child. I have had problems with my iron level for years to the point sickle cell comes up with every doctor as being an understanding cause. However I have tested negative for sickle cell and even negative for carrying the trait. Last week I went in for my normal monthly appointment and was told by my ob/gyn that they are concerned that they can not get my blood levels up and would like to do an iron study by testing the ferritin level in my bone marrow. Has anyone ever had this done or know what exactly this means for me and my unborn child. I do appreciate any advice or even questions you think I should ask my doctor. I am also glad that symptoms I even had before any of my pregnancies were not just in my head and that others are going through the same.

Thanks in advance!!!!

Thu, June 21, 2012 @ 8:04 PM

109. Tricky wrote:
I have anemia. My hemoglobin level is 9.6. (it's been lower). The rest of the tests haven't come back yet but I feel worse than I ever have. Tired, lethargic, dizzy, pale etc. This time my kidney's feel sore and I have been urinating more often than usual, probably 3times more. It burns a little when I urinate and it's got a foul odor. Is this a symptom of low iron? This has never happened before. What could it be?

Tue, June 26, 2012 @ 11:46 AM

110. firstclassnurse wrote:
My daughter is in her 29th week of pregnancy and going today for her 1st iron transfusion. Quite concerned for her and her unborn child. Her Hgb is remaining low in spite of iron supplementation throughout pregnancy. She has been exhausted throughout the pregnancy, especially the last couple of months. I have not heard her mention her actual ferritin levels. I do know that she has received no dietary instructions to help raise her levels. I have learned more from this site than what her docs have relayed to her. Has anyone else experienced the need for iron transfusions in pregnancy. She also has an elevated PTT. They are now checking her for leukemia and a clotting factor deficiency. Other pregancy related symptoms include gross water-retention especially lower extremities and extreme nausea and vomiting. Any feedback appreciated. Thanks.

Fri, June 29, 2012 @ 11:31 AM

111. Jessica wrote:
I can SO relate to Keri above. I have struggled with being dizzy, memory loss, heart palpitations, anxiety (because of the former items) and utter fatigue and exhaustion. I have 2 kids and work full time and am really struggling to keep it all together.

I will be receiving my final IV treatment today. My doc says I am "not anemic but iron deficient". He says if we looked in my bone marrow, I would have zero stores of iron. My iron level was ok though, at 51 although I was not fasting and the lab results say that my level could be falsely elevated because of that. My Ferritin is 5.6 and TIBC is 561 with total sat of 9. Very low numbers. He also ran a hemocult test which was negative. He has not moved foward with any other tests to rule out other types of internal bleeding issues. I do have heavy periods which are controlled with birth control pills. Doc wants me to have the ablasion or IUD inserted which I am really resisting.

I have not noticed ANY difference in how I am feeling for the better. I have tolerated treatment fine with no tummy upset. However the negative symptoms are increasing, my racing heart, dizziness, headaches and body aches are nearly unbearable.

I understand how I can be diagnosed as depressed. I have had these symptoms for YEARS with no relief. I have been told that I will have to learn to live with feeling this way. It is hard to continue to hold life together when you feel like absolute crap every moment of every day. Today, I am contemplating how on earth I can keep working a full time job with how I feel. It is becoming hard to drive with the lack of concentration, dizziness and heart flutters. I am at my wits end and tearful all of the time.....have another call into my doc with the same complaints I always have, "symptoms are worse, what should I do..." I am only 41 and the thought of living out the rest of my days like this is very daunting. I would never harm myself....I promise - this just seems like a 'safe' place to vent where others will understand and relate. Thank you.....

Thu, July 5, 2012 @ 10:22 AM

112. Lookingforanswers wrote:
As I have been reading all the comments here I am somewhat relieved that there is a world out there that understands the way anemia and low iron affects the body. What my concern is currently is that I have been on this ride for approximately five years with an average level of 7. I share many of the symptoms listed by most of you and quite frankly am just exhausted physically and mentally from this. I have struggled to take the supplements and have been scheduled with the hematologist to discuss infusions, which I am a bit leary of. While it is comforting to know that others have had or are having similar experiences (although I wish no one had to go through the mystery of ID or anemia and all that it entails) I wonder what has been the best answer for some of those suffering with it? I know everyone is different and this is such a complex thing. I am just searching for anything at this point. Has anyone tried any herbal or supplements that worked better than ferrous sulfate? I too struggle with the inability to take the supplements due to belly upset.

Tue, July 17, 2012 @ 5:07 PM

113. Patti wrote:
I have suffered from anemia all my life as far back as the age of 6. I am now 44 and have been told I have gluten intolerant and have intrinsic factor. Will intrinsic factor go away? I have been gluten free for a year but still have troubles with iron and b12. I am giving myself b12 shots regularly. I need help with this. What kind of doctor should I see?

Wed, July 18, 2012 @ 4:51 PM

114. Brenna wrote:
I am new to this however am relieved to know there are other people out there experiencing what I am experiencing! About a year ago I changed my diet and began eating strictly vegetarian (trying to shed the last few pounds) and slowly I began to develop anxiety/panic attacks usually around "that time of the month" or after a long cardio workout. This June 2012 I suddenly felt like I was suffocating in a work meeting and had to run out; this began the series of panic attacks that I am still dealing with. I went to my Dr. and asked her to check my iron since I was veg to be sure I was getting enough; come to find out my Ferritin was a 16. I didn't really know what this meant until I began researching. My Dr. prescribed 325mg Ferrous Sulfate pills to take for 1 month to see if that resolved my anxiety however the very next day the Dr. sent me an email saying all other iron levels were normal so I prob. don't need the iron. Stupid me, I didn't start taking them and over the next month my anxiety has progressively gotten worse. It is now developing into agoraphobia and I can't leave my house, be alone or even drive in a car which makes follow up appointments a lot of fun. I started taking the prescribed iron 3 days ago and am impatiently waiting for it to "kick in"; I can't even go into the grocery story and only 3 weeks ago I was able to. The progression is scary and I'm crying all the time feeling scared that I will have to live like this forever. My Dr. wants me to take Prozac or something for the anxiety/depression SYMPTOMS but for me I want to treat the source of the problem not the symptom. I am a healthy 29yr old female who is very active with a high functioning personality so laying around the house all day for weeks on end scared of another panic attack has me feeling so defeated. Does anyone have a success story of their anxiety/panic going away after restoring their Ferritin levels or at least after taking iron supplements? All other blood work comes back absolutely perfect (thyroid, etc.).

Fri, August 3, 2012 @ 5:53 PM

115. Toni wrote:
my 10yr old son has had intermittent low iron without aneamia, has always complained of leg pain in both legs and frequent infections both viral and chest infections since he was small. Its not diet related deficiency. He had been diagnosed as athsmatic but now the Dr thinks not as his lung function is no different if he takes his inhalers ect or not. Does anyone have any ideas as to why he has iron deficiency or what it could possibly be?

Mon, August 6, 2012 @ 2:51 PM

116. Rinna wrote:
The dizziness has come back… sometimes it’s bad enough that I can barely keep my balance. I think it may be because my iron is low. Most absorbable iron comes from red meat. But because I don’t eat meat at all, I have to find other sources. Low b12 can cause it too. (b12 is often found in animal proteins)

I stopped taking my adult multivitamin perhaps out of laziness (and they’re a little costly… about ten bucks per container of 50 vitamins) and I think that’s the cause of the dizziness. When I was taking those vitamins for a long while, the dizziness stopped altogether.

So I better buy more and get back to taking them… I don’t like feeling off balance. I can barely move or drive when it happens. And some days are worse than others. D:

Sun, August 12, 2012 @ 3:10 PM

117. Kate wrote:
Just read through many of the messages- and wanted to say - PLEASE check your diets... after muddleing for nearly four years with IDA I realised that SO much of what I was eating- was hindering my iron absorbtion...high fibre- healthy greens and NUTS are all culprits due to their containg either Phytates-Oxalates-or Polyphenols....
Coffee- tea-walnuts-spinach-kale and beets...Dairy products...all hinder uptake!
Take iron- if you have gastric distress symptoms try IRON PROTEIN SUCCINYLATE. It is available in the US under the name Ferrets IPS - and has super bioavailablity and is very well tolerated- and tastes great- its a liquid. The actual iron in it is bound in casein- a milk protein- and so its absorbed in the intestine and NOT the stomach like ordinary iron products...
Take it with OJ and do the same when ever you eat iron rich...also have a little alcohol...a glass of something a day is shown to improve ferritin levels....
This is what I have learned so far on this journey to mend my blood...So...on that note...I wish you all healthy blood- reclaimed energy and God bless - Kate

Fri, August 17, 2012 @ 6:37 PM

118. Kate wrote:
oops and drink a tablespoon of ORGANIC UNSULPHURED BLACKSTRAP MOLASSES mixed in a glass of ice cold water every day as a tonic too! x

Fri, August 17, 2012 @ 6:39 PM

119. Charlette wrote:
I'm 35. Just had my 3rd child and 3rd c section in February 2012. I suffered with a subchorionic hemorrhage and lost a ton of blood at the beginning of the pregnancy and was told twice I was miscarrying. I had massive fatigue during my pregnancy and was told by each OBGYN in rotation that I was older now and the 3rd pregnancy was always the worst. One week before delivery, after the hospital did blood work, I was called by my OBGYN who said "oops, I'm sorry, but we missed in your labs that you're anemic. That's probably why you've been feeling so bad." Since then, I've not recovered. Every movement, thought, and focus throughout my days are forced, and I'm exhausted. I finally made an appointment with my primary care doctor, who did an anemia panel and discovered the following: 11.4 hemoglobin; 29 total iron, 3 ferritin, 7 saturation. She said I'm "mildly anemic" but my ferritin level was the worst she's ever seen. She referred me to a hematologist and stated that I'd probably need an infusion. Unfortunately, the hematologist won't consult with me until the 30th. I'm hanging on by a thread here, especially now that I know what's wrong with me. I don't know what to expect. This is all new to me. I'm so tired - work full-time, have 2 sons, a step son, and an infant. My family is trying to relate and be helpful but still doesn't understand my level of fatigue. Any advice, thoughts, ideas, please?

Sat, August 18, 2012 @ 10:44 AM

120. Della wrote:
I, am 48, female and I , too, have IDA with a ferritin of 9 and normal hgb and hct. You can have IDA with nml H&H becasue the H&H are nml b/c they fill up from the iron stores (ferritn). Once the stores are low you start seeing the H&H go down because they can no longer get it from the stores (ferritin). I have similar symptoms as many of you, tired, heavy legs when I do cardio, hepalpitions, lower leg bone pain, first one to go to bed, etc. We need to address the CAUSE of the deficiency - either we are 1) losing blood (heavy periods or gastrointestinal bleed usually the cause) and fix that. HAve your stool checked for blood with simple hemocult cards from Dr office to rule out a gastrointestinal bleed). It can be due to other reasons but thesee are the most common. OR 2) Not absorbing the iron from our diet or the supplement . I AGREE with Annette and Kate who mentioned DIET. LIbe Kate said - watch the combination foods that inhibit absorption of iron. ANd as Annette mentioned, gluten can cause leaky gut ( and malabsorption of all nutrients). On that note, I have found, and new studies show that gluten free foods that are popping up everywhere are NO better and can cause same problems. My answer is stay away from grains and sugars period (read WHEAT BELLY). I think many docs order the iron and infusions but never fix the problem causing it. Myself for one! I have been deficient for years and I think I finally see a light. I am taking Iron sulfate 325mcg three times a day and have had no grain (ok one bowl of oatmeal last week) and no added sugars - I cut my fruit back to 2 servings a day and eating lots of meat, vegetables and increased healthy fats big time. I am feeling better as far as joint pain - practically none - i cannot beleive the difference - but still tired when I climb stairs or try to run. I am hoping to see this improve with the iron supplements in a few weeks along with change in my diet. RBCs live about 120 days so it takes a couple three months to see a difference usually in iron supplementation. I know it is not this simple fix for everyone, we all are different and can have more than one thing going on at a time - thyroid, Vt D etc but I hope I may have put some things in perspective for someone. The first 2-3 days of no sugar or grains was hard but I ate lots of fat and that makes a big difference. If you stop the grains and sugars (carbs) you have to increase the fats, and eat normal amounts of protein. I have no more bloating, gas, stomach cramps or pain. I will post my next test results of ferritin probably.in Dec.

Sun, September 23, 2012 @ 8:34 AM

121. Hannah wrote:
Thank you to every one who has shared the symptoms of iron deficiency anemia. I have recently been diagnosed with this and have for a very long time (6+ years) experienced chronic fatique, breathlessness etc. Most recently I developed restless leg. However, the thing that took me off the the GP (primary health care physician) was pica (non-food).. until I read about the symptoms of iron deficiency I had no idea that the pica could be related. I have noticed that some of you have experienced craving for ice. Has anyone else experienced pica with non-food (e.g. chalk, dirt etc?). I have pica with chalk which is hideous. I have had an extremely strong drive to eat as much chalk as I can for as long as I can every day. It gets in the way of socialising, of being engaged with work and with family life - not to mention the havoc that it causes my digestive system. I am hoping the the ferrous fumarate (200mg/3x per day) that I have recently started will help to relieve this particular symptom.

Tue, October 2, 2012 @ 3:33 AM

122. Rae wrote:
I would like to tell anyone who is having a hard time with iron supplements to try Solgar's "Gentle Iron". I buy it at The Vitamin Shoppe. It was recommended to me by a physician (not even mine, one I happened to speak with one night at a function)...and I can't thank him enough. I can't tell you how many supplements I tried...and threw up every time and that included diarrhea...which left me hopeless. The doc said that this is the best absorbed iron out there for people with sensitive stomachs. He said to take it in the middle of my largest meal of the day (the 25mg), then after a week or two after I've adjusted, to take another one with my next largest meal of the day. He said to take it with orange juice since vitamin C increases the absorbancy. Also, molasses is supposed to be great too. For reasons why I have low iron - I think mine is because since my heart attack, I've been on an aspirin regimen. And even though I don't have massive bleeding, the use can cause small bleeds all over your body, in every organ, but the blood is just absorbed into tissue. Over time, this can add up. Plus, I take Nexium. Which inhibits iron absorption. If anyone here is taking Nexium or similar drug, be warned. I only take it when absolutely necessary. I know when my iron is low...sore tongue, itching all over, restless legs, dizzy, rapid heart rate at just walking, and breathlessness. I have had some chest pain, but I don't know if it's my heart or the low iron. I just wanted to share what I knew as I have found your posts informative as well. Good health to you all.

Mon, October 15, 2012 @ 5:46 PM

123. Char wrote:
Hello...I was just diagnosed as IDA last week and had my first of 4 Iron Infusions last Friday.

Here's my #'s and as you can see I am mildly anemic, but severely iron deficient. I have all the typical symptoms and have had them for years, going to Dr.'s and requesting test after test. They just treated each symptom and never the whole picture.

I am so great full to have found all of you...I was feeling so hopeless, crying all the time, and just feeling so alone.

My dr has referred me to a hematologist and scheduled a sigmoidoscopy (which I am postponing until after my iron infusions).

I have heat flashes, joint pain, abdominal issues, irregular bowel movements, high blood pressure, a resting heart rate of 92-102. I have no energy...just to shower wears me out! Ugh...For the last year or so, I used to tell my husband, "it takes all my energy just to get ready in the morning". I would be ready/dressed/hair/make-up...and then tell my husband and kids to go attend the functions without me, because I was so tired!

They diagnosed me as depressed...but now I am thinking...no wonder!

For the last 2 years my monthly cycle has been way heavier and irregular...so much so, that that they went in last July laparoscopically to look around and didn't find anything in the way of endometriosis.

Component Your result Standard range Units
Ferritin <5 22 - 291 ng/
Iron 17 50 - 212 ug/dL
Iron binding capacity, unsaturated 429 110 - 370 ug/dL
Total iron binding capacity 446 228 - 428 ug/dL
Transferrin % saturation 4 14 - 57 %
WBC COUNT 7.1 3.5 - 12.5 K/uL
Red blood cells count 4.77 3.60 - 5.10 M/uL
Hgb 10.4 11.0 - 15.0 g/dL
Hematocrit 32.5 34.0 - 46.0 %
MCV 68 80 - 100 fL
RDW, RBC 16.4 12.0 - 16.5 %
Platelets count 248 140 - 400 K/uL

I just can't wait to be my old self again! I have gained 50lbs in the last 8 years...and that just makes me so sick!! I want my old energy level back again!!

Any ideas or tips are greatly appreciated!

Tue, October 30, 2012 @ 12:48 AM

124. Char wrote:
Wanted to add, I am 39...mother of 2, wife, and work full time. My Dr has taken me off of work though through mid December...unless my iron and ferritin numbers increase sooner!

Tue, October 30, 2012 @ 12:53 AM

125. Olivia wrote:
It's now been 4 months since my last iron infusion--I had 3--and with each I became so sick, muscle aches, cramps, diarrhea,weight loss, etc. now 4 mths.later I'm stilling having the cramps, diarrhea, bone and muscle pain,and weight loss of 15 lbs. This has been an awful experience.

Sun, November 11, 2012 @ 2:15 PM

126. Sara wrote:
I'm sorry to hear about everyone’s stories about this deficiency. I suffered from Iron Anaemia and Iron Storage Anaemia (3 out of 4 stores where extremely low) for a long time (since 2004) and found that iron supplements from blueskyvitamin.com helped to bring my levels back to normal with the help of an additional copper intake (or by taking half a cup of sunflower seeds twice a day for a year which are full of copper). I was on the verge of a blood transfusion because of my low iron stores, once I started on these iron supplements and increased my copper intake my stores began to fill and I stopped having heart palpitations which weren’t fun. The iron supplements from blueskyvitamin.com are great, they always have them in stock and their customer service is fantastic. I’m just glad I can walk over a meter now, not get tired and not have to sit all the time. My last blood tests were done in 2010 which came back normal, and although they are normal I take one iron tablet each day (and still eating sunflower seeds) to maintain my levels. Now I am living a happier and more active life and I wish the best for you all. Good luck all of you, I know what you are going through.

Tue, November 13, 2012 @ 9:40 PM

127. CDM wrote:
Hello all:

I happened to stumble upon this website and what a God send!! I wanted to drop a line and a few questions about my own low iron due to heavy periods. I felt "at home" reading your posts and comments. Thank You, the feeling of others experiencing what I have been going through is in itself healing. I also felt like I needed to drop a line because in a way I felt like I was evesdropping.

For the last 2 years I knew something was wrong and did the typical blood tests and a referral to a cardiologist for heart like flutters, palpitations with an occasional irregular heart beat and a slight murmur; all of which I never had before. Prior to that chest pressure, intense fatigue, depression, which I have had low moods before, burning tongue, low concentration and occasional visual disturbances, ie zigzaggy lines at the perifery(sp?) of my vision in the AM. I thought was low sugar but tested fine.

Move to a new province in Canada, meet a new Dr tell her I'm feeling a bit down and anxious, can I have something for it? She asks to do some tests, back comes a low ferritin of 18. She calls me back tells me I'm low on iron but not anemic yet and need to take iron supplements. My question is through reading some posts, some of you have said you felt depressed, if so how long did it take to recover while taking supplements or infusions for the depression to lift? And did your Dr. or other medical professional list depression/anxiety as a symptom to low iron stores or ID anemia?

Three days on iron supplements and I could feel the fatigue beginning to lift. My appetite is improving and sleep is a bit better. I am on 100mgs of iron and tolerating well. Is this enough? Also, the heavy periods, through perimenopause is also being looked into. I am so mad that my previous Doc did not investigate low ferritin, which I'm sure has been there for awhile. Like many of you, you know you are not feeling well and 'different' all of a sudden with the same cluster of symptoms.

Thanks and looking forward to any discussion.

Sat, November 24, 2012 @ 8:53 PM

128. C.A. Bouthillier wrote:
Iron is NOT a nutrient, it is a poison. Iron replaces copper in the blood and tissue proteins and accumulates in multiple locations of the body, causing destruction and accelerating aging. Bio-available copper must be replenished to restore health and longevity – to repair the DNA damage.

I encourage you to read: http://www.themessageofhiskingdom.com/PoisoningOfMankindCopperDeficiency.htm

(Those who continue to uphold & defend the fraud are in defiance.)

C.A. Bouthillier

Tue, December 4, 2012 @ 7:41 AM

129. wrote:
You, sir, are insane.

Sun, December 9, 2012 @ 1:39 AM

130. GlenT wrote:
Is this comments list still working? I can't seem to add anything

Thu, December 27, 2012 @ 3:55 PM

131. GlenT wrote:
OK - my last comment went through. So there must have been something wrong with what I wanted to add.
It was a lot shorter than some of the other postings.
Could someone perhaps tell me what the limits are for posting iron deficiency postings here.
I can find anything wrong with what I'm trying to post - it's an important question about my iron blood test results.
The website seem to accept my posting with no error messages, but the comment does not appear.

Thu, December 27, 2012 @ 4:02 PM

132. CHICHI wrote:
@ Erin: Caution: Get your doctor to not only check for GI bleeding, but also get a colonoscopy(to check for colon cancer). Colon cancer is a common cause of low iron levels, and the sooner it is detected, the better the chance of catching it early and not dying from it.

I just finished my dietitian internship, and during my internship, I met a lady on the surgery ward who had just had part of her colon removed after it was discovered that she had colon cancer. This is her story: She had had a colonoscopy about 1 to 2 years ago, and was not due for another colonscopy for another 5 years post her last colonscopy. About a year or so after her colonsocopy, she was feeling tired and lab tests showed that she had low iron levels. So she was prescribed iron supplements. Three months later, she had the lab tests repeated, and her iron levels were still low. She asked for a colonscopy to rule out blood loss from colon cancer. He doctor said that it was necessary as she was not due for another one in four years. She got a medical consultation from a second doctor, and got a colonscopy. The colonscopy showed colon cancer in the early stages, so she got surgery to remove the cancer.

Colonscopies save lives. My parents never had colon cancer screening, and by the time the colon cancer was discovered, it was too late. Both by parents died of colon cancer. Don't let yourself be one of them. Advocate for your colon health.

Thu, January 3, 2013 @ 12:03 PM

133. Sfia wrote:
Is this comment thread still active?

Tue, January 29, 2013 @ 5:46 PM

134. Sfia wrote:
I ask because I am writing a book on my experiences as a result of iron-deficiency anemia which I was unable to correct for 14 years. It negatively impacted my life to such an extent (heart palpitations, SVT, restless leg syndrome, depression, floating numb spots, anxiety, memory loss, cognitive impairment, problems with comprehension and communication, mood swings, etc ...) that it affected my studies, work, and relationships. It impeded my PhD work and my career. Since finally finding a doctor who was able to correctly connect the dots, my life has improved so dramatically that I can hardly believe I'm the same person. Every single symptom is gone. My ferritin and hemoglobin levels are normal for the first time since 1998. Mind you, I have been seeking help from doctors, and in recent years from hematologists, since 2002 -- all to no avail. It was 2006 before I even knew I had low ferritin (10 at the time). It was only because I went to a research facility that I was finally able to understand what has been happening and treat it (with a heavy-dose iron infusion). I believe that thousands of people suffer from iron-deficiency anemia and are never properly diagnosed. Thus, the book. I am interested in talking with people who went through similar experiences. I would like to make the solutions to this problem more accessible to people who are suffering. Let me know if you are interested in sharing your story.

Tue, January 29, 2013 @ 5:57 PM

135. Denise wrote:
I have low iron but HIGH B-12 levels. Has anyone else experienced this, and should I be concerned?

P.S. I also have an autoimmune disease called scleroderma :(

Thu, January 31, 2013 @ 9:15 AM

136. Pamela Solanke wrote:
I went to see my Dermatologist, as I was itchig & my Blood Test indicated as below, could I have Anemia?.
My IRON is 2.2 umol/L.
T.I.B.C 106 is umol/L.
FERRITIN 4 is ug/L.
HAEMOGLOBIN is 6.5 g/dL.
HCT is 0.223.
RED CELL COUNT is 3.56 x10^12/L.
MCV is 62.6 fL.
MCH is 18.3 pg.
MCHC is 29.1 g/dL.
RDW 21.4
PLATELET COUNT is 553 x10^9/L.
WHITE CELL COUNT NeutrophiIs is 36.1% 1.74 x10^9/L.
ESR is 24 mm/hr
Active B12 is 145.7 pmol/L
Folate (Serum) is 13.3 ug/L

Thanks & KR Pamela

Sun, February 3, 2013 @ 6:35 PM

137. Greg wrote:
A few months ago I began to experience aching in my arms, as well I have had extreme fatigue for many more months. I went to my doctor, did blood work, and was told my iron was high at 470. We repeated this test a month later and it had gone up to 580. I will see a specialist in 3 months for blood work, and am having an untr asound in week for my abdomen. So - anyone have symptoms like this? The worry of course is concer.

Thu, March 7, 2013 @ 8:23 AM

138. Todd wrote:
Very good article by Neurologist Dr. Gominak on Vitamin D, B12 and iron deficiency
http://drgominak.com/vitamin-d. Points out how low vitamin d can cause low b12 and iron

Fri, March 15, 2013 @ 10:11 AM

139. Roxana wrote:
I went to the emergency room because I could not breath the doctor draw some blood and I was very low 8 hemoglobin, but he prescribe two tables a day before food of iron. Every time I take it I start feeling like I can not breath again. I wonder why? I'm doing juicing and molassa and it works better than the pilds. I feel like I get really sick with the iron is 65 mg each one. What do you thinK?

Wed, March 20, 2013 @ 12:41 AM

140. Cheryl wrote:
So glad i found this site, explains a lot!

I started feeling unwell about 7yrs ago after a vertigo attack, was found later when felt no better to have inner ear damage. Over the past 7 years I have been going to my Dr with various unexplained symptoms:

Lack of energy
Fuzzy head
Jittery feeling in body
Sore tongue
Shortness of breath
Heart palpatations
Calf pain/joint pain
Bloating/stomach pain

Over the years all have been explained away with - its your vertigo, you are having panic attacks, you are pre-menopausal

I have had so many dizzy spells when standing up that if not for my family I think I would have been severely depressed!

I am now 52 and have always suffered from heavy periods which have been more erratic over the last couple of years. I felt fobbed off by the Dr's and felt they thought I was a hypochondriac!

6 months ago I saw a woman Dr who ordered a full blood test which showed I was slightly aneamic and low in vit D. Was put on vit D tablets and had appointment for a colonoscopy.

Colonoscopy showed nothing wrong there but blood test showed my platelets slightly high.
Dr was not concerned so feeling increasingly unwell I continued to live my half life (no energy, constantly tired and lethargic)

My dizzines was getting worse to the point that I had a couple of times when I knew if I didn't lay down I would pass out, my energy was a joke, if I had a good day and did too much, the next day I would struggle to have the energy to get out of bed.

12 days ago my family took me out for my birthday dinner, after eating, laughing having a great time I stood up and passed out, was out and looked like death for the longest 15 sec's of my families lives. Like the movies there was a Dr at the restaurant who came to help and called the ambulance. Took me nearly 2hrs to have the energy to get up off the floor. Was checked out, blood pressure fine, sugars fine, not a stroke or heart attack although I felt I could pass out again! Was sent home with instructions to go back to my Dr.

Had been for another blood test before this instance and when seeing my Dr was told that my serum Iron was at 4, given iron tablets 200mg x 2 a day

Have had an ecg done, waiting for a 24hr ecg monitor and appointment for heart x-ray, told not to do much til results are in!

My heart is constantly racing, everything is an effort, constant headache and lightheadedness,
Think the Dr is finally taking me seriously if a bit too slowly for my liking.

I am so glad I found this site because although I am not yet sorted I no longer feel alone in this, my family are very supportive but for something you cannot physically see my lack of get up n go has also been frustrating for them when I used to be the first out the door.

I wonder sometimes if Dr's really listen to us or if they ever connect the dots. I had not realized Iron deficiency could cause all these symptoms.

Just to give you all a bit more background info, we are a family with auto-immune problems, 3 with Thyroid all overactive in the beggining, now underactive except mine which over the years goes slightly over, then under then normal, 1 with chrones desease, 2 insulin diabetics and 2 who have iron injections every 3 months. The 2 who have iron injections have never passed out, just felt tired so I never made a connection.

All your stories have been informative and helpful and I hope in the near future everyone of us gets sorted and feel like our old selves. Take care and don't overdo it x

Sun, April 14, 2013 @ 9:34 AM

141. H wrote:
Pre-natal vitamins contain a large amount of vitamins, including iron. I have begun taking these and feel loads better. Try that, maybe? Obviously I'm not going to have a baby any time soon, but they do have essential vitamins for women, especially since we lose iron during periods.

Thu, April 18, 2013 @ 9:52 PM

142. Tab wrote:
My anemia began with taking Advil (Ibuprofen) every single day for years. Upwards of 800 mg to 1600 mg per day. I started to experience stomach pain and burning, so I stopped it after they found I had developed intestinal bleeding from the advil. The damage was done. A blood panel revealed that my hemoglobin was at a 7.8. I wasn't feeling any symptoms except for tiredness. The doctor sent me home with iron pills and told me to eat high iron foods. I couldn't tolerate the iron, so I simply stopped taking it. I pretty much ignored the tiredness for a few months, when suddenly my hair started to shed badly. I developed RLS (Restless Leg Syndrome), muscle cramps, insomnia, and could hear my pulse in my ears. Still, I didn't do much because I knew the doctor would more than likely direct me back to iron tablets. Then, my periods got extremely heavy and long. I started to have 2 week periods. I believe that this is what did me in.

Then one night, my heart started pounding very hard. No matter what I did, even sitting still, and I had episodes of feeling confused. I couldn't form a sentence and I felt like I was about to pass out. My husband ran me to the ER where I found out that my hemoglobin was sitting at a 5.8. I was very very sick, and the heart pounding came on very fast.

I was given four units of blood, and a 24 hour stay in the hospital. This only brought me up to an 8. The heart pounding and pulsing in my ears immediately stopped after 2 units of blood. A two week period I was at the tail end of, ended 2 days after the transfusion.

I'm going to have to really keep on top of things now, and take better care of myself. That 24 hour stay in the hospital was not fun, and my hair is still shedding.

It is amazing how awful I felt prior to the transfusion. I had so many different symptoms, even depression, anger, and sadness. After the transfusion, my mood has been extremely UP and I feel happier. Like my world is clearer and the dark curtain was lifted.

Sat, May 11, 2013 @ 4:15 AM

143. Dianne wrote:
I just had three blood transfusions. Prior to that I had an iron infusion for anemia with a ferritin level of 7. I've always had a low iron problem,but has become unbearable as now I'm too tired and weak to go anywhere, short of breath and have had hair loss. I've gotten very depressed and grouchy. I'm scheduled this Tuesday for a capsule endoscopy, where I swallow a capsule that contains a camera to visualize the small bowel. I do not have any colon so I don't need a colonoscopy. I'm wondering if this test is normal if I should consider seeing a hematologist. I'm really frustrated after everything and still not feeling well. I also have been taking iron capsules and Vitamin D. Any ideas would be greatly appreciated.

Mon, May 20, 2013 @ 12:30 AM

144. Ljudmila wrote:
Polli, I`m not a doc. but I ´ve done lots of research on the subject .Your problem is identical to mine. In short, CHECK YOUR THYROID. Not only TSH but T4 and T3 as well.

Tue, May 28, 2013 @ 3:19 PM

145. Kathy wrote:
Hi I have had low ferritin and low hemoglobin of 5. I have had many blood transfusions and many iron transfusions but I keep going up and down. Got my hemoglobin to 10 and now it's falling back down to 8. Dr will do test this week to see ferritin level. Has this happened to other? Also after iron transfusion when I pee there is iron in bowl. Drs and nurses say they have never heard of this. Has it happened to others?

Sun, June 23, 2013 @ 3:59 PM

146. Kathy wrote:
Hello again I just got back from hospital hemoglobin dropped to 6.5 so I got 2 pints of blood. Had iron therapy 2 days before dr said she doesn't know whats going on. Doing bone marrow test on Friday. What happens if I just can't absorb iron? Has this happened to anyone else and can they help me? I've had 10 pints of blood in the last 6 months and 20 rounds of iron therapy in 6 months....Is this what others do? I feel so lost and frustrated and not sure what to do. I've seen many drs and they don't seem to know what to do. Please help if you can Thank you

Wed, June 26, 2013 @ 1:25 PM

147. stephanie barnard wrote:
does anyone know if low iron can cause a tia?

Wed, July 10, 2013 @ 3:20 PM

148. Jill wrote:
My Ferritin was 2 and hemoglobin was 8.5. I didn't realize how severe that was or how many symptoms it was causing. I am now taking iron and am no longer anemic. My iron stores are continuing to improve. The following symptoms have disappeared: Extremely heavy periods with significant clotting, shortened intervals between periods, fatigue, shortness of breath with any type of exercise, restless legs at night, feeling of pounding heart, extreme coldness, joint pain and painful lumps in knuckle joints, significant monthly depression and irritation. My doctor thought I was in perimenopause since I am in my late 40's, but with iron these symptoms are gone. After doing some reading, I found that heavy periods can be caused by low iron and anemia which in turn worsen the iron stores and anemia. It is a vicious cycle.

Fri, July 26, 2013 @ 9:22 PM

149. Kelly wrote:
Erin..Iam kind of borderline(not now) anemia. Iron and B12 deficient. Presently iron 96 which is good. have been taking iron supplements (presciption behind the counter Targets) Ferrous Sulfate 325 mg twice a day, I'm supposed to take 3 times a day. I PULVERIZE THE TABLETS WITH A FORK AND THEN MIX WITH ORGANIC CRANBERRY JUICE, ORANGE JUICE WAS TOO ACIDIC FOR ME. this has helped tremendously. Also, for b12 I wear patches I get from a company in Arizona 1-800-604-6766--------No Longer B deficient.

Sun, August 11, 2013 @ 6:24 AM

150. Liz wrote:
Jill -

I am interested in your comment "After doing some reading, I found that heavy periods can be caused by low iron and anemia which in turn worsen the iron stores and anemia. It is a vicious cycle." Can you share the link(s) to where you've read that?

I have iron deficiency and have just started iron loading orally with ferrous biglycinate (ferrous sulfate makes me vomit). My doctor would like me to consider birth control pills to control my mennorhagia (extremely heavy periods) but I am reluctant due to a family history of breast cancer and other cancers. I am interested to hear that the anemia may worsen the symptoms and perhaps if I could get the anemia under control maybe I could avoid the hormones?

Mon, August 19, 2013 @ 11:18 AM

151. John H. wrote:
Just a tip for anyone anyone who has problems getting their iron levels up.

1. Get you copper status checked. Look up "Copper related anemia"

2. Check that you have not got a bacterial infection like H.Pylori as bacteria loves iron. You have a good indication if you feel sick after taking iron (and antibiotics). This cause B12 issues as well.

Most Doctors appear to be totally unaware of the above which accounts for a high number of "difficult to manage" anemia problems.


Fri, August 30, 2013 @ 2:11 PM

152. Melissa wrote:
I have been anemic for as long as I can remember. When i was 7, I was diagnosed with ITP. Since my remission from that autoimmune disease, I have been anemic. Recently I have had an ablation to end my menstrual cycles in hopes to improve my levels as oral iron supplements did not help. My blood levels today are low. My hemoglobin is 9 and my ferritin level is 2. I am scheduled to start iron infusions in the next week. I would like to know the underlying cause for why my body is not absorbing iron. Anyone have any suggestions?!!?

Wed, October 2, 2013 @ 12:51 PM

153. Mike wrote:
Those of you with low Haemoglobin and ferritin, do you also have low red blood cell counts ? Have you been tested for Autoimmune Haemolytic Anaemia (AIHA) (Haemolysis) ?

Fri, October 25, 2013 @ 7:42 AM

154. Marsha Hickman wrote:
I am a 52 yr old post menapausel who has dealth with anemia for about 40 years now, I dont abosrg iron, I take 650 mg or gel cap iron a day, and still deal with the fatigue. I am aslo diabetic, have fms, arithit, have thyroid issues, blood pr\essure, have about 18 different dxes, I have been to a hematologits, as well as a gastroenterlogist, but am still dealing with the issues have had numerous blood test, colonoscopy as well as gasstric endoscopy, so any ideas of what ti do or try next., I ave high cholestorl so am supposed to limit meat comsumption. I need HELP I hate to feel this way, the fatigue, is the pits.

Mon, November 11, 2013 @ 9:54 PM

155. Nurse Penny wrote:
People, if your doctor finds you are quite deficient in something like iron, vitamin D, or B-12, and there is no clear and correctable underlying problem that explains the low levels--like celiac disease, Inflammatory Bowel Disease, Pernicious Anemia, or malabsorption problems due to intestinal surgery...etc....then take note:

If you became deficient without an obvious cause, then if you are given supplements by any route (oral, IV, etc.) only until you're back to normal, then you will quickly or slowly slide RIGHT BACK DOWN to where you were before the prescription supplements started. DUH! It amazes me how many providers over look this.

I wonder if they think filling up an empty bank account will keep that money coming forever, without any more deposits, and with mysterious sums leaking out of it, long term.

No, to be kind, they're overly busy and are just not thinking! (They need a good Nurse Practitioner or PA to help them, as doctors are overloaded now, especially primary providers.)

So, if you are put on supplements due3 to a medically-significant deficiency, and then re-tested to see if you are normal again, DO NOT leave the office until you ask and get an answer to, "So, now that we've found my problem, I won't need any supplements to stay normal?" or, "So, if the problem isn't discovered yet or solved, how much of an ongoing daily dose should I be taking to keep my levels healthy? When should I be re-tested to make sure that dose IS keeping me healthy, since until then it's an educated guesstimate dose?"

Wishing you all wellness,
Longtime RN who specializes in teaching people with chronic illness to stay well...and fellow patient with some wacky inherited medical diagnoses. (So I get it.)

P.S. Nurse Practitioners specialize in listening to and taking into account what you know about your own body, and teaching you what (like this) you need to know to be an empowered patient. With NPs, you're the most important member of your health care team. :-) hat's what sets them apart from doctors and Physician Assistants, though to be fair some of them are pretty decent at it from simply caring and teaching themselves to listen. With nurses and NPs, it's a HUGE part of their training and philosophy.

Wed, November 20, 2013 @ 2:43 PM

156. goldlight wrote:
Could you just be low in Iodine? Check out Iodoral and change the night into day. Dr Brownstein can help

Mon, December 9, 2013 @ 10:47 PM

157. Julie wrote:
For those of you who have anemia or are very tired, I recommend seeing a hematologist.

Sat, January 11, 2014 @ 2:22 AM

158. mclenhart wrote:
I have been trying to raise my iron levels since september. Went to the dr. for abdominal pain, and discovered my hemoglobin was really low. As of Jan. 15th, my iron sat. is 2%, ferritin is 6, and my hemoglobin is at is highest in months, at 10.

They just can't seem to figure out what is going on....so frustrated.

Sun, January 19, 2014 @ 4:44 PM

159. Lucy white wrote:
My hb was 7.4 i had a fifteen min iron infusion today and it was hell they had to get a medic to put needle in the top of my arm. because nurse went through a vein. it hurt like hell . to top it off i gotta go again next Monday for the same shit.

Mon, January 20, 2014 @ 6:55 AM

160. mclenhart wrote:
I had a two hour iron infusion the other day. My husband keeps hoping for instant results...constantly asking if I am feeling better. I am NOT feeling any better yet. However, I am hopeful, that in a week or so, I might get some relief and some energy.

On a side note, has anyone ever experienced the horrible, unexplainable abdominal pain that I have been dealing with? I just keep thinking that the anemia and abdominal pain HAVE to be related to each other.

Fri, January 24, 2014 @ 5:05 PM

161. Melissa wrote:

Are you seeing a hematologist? I have a lot of symptoms as well and at first glance my levels were normal but the extra testing everything was super low and I was called the next day and set up for a series of iron infusions.

Wed, January 29, 2014 @ 11:03 AM

162. Denise Bukofski wrote:
My renal doctor put me on an iron supplement 27 mg fergon. my iron was 59 (50-212) iron binding capacity 393 (262-474) % saturation 15 low ( (20-55) ferritin 35.2 (11.0-307.0). My regular doctor said I wasn't anemic but if I didn't take the iron I would become anemic. I also have hypothyroidism and have been taking prevacid which I think could be part of the problem because it reduces the stomach acid. I have been taking it for a month and started to get depressed and edgy and yesterday had stomach pain. my question is could it be from the iron or do I need to take the iron longer

Mon, February 10, 2014 @ 10:59 PM

163. Denise Bukofski wrote:
no comment at this time just some feedback

Mon, February 10, 2014 @ 11:01 PM

164. Sidra wrote:
Hi, I am 26 years old. in my school days almost 8 years back I had a big issue with my both legs. I was sleeping one night and then when i wake up in the morning my legs were not moving. I went to doctors and they have done all checkup and mri but they didn't found anything. Now I cant use stairs or run like I used to do before. what should I do now because i'm really stressed out.

Sat, February 15, 2014 @ 8:27 AM

165. J Elle wrote:
Hi Sidra, have you had your vit B12 levels checked? If they are low it can cause many problems with numbness.

I am wondering if anyone else has had problems with an internal tremble, it's as though it's just behind my nose, I notice it more at night going to sleep and waking in the morning, I am currently taking ferrous sulphate twice a day as has very low iron & anaemia, if these trembling feelings are down to my low iron (which I believe they are as no other symptoms of anything else wrong, & doctor dismissed it as all related) when will it go away? I've been taking the tablets for 9 weeks now, I know they say 3 months to correct anaemia and iron levels in the blood, then another three months to build stores, but I really want this trembly feeling to go because if where I feel it it's hard to fall asleep, any help would be greatly appreciated, thank you for reading xxxx

Tue, February 18, 2014 @ 3:21 PM

166. Arthur Van Tassell wrote:
I had Lung Cancer surgery in late DEC. Was in the OR 6 hours (lung removal). I'm not sure but I guess because of blood loss and loss of appitite from the surgery and severe constipation after my iron count went down to a very low point. I was given the first of what is going to be several "Iron Transfusions" this past Tues. I am now going through a strong appetite loss, and a general blah feeling.

Question: Could this be from the infusion and if so how long before it passes?

Thu, March 6, 2014 @ 7:21 AM

167. Denise Bukofski wrote:
my iron is 51 (50-212) ibc 353 (262-474) saturation 14 (20-55) tsh 1.01 (.44-4.21) free t4 .95 (.60-1.40) b12 323 (180-914) I also take prevacid. I have been taking fergon once a day past week having diarrhea and loose stools every few days then feel really tired. I had 2 colds in the past 2 months. I wonder if the problem is because of the iron problem or the iron I am taking.

Sun, March 9, 2014 @ 10:14 PM

168. Rachelle wrote:
Hi, Ive been dealing w IDA for 19 years & 2 months now! Yes, @ this point, as my symptoms, # of dr specialists, diagnosises, scripts & many other things continue to add on top of eachother (that most, when researched, can be put together under a diff (although more severe bcuz auto immune) category and treated differently where I may actually benefit and see improvement..UGH..I AM COUNTING.. I was diagnosed with anemia at 15, my mom noticed my breathing during a nap sounded like I was running a marathon..@ the urgent care my HGB came back @5.3 3x..they thought their machine was broke cuz I walked in n seemed ok..sent me to Hosp..Dr's @ hosp had IV in me within 5 min,within 15 they were tellin me I needed blood transfusions, (learned later that within 20 they had told my parents based on my vitals if they didnt get oxy-rich blood in me I was within minutes of a heart attack!)..I had complained for months about tired,dizzy,headaches,was SO pale I prolly glowed in the dark, chewed so much ice..THAT'S all I ate..etc..did nothing except school & softball (& that is why Dr's said I was able to walk in on own..)..so mom shrugged off everything to the point of that serious. (I'm a mom now..point in prev..we have own struggles..pls dont disregard what our kids say..we dont know it all..my mom not the cause of this but she still upset with self that she almost lost me..and that I'm still dealing with it..I dont blame her can't take her guilt away thou).
Ive had 8 transfusions.. 4 that time 4 in 08. Over 1000mg ferrous sulfate/day had 2 rounds of infusion therapy..2010 then 2013..best my HGB has ever been is mid 11's right after blood or IV iron..pills r useless for most part..stay bout 8.
Been diag. Narcolepsy, Fibromyalgia, Migraines, Hypothyroid, Generalized Anxiety , Social Anxiety, Depression, Restless leg, GERD, there's more I can't think of my other meds..more frustrating is that 99% of dr visits I'm told what I dont have and I do A LOT of research on my own..and ask questions and ask for explanations and for blood tests and even hematologist has straight ignored and kept right on his own path..won't even look at swollen legs..tells me see a dermatologist.. Rheumatologist combats me..n I only a year where I live..n there r almost 0 specialists in a 30mile area..so I'm like stuck..gonna slip the cracks..
Not being treated but diag; Hyperflexive Joints, Disc Degeneration, Tendonitis in Shoulder, Menscal tear and fluid on knee

Sat, March 22, 2014 @ 6:31 AM

169. Kitten71 wrote:
I have low iron but am not anaemic. I asked my doctor why my body couldn't store iron anymore and she just said 'it sometimes happens'!! I get heart palpitations, restless legs, shortness of breath and extreme tiredness but she said none of that was related to my iron deficiency! I beg to differ! She tested me for coeliac disease but that came back negative and she diagnosed me as having IBS instead. She thought I might be gluten intolerant and advised me to cut it out and eat a probiotic yoghurt each day to reset my stomach! I'm worried about my iron deficiency as I can't cope with feeling rubbish every few months, then trotting off back to the doctors to be told my symptoms couldn't possibly be anything to do with it but here's a course of iron tablets anyway. I feel fobbed off and let down by my doctor. I think I need a second opinion to put my mind at rest!

Sun, March 23, 2014 @ 3:56 AM

170. Wendy Pierce wrote:
I am 37 and I've been getting iron infusions for almost 4 years now, I've had every test done thinkable, bone marrow biopsy, Colonoscopy and EGD, biopsy of my intestine to check for Chrones disease, cilliac disease, checked w a urologist to see if I'm bleeding through urine, Nothing has come up , nothing , I'm probably on my 30th infusion and nobody knows the cause, my hemotologist just says after child bearing years sometimes they become anemic. I'm actually having a 5 hr infusion tomorrow, it doesn't matter what I eat or if I take iron , it doesn't help, my tips of my fingers and my nose, toes are always cold, I'm in constant of having constipation which I know I now take something for bc I do get the infusions, constant headaches, I'm beyond fatigue like never wanna get out of bed feeling or want to sleep for days feeling. My heart is always racing, my hemoglobin is at a 11 and my ferritin just came back at 9. So any suggestions or anyone have this? Because I don't know anyone that gets infusions for iron at my age.

Tue, April 8, 2014 @ 7:31 PM

171. LHawk wrote:
I have Hashimoto's hypothyroidism, slight Von Willebrand's, endometriosis, recently I've had high stomach acid which my doctor prescribed something for & now I also have low ferritin... Many of the symptoms of low iron are the same for hypothyroidism, so it's hard to tell what the cause of my symptoms truly are. My doctor recently prescribed Intregra, & I feel like it makes my heart race & makes me wake up at night & not be able to sleep... Has anyone had experience with this??


Sun, April 27, 2014 @ 7:15 PM

172. Dex wrote:
I can't even begin to read all of these comments, but from the ones I did, half or more of you have Lyme disease. I have it, and iron deficiency. So many of you have the symptoms. Look it up. It's no joke!

Tue, April 29, 2014 @ 10:32 PM

173. Kris wrote:
I went to the doctor because my hair has been receding quite a bit. I'm a 44 year old female and the doctor did a complete CBC and Basic Metabolic Panel, all my results are normal except my Ferritin is a 6. I'm very surprised because I eat a lot of meat and really do not have any of the symptoms that I have heard most have with much higher levels. I had a colonoscopy done two years ago and everything was fine. Any idea, why my ferritin is so low? Thanks!

Sat, May 3, 2014 @ 12:19 PM

174. kfcreative wrote:
I've been struggling the past couple of months for a diagnoses. Doctors see my slightly low red blood count and hemoglobin and say "oh, its normal for a menstruating women", never taking into account my symptoms of fatigue, drowsiness, body aches, headaches, general feeling of "being hit by a bus". Its frustrating and it sounds as if most of you on here have the same experience with doctors! Its astonishing that in this day and age, with advances in medicine, doctors do not look at nutrition and deficiencies from the get go. Instead, it seems most of you, like me, have been subjected to every crazy test to find major disease and when nothing shows up, it must be depression. Its very disheartening! Come on Docs!
Anyhow, a few things I've learned concerning iron balance: Every period depletes your body of iron, especially heavy ones! If you don't eat red meat often, you are headed for anemia! I have had heavy periods my whole life. And they have caught up to me. My serum ferritin is 15 (range 15-150) and this test was done before my last "heavy" period. I also have a hemmorhagic cyst on my ovary currently, which is also "stealing" from my stores. Even if you have light periods, you are losing blood and if you are already iron deficient it will only get worse. I've started on birth control and do not use the placebo week of pills, because 1. it isn't an actual period anyway, its withdrawal bleeding. 2. There is no need to have a period while on BC, the placebo pills are only there to mimic your regular cycle. 3. The last thing you need when iron deficient is to lose blood in anyway. I urge anyone who is anemic to check with their gyn. Lots of gyn issues could be causing blood loss, even if not apparent (like a cyst) and you may not even know it!
I have just started supplementing and have seen a lot of improvement as of yet. I've cut down on dairy. I grew up drinking waaayyy too much milk all the way into my 20s, so who knows its that consumption has anything to do with where I am today! I was sick several times this year with stomach viruses. I was also on antibiotics once. The research on diet that I have done has led me to believe that my flora is probably very imbalanced. I have started on priobiotics (florastor and general probiotics as they have different strains of bacteria) When I first started iron supplementation, I was seriously bloated and cramping and had to stop for a few weeks. This go round a few weeks later, I'm much better I think due to having the probiotics to help my system out. So I definitely recommend them when you are on supplements. Chances are your gut is out of balance, which could be a contributing factor to why you are not absorbing iron from food and becoming deficient in the first place.
I am not feeling much better yet, and am still battling docs to help me feel better and not just interpret test results and tell me nothing is wrong. Just thought I'd share my attempts at restoring my health. I'm hoping my efforts pay off soon and I hope all of you get your iron back in balance too!

Sat, May 3, 2014 @ 12:34 PM

175. kfcreative wrote:
Kris, do you have heavy periods? If so, it could be the reason. I would check with your gyn. Something could be going in causing you to lose blood, even if you are not seeing it.

Sat, May 3, 2014 @ 12:40 PM

176. kfcreative wrote:
LHawk, stomach acid reducers can reduce your ability to absorb iron. Dex, Its funny because for a while I was determined I had lymes. I still think its a possibility, but I only had one band show up positive on the western blot (41) so docs dismissed it, because you need two to have it. Its hard to know if I should fight about it with doctors.

Sat, May 3, 2014 @ 12:44 PM

177. kfcreative wrote:
I'm 33 with no children and am struggling with iron deficiency although not as severe as yours. I'm changing my diet to try and help. Not sure what you have tried, but I definitely recommend helping your gut to absorb nutrients better by taking probiotics. they have several kinds. Its important to take many different strains including S. Boulardi, which is found in florastor and also in Kombucha. Maybe try that for a good while to reset your gut.
I've always been a sugar and dairy eater and have cut both out in an attempt to heal my gut and help me to absorb iron better.
I also notice many folks on here take acid reducers. If you do, you might as well forget the iron supplements because they inhibit absorption. And many of you are on other medications as well. Research your meds or ask your pharmacist if they inhibit iron absorption. Some heart meds do. No point in taking iron if the pill you take with it cancels it out!

Sat, May 3, 2014 @ 1:00 PM

178. kfcreative wrote:
Also, hair loss can be purely hormonal and unrelated to the low iron. My mother lost a lot of her hair in her 40s due to hormonal changes. Lucky her... I would check with a gyn or endocrinologist. GPs are useless.

Sat, May 3, 2014 @ 1:04 PM

179. Kris wrote:
Thank you KFCreative so much, I just got diagnosed yesterday and of course it was the nurse who called with the results. She just said all my blood work came back fine except the ferritin (6) and I'm anemic. She told me to take Vitron C twice a day and they will recheck it in 3 months. I just wanted to know why I have it? I really feel pretty decent especially if a 6 is so low.

I'm on a low carb/high fat diet. I eat a LOT of cheese and am wondering if that might be inhibiting my iron intake. Is it only milk that steals the iron or can cheese as well. I don't drink milk at all but do eat quite a bit of heavy cream. Not sure of the difference.

Its so hard to know what is considered a heavy period, I can tell you its gotten heavier the last couple of years which I attributed to getting older and hormones changing. It comes every 25 days and usually has lots of clots. Could that be considered heavy? Only have one ovary due to a cyst looking suspicious, turned out to be just a hemorrhagic cyst and they removed the ovary. I'm quite thin and can usually tell when I am ovulating as I can feel the cyst so I don't think I am dealing with that now.

Is low iron anemia usually caused by periods?

Sat, May 3, 2014 @ 1:37 PM

180. kfcreative wrote:
I think its calcium that inhibits iron absorption, so any dairy can be a problem. Vitamin C helps absorption though. I think if you take the iron at one end of the day and keep dairy at the other end that may help. So cream and cheese are just as bad as milk.
My periods are heavy, and apparently not normal. I always thought I was just robust and healthy having heavy periods. No one told me it can be detrimental. Only now, after researching online, do I find this out. On my heaviest days, I go through a pad + tampon in about 3-4hrs. I only have two days of this, but its enough. I have several clots too. Apparently you only need to lose a teaspoon of blood during your period to put a dent in your stores, so I think every women could have issues.
Its funny bc my levels aren't as low as yours but I am having so many issues. But maybe not related to anemia then. I also have an ovarian cyst, possibly hemmorhagic, and am so scared about it. Not to get off topic, but I am seeing an oncologist about it. Its painful, especially at night while sleeping and its frightening!. I just started on birth control and wish gyn told me years ago that its a good preventative measure. Thanks doc!
I had a weird bout of hair loss when I was 22 and even though its not a serious disease, its not fun to deal with. I lost about 75% of it, evenly but still thin as can be. Apparently viruses can cause hair loss for a period, which was what happened to me.

Sun, May 4, 2014 @ 12:01 AM

181. RC wrote:
Just wanted to say how much this blog is helping me!

I had my first ferritin test a few months ago and it came back at 3!
Dr recommended 200-400mg of iron through a prescription pill A DAY, which I took for the last 2 months, repeated blood work but now ferritin is at 2!
I didn't pay too much attention to how I was taking the iron pills but I made sure to almost always have it with vitamin C.

Primary care Dr sent me to GI Dr and I have an upper endoscopy, colonocopy, and some 'blow test' coming up to try to find out where the iron issue is coming from.

I too had super strong periods all of my life and just now went back on the birth control pill to take care of that.

But I feel great most of the time with lots of energy, no pain, no headache, and my B-12 level is perfect, making me very confused and concerned!

Drs haven't talked about iron supplementation anymore but if my ferritin is 2, shouldn't they be a bit worried? They don't seem to!

Thoughts appreciated!

Mon, May 12, 2014 @ 3:24 PM

182. Jennifer wrote:
Hi All,

I am new on here, and have been reading all the comments, most of which have been very helpful. I am looking for any advice that someone can give me, because it seems as I have reached a dead end with my doctors (who I think are all good in their respective fields).

I have been struggling with iron deficiency anemia since last August, but really began pursuing the cause and seeing a hematologist in November. I am 36 years old, never had children, and my monthly bleeding is under good control, since I am on birth control pills. Pretty healthy, up until this iron saga. I have lost well over 30 pounds without trying in the last 6 month, which worries me a little. Most of the time I either feel nauseous or have really bad heartburn, even though I take medication for it (both started at the same time as anemia issue). Here is the workup and treatments that have been done so far, as well the blood work numbers where I am deficient or high:

I was sent to see a gastroenterologist, who performed an endoscopy, a colonoscopy, and to be extra thorough a capsule endoscopy and a breath test for bacterial overgrowth. Those tests did not show anything abnormal.

The hematologist and my primary care doctor did a lot of blood work to rule out things that might cause anemia, such as auto-immune, thyroid disorders, etc. Over the last half a year I gave more blood for blood work than I did in my lifetime. lol

The hematologist attempted a course of 6 Venofer treatments to replace the iron. Unfortunately I had severe allergic reactions to Venofer (which as I understand are very atypical), which were getting progressively worse. Even though they pre-treatied me with Decadron, and were giving me 100ml each time, they had to stop after the 4th time, since bronchial spasms were part of the reaction. The hematologist said that I am 1 in 220,000 to have that type of a reaction. I guess I am special. lol
We are now trying Ferlicit (different formulation of iron) in baby steps, gradually increasing the dose. I am up to half a regular dose now, but the process is very slow.

Blood work:
Although my Hemoglobin and Hematocrit were originally significantly lower than the normal range, they now trend just slightly below. My biggest problem is the Ferritin, when we began with Venofer treatment it was less than 1, and we are back to the same place again where the Ferritin is less than 1. My white blood cell count is normal, and red blood cell is elevated. The size of the red blood cells is off as well. My B12 levels are low and I am getting B12 shots pretty regularly now.

I have all the symptoms that anemia comes with, as well as some neuro symptoms, due to a lack of B12. I am also starting to develop neuropathy in my hands and feet, which worries me a little (I hope its from the lack of B12). Since the Venofer that I received did not sustain my blood levels significant amount of time, I feel that the same will happen with Ferlicit. Hopefully it will boost my energy for a little while to look into this issue further. I have a feeling that my Hematologist, my GI doctor and my GYN feel that the cause of the problem is not in their court. Can anyone please recommend anything else that I should look into or might want to try? And should I be worried when my Ferritin drops bellow 1?

Sorry for the long, drawn out comment, but any input will be greatly appreciated. :)

Wed, May 28, 2014 @ 10:02 PM

183. thuli wrote:
I am 31 years old, I'm always feeling tired during the day always want to sleep and my eyes are always red, I have headaches and don't take pain killers during the day coz they make me feel very tired. sometimes my hand are pale my blood pressure is always low and the doctors have advised me that I eat foods with lots of salt. I've recently started to take Ferrous Sulphate, green in colour but they make me even more tired and at about 10h00 in the morning I'm very tired. I feel like a zombie everyday of my life, I've had to change jobs but still there's no difference. Vitamin tables like Vitamin B, centrum etc they all make me worse. this is affecting my life and my job. I do exercise of jog and drink water but I'm always tired. during the day its worse than the evenings. i do not know what to do. i have been to 4 doctors who told me my tiredness and sleep is caused by stress, no blood test has been done. I'm now drinking ginseng Chinese tea b Dr Lin which does help a little but the problem is still there. I loose concentration sometimes I feel I'm stupid cause I cant even think straight or solve a problem. Please help. Thank you.

Thu, May 29, 2014 @ 1:51 AM

184. Thulisile Gqiba wrote:
I am 31 years old, I'm always feeling tired during the day always want to sleep and my eyes are always red, I have headaches and don't take pain killers during the day coz they make me feel very tired. sometimes my hand are pale my blood pressure is always low and the doctors have advised me that I eat foods with lots of salt and even when I have a sore it takes time to heal. I've recently started to take Ferrous Sulphate, green in colour but they make me even more tired and at about 10h00 in the morning I'm very tired. I feel like a zombie everyday of my life, I've had to change jobs but still there's no difference. Vitamin tables like Vitamin B, centrum etc they all make me worse. this is affecting my life and my job. I do exercise of jog and drink water but I'm always tired. during the day its worse than the evenings. i do not know what to do. i have been to 4 doctors who told me my tiredness and sleep is caused by stress, no blood test has been done. I'm now drinking ginseng Chinese tea b Dr Lin which does help a little but the problem is still there. I loose concentration sometimes I feel I'm stupid cause I cant even think straight or solve a problem. Please help. Thank you.

Thu, May 29, 2014 @ 1:53 AM

185. Rose wrote:
Danielle it sounds like you might have mold proplem in your a partment.

Mon, June 2, 2014 @ 11:53 AM

186. RC wrote:

I am so sorry to hear all that you've been through and still no help! I am going through myself some of the tests that you had and so far nothing abnormal but still no answer why my ferritin is 2 (3 months ago my ferritin was 3, i was given prescription-strength iron pills, 200mg, but after 2 months of pills my ferritin dropped to 2!).

I am now back on birth-control pills to slow down the monthly blood loss, new iron pills (iron sulfate, 65mg, 1-2 times a day), very vigilante about the 2 hours before and after my 'iron food/supplements', have an appointment with a hematologist, and will have an appt with a new GYN.

Has your GYN done an internal (trans-vaginal) ultrasound to look for cysts, fibrosis, or other bleeding 'things'? That's my next step with the new GYN.

Fortunately my energy level is great thanks to a healthy diet and incredible supplements that I take, all high in B12. In fact, my B12 is slightly higher than the recommended range and my Dr said that's why I feel so great (I ran a marathon with a ferritin of 3!)

Good luck to all and I wish and pray that we all feel better soon!

Tue, June 3, 2014 @ 1:18 PM

187. Teresa wrote:
Hello all

I just got dx with low ferritin with Normal CBC. I also found out that I have a bunch of food allergies. I was told I have leaky gut which can lead to numerous auto immune rises. I've had Graves disease and hyperparathyroidism. I'm going to be tested for celiac disease, as this can cause autoimmunity and lowered iron because of poor nutrient absorption. If you are having lots of health issues, get checked for celiac. Its wildly under diagnosed

Thu, June 26, 2014 @ 7:18 PM

188. Sophie wrote:
I had heart palpitations, shortness of breath and wheezing this was triggered from hidden black mold poisoning the theory is that myctoxins fungus eats the iron in your body so I had to go on fungus free diet at the same time. I took iron supplement for 1 1/2 years. I still had low iron. I began iron IV twice a week the first time was fine the second time I had feet, hand and back cramps they gave me benedrayl which I hate I felt like a zombie then suddenly I felt so hot like I was going to pass out and then I was soaked in sweat and then my body cooled off thank God my husband with me. I had a migraine for three days, and felt sick to my stomach off and on. The nurse said that iron can cause temperature to rise and slight flu like feeling . The third time I had an IV I has some back pain, shoulder pain and foot pain but much less I noticed my head felt odd, like my brain was on some time of medication sedative or migraine feeling without the pain I so hate that feeling. So my theory is that if I keep at it my body will get used to the iron IV and no longer respond I was told the molecules are large and it takes more for the body to absorb them. The MD suggested the best efficacy and absorption is Floradix on an empty stomach daily ,My reflexologist suggested dark green smoothie with organic fresh greens and pineapple it already predigested so it is easy on the stomach . So I have daily green smoothies. My neighbor suggested raisins, and black strap molasses.

Fri, June 27, 2014 @ 8:44 PM

189. Faith wrote:
I have an ND and a MD . The ND told me to get on super clean diet, I'm a vegetarian, There were things I needed to do so I stopped all (carbs) sugar, dairy, soy, wheat, grains and night shade veges, all peanuts, all nuts too. It was not that difficult I made my own yogurt , I was on SCD diet. I also went on parasite cleanse a long gentle one and I took tons of probiotics, I also read about all the reasons you can have anemia, I also had all my vitamin levels checked I was low in D, A and B-12 so I started on good quality researched supplement and B-12 shots. I also started to go to sleep at 9:00 this helped tremendously. I started to looked at everything I used, every thing around me my pillows, I threw away memory foam I read it can cause serious health issues I bought all organic blanket, pillows sheets all organic product and all organic food, I threw out all the chemical cleaner and bougtht all non-toxic one, My hair dye is now natural dye. I started to steam every day. I started getting weekly colonics to detox my body and make it more efficient. There are number of reasons the body goes haywire you need a good MD to figure out the cause. Mine was because I was having heavy periods every 22 days but I think there is more to it than just that. Most MD seem to busy to me to really help just my experience

Fri, June 27, 2014 @ 9:00 PM

190. Suzanne wrote:
So grateful for this site. I've had low iron issues for the past 3 years. My hemotologist, after extensive tests, finds no internal bleed. iron stores are like a carnival ride up and down. I would love to find out the cause since this started with the onset of fifths disease. My hemotologist denied for months that adults get fifths. I was tested and as it turned out the test was positive. Ive done some research and find that in some adults who get fifths (very contagious virus I'm told) the virus can bring on severe onset anemia. Does anyone know about this as regards anemia? Other than infusions and iron pills to maintain levels, I'm told there is no other option. And these don't always work well. I've too had many symptoms as the folks on this site . . . My worst are the heart palpatations. My best wishes for all of you to find some answers and relief.

Thu, July 3, 2014 @ 1:23 PM

191. Tee wrote:
I have been living with iron deficiency since birth. When I was born (prematurely) I needed a blood transfusion. The doctors ask me how am I still alive after all of this time. I tell them I don't know. One doctor said my body most of adapted. I never been diagnosed until 2009. It seems as through everything is spiraling out of control. Currently, I just went back to get an infusion and they are trying a different iron. Before, I was taking venefor which seemed to help but after some time it was like my body became use to it and I always felt the same after the fact. Now they got me on ferritin and by the third day I am feeling worse than when I went in... I can't taste food, I feel as though I am going to puke, diarrhea, cramps over my ovaries and back pain. A little history before this point. My primary doctor and 09 took blood samples because of my symptoms when she recieved the results she ended up sending me directly to a specialist. When my results came back my hemoglobin was 3.0 or 3.2 with 0% iron in my body and my platelets where over 1 million. I told the doctor that I did not want a blood transfusion and so that was the day I received my first iron infusion. Later that next morning I was back at the emergency room because of the side effects. I went back a few more times and than I moved. I was okay for only a 6 month period. After that I started to go down hill real fast after I couldn't take it anymore (bad headaches, restless legs, etc.) The headaches became to much for me to bare so I went to the hospital. I waited 4 hours. Finally when seen they ask me whats wrong so I told them. The doctor ask how do I know whats going on with me (dumb question right) anyway I told them to draw some blood and then we can talk. While I was waiting doctors started coming by my room asking questions like how am I still breathing... when the doctor came back with the results the immediately requested that I be taken to a room and that I was not leaving until all my levels were up. They had to request information from previous hospital. Docs from all over the hospital was coming to my room. I did not see what the big deal was. I was in the hospital for about 3 days getting blood transfusions and iron infusions. My levels went up. I left the hospital feeling better. Things did not stay that way a week later I went back and did labs all my stats dropped again. So in the end my body does not absorb iron and I have to continue this cycle for the rest of my life. Which brings me to now the venefor I was okay with no side effects. However, the ferritin is making me sick. What to do I am not sure... How can I keep trying to go through life in the manner? Its making me highly depressed and I feel like giving up. The people around me don't seem to understand my pain most times they just think I'm lazy... I just finished my bachelors back in march which took some serious dedication and most days I have to force myself to do everything except think... in need of major relief. Oh they are in the process of doing all those test previous people talked about... no results other than this issue I am pretty healthy but I did tell them that my family have issues of having cyst on ovaries and thyroid issues but they are not listening to that and oh... i've gained so much weight I feel as though I can't get rid of this any suggestions... again thanks for reading.... blessings to all.

Sat, July 12, 2014 @ 9:49 AM

192. Tab wrote:
Itching all over! Sometimes, constantly! The doctor says that it can happen with anemia, especially iron deficient. This is a new symptom for me, so they brought me back in for more blood work and scans to make sure I don't have anything more serious going on and everything came back as normal.

Wed, July 16, 2014 @ 12:42 AM

193. wrote:
Come through to http://lyfeboyd.wix.com/motivational-living its a new blog for people who are anemic and need motivational support, share stories, provide suggestions.

Sun, July 27, 2014 @ 1:31 PM

194. Marie wrote:
Hi, I am a 54 year old woman and struggle to understand my blood test results, can anyone tell me what my iron count should be? Apparently it is 81, is this normal?

Wed, July 30, 2014 @ 1:19 PM

195. EVANS wrote:
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Fri, August 8, 2014 @ 10:34 PM

196. jess wrote:
Dear Pat, I'm sorry to see this 3 years too late. If you still read this, or for anyone else dealing with iron and overall health issues that include depression, chronic fatigue, organ failures of heart and liver especially, hair loss, weak auto-immune system; please research hemochromatosis. A disorder of iron storage. It can be treated if discovered soon enough. It can also be fatal. It is also possible to be anemic while storing high levels of iron in your body/organs. I hope this info can help someone.

Sat, August 30, 2014 @ 11:45 AM

197. Dawn wrote:
My son aged 8 was given a blood test that showed his ferritin level was 12. He has been given a liquid iron supplement. I was told to keep an eye on his stools as he could be come constipated / stool go black, neither has happened (been in iron 5 weeks) could his body not be absorbing the supplement ? It is not due to what he eats that has caused this as he is a healthy eater, so what could be causing this ? And shouldn't my doctor be doing further tests ? If so what ? Please advise thank you

Sat, September 6, 2014 @ 5:04 PM

198. kristin wrote:
Get tested for Celiac!!!!!!! It effects iron absorption. As well as absorption of other vitamins. Also causes fatigue, neurological symptoms. I have been suffering with chronic anemia and was finally diagnosed and now have hope I can have real recovery once intestine heal. Ferritin 3.

Mon, September 8, 2014 @ 10:32 AM

199. Rachel wrote:
Low Iron can cause hypothyroid symptoms. If taking Iron makes you feel warmer ..wouldn't that mean your thyroid is finally getting what it needs?

Mon, September 8, 2014 @ 5:47 PM

200. Rachel wrote:
Thulisile Gqiba-Have you tried Maca Root by Oregon Wild Harvest? It helped me with most of your symptoms.

Mon, September 8, 2014 @ 5:51 PM

201. Rachel wrote:
Patti -B12 needs intrinsic factor to stay in your body. That doctor probably said you lack intrinsic factor . This article will explain it more..http://www.livestrong.com/article/466841-vitamin-b12-and-intrinsic-factor/ Yes this ties in with gluten intolerence.

Mon, September 8, 2014 @ 6:58 PM

202. Rita Shaw wrote:
Have your doctor vheck you for hplori onfection in the gut. The bacteria feed off iron in our case ferritin. Not affecting other iron levels. It took years before a doctor checked mine with a simple blow in a tube text, now that ive been treated my ferritin is slowly going up and my hair is growing in. Please I would of never thought I could have this infection but it really is quite common. Hplori infection test. Especially if you have nausea, gas, constipation or diarear, my brother was also postitive and he always had bad diarear along with vomiting on a daily basis, also elevated livet enzymes, any questions please email me, good luck, Rita

Tue, September 16, 2014 @ 11:58 AM

203. Rita Shaw wrote:
Have your doctor check you for hplori Infection in the gut. The bacteria feed off iron in our case ferritin. Not affecting other iron levels. It took years before a doctor checked mine with a simple blow in a tube test, now that ive been treated my ferritin is slowly going up and my hair is growing in. Please I would of never thought I could have this infection but it really is quite common. Hplori infection test. Especially if you have nausea, gas, constipation or diarear, my brother was also postitive and he always had bad diarear along with vomiting on a daily basis, also elevated livet enzymes, any questions please email me, good luck, Rita

Tue, September 16, 2014 @ 12:03 PM

204. Jackie wrote:
I'm kind of confused about this whole thing and was wondering if someone could help me out
I'm a teenager and about 2 months ago my neurologist ran 20 different blood tests and finally found that my ferritin level was a 4.2.

Ever since i was little doctors tried to figure out why my arms/sometimes legs shake so much when i move, and i've always been weak
and a good portion of the time sick.

If anyone has any thoughts, tips, comments, opinions,,
i don't care just trying to figure out what this all is

Wed, September 17, 2014 @ 11:57 AM

205. Melissa wrote:

Does anyone know anything about binding capacity in the blood cell? My doctor mentioned as an example, that if I held up 5 fingers (binding capacitors) only one would bind with the iron. This really bothers me. I keep getting iron infusions but nothing seems to work.

Like, Jackie, I too began with a low ferritin level of 5 this year, around February, and now am up to 11, October. I had my last infusion in March and April, and have since made my own efforts at daily iron intake. On the last reading level of 11, my doctor noticed that the binding capacity was off. So, my question is why and what does this mean?

Aside from that, I am glad the level is up, but still need to get further along in recovery and a solution to this problem.

Thanks for your time.

Wed, October 8, 2014 @ 12:37 AM

206. Teresa wrote:
Hello-I am a little bit confused and would like to have your advice. I have celiac and needed IV iron infusion due to my low iron, HCT, HGB. Originally before IV iron, my reading level showed: RDW-15. Ferritin - 6. HCT: 33.3RBC-4.15. HGB 11.3 After IV iron infusion, two weeks later, my RDW increased to 17. HGB-12.0. HCT-36. My ferritin soared to 173. My RBC decreased to 4.06. Is there something missing in this? Should I be concerned of my RBC and Ferritin?

Thu, October 23, 2014 @ 2:01 PM

207. Donna wrote:
Hi. I have just given birth to my first child and I've been anemic for a while. I'm 4 weeks postpartum and I'm still bleeding down there. It hasn't stopped. I've been extremely tired and freezing when I don't do anything but take care of my baby and sleep. I don't eat too much, and I'm constantly sleepy but I'm just now starting to not be able to sleep. I suffer from depression, and I notice it keeps coming back, but I don't know if it's from being freezing, tired, and my joints aching all the time. I'm on medicaid and have no job so before I talk to my doctor about it, I want to figure out what's wrong with me and what I can do. Can anyone help me?

Tue, December 9, 2014 @ 11:34 PM

208. mama07 wrote:
Hi i have a questionin 2012 i had to have half my stomach removed due to a big bleeding ulcer when they did the surgery they took out the iron factor to absorb iron orally food or vitamins so i have to,get blood and iron transfusions but lately thy only last a week n i dont knw y but my husband n i r trying to get preg cld that do it or do u think smtg else cld b going onplz help with ur thoughts

Wed, December 10, 2014 @ 12:56 PM

209. Gisela H. Lepore wrote:
In the fall of 2010 I had blood tests done and as a result the doctor called me into his office to explain that I was a very sick lady and literally walked me to the hospital, no nightgown, no toothbrush, nothing. My hemoglobin was 7 and I got 2 blood infusions. I had to stay over night they brought my hemoglobin up to 10. I was given oral iron to take but nothing was done to find out why my numbers were so low.
Over several months the oral iron seemed to keep my Hemoglobin within the normal range but then it dropped again. I had moved and was now seeing a different physician. She ordered a colonoscopy and endoscopy which came up normal and showed nothing that would relate to my loss of iron. I do have a hiatal hernia which I knew about for years. This Doctor wanted me to have surgery because it could be the problem. I refused to have major surgery simply to rule something out. That did not go over well to say the least.
I continued with the oral iron for a few months but became all of a sudden very weak. Shortness of breath and fatigue were so bad that I could literally not work. During that time I saw a Hematologist, a Cardiologist and a Pulmonologist, they all did all kinds of testing. Then I was scheduled for several iron infusions to which I ended up with am extreme reaction. So the Hematologist canceled them and put me back on the oral iron. I still knew nothing about my condition.
In 2013 I moved to Oregon. Same situation, different Doctors. An other colonoscopy
and endoscopy plus some camera test for the small bowels. My Ferritin level had dropped to 9 and we started again with iron infusions ordered by a Hematologist although my primary physician does not feel they are necessary. This year alone I have received 15 iron infusions. I am 66 years old and when I asked if I would have to keep on taking these iron infusion I was told possibly.
I have researched all I can. Is there anybody out there who has had a simular situation.
Any advice is greatly appreciated.

Wed, December 10, 2014 @ 5:47 PM

210. DebL wrote:
Hello, I found out I was anemic several months ago. I have had 4 iron infusions and it did help my iron levels go up to the normal range. After a couple of months my iron levels started to drop again. I now have iron level of 47, ferritin of 49 and iron sat of 13%. This past couple of weeks - the anemia symptoms are worsening. Terrible ice cravings and fatigue. I just got my numbers back today and was sure that all my iron levels would be really low - instead they are holding on to about the same as a couple of months ago. I just don't understand why I am feeling so much worse just recently.

Thu, December 18, 2014 @ 3:52 PM

211. Silli Billi wrote:
I've been iron deficient for years now and have been on intramuscular injections for more than a year because my body was not absorbing the iron at all. I've cut off from all inhibitors and extractors such as chocolate or anything with cocoa, caffeine, teas, etc. and with all that, no improvement. My sat level was 18, the bare minimum.

I did some research and found that metallic toxicity can be responsible for the lack of absorption of iron and other nutrients. Metallic toxicity can be caused from drinking water. So I did a test... I checked the TDS level of my tap water, bottled water and boiled tap water and the result was unbelievable. The tap water carried the lowest but when boiled, the number went through the roof!! 117 to 698...I did some more research and found that boiling water with metals concentrates the metallic content.

Okay, so I found a possible problem, but what was the solution? Further research revealed that bentonite clay can remove excess metals from your body (the unhealthy stuff) so I bought some I did a metallic detox. I went back to my doctor and my Sat. rate went up to 34, 16 more and I'd reach the max. Since the water was a big culprit, I went out and got a ZERO water filter. So even and especially when I am cooking, I use the water from it. Major improvement, but I need to be consistent. Even my hair was coming back, but I fell of track and am back into a state of hair loss again. I'm wondering though if B12 has any role in the hair loss. I was getting needles for that (and B6) and stopped on my own. Any thoughts?

I hope someone will find the info about the metallic toxicity helpful. It does work.

Sun, December 28, 2014 @ 11:37 PM

212. Tifani wrote:
After numerous problems; muscle aches, heart palpitations, shortness of breath, neck tightness, extremely cold, dizzy, extreme fatigue, restless at night, etc. my lab work showed low ferritin of 8 but a normal CBC. My doctor insists I shouldn't have the problems I'm having with low ferritin. He ran a whole panel of lab work on my which all came back normal and I'm ordered to have a CT scan this week too. I feel it's all ferritin related. Anyone else have symptoms with low ferritin. My doc also refuses to look into iron infusions yet. I have hypothyroidism and malabsorbtion from a stomach surgery 13 years ago. I'm healthy otherwise and normal weight. Thanks in advance.

Mon, January 5, 2015 @ 4:08 PM

213. Brittany wrote:
Hi! Im 28 years old and in October I was diagnosed with iron anemia. I have taken theiron decatron treatments. The first one brought my from a 2.8 room an 11. It took very well. But the second did nothing for me. My hematologist is always in to big of a hurry. He said it wasn't very good. And the oral iron never did a thing for me. My family and I want answers. I see the dr. Again in April. Im tired of feelings a big blob that does t want to move. There are days where I am very forgetful. I have thos really bad twitch in my right eye. Lol. My body just isnt taking the iron. Does anyone know anything that might help. Or know of anything I can ask my dr. To test for?

Wed, January 7, 2015 @ 4:02 PM

214. Laurin wrote:
Get your B12 checked. Low B12 causes shakes, coldness, burning feet and hands, aggression, confussion, depression, anxiety, nerve damage, can look like MS, ADD, Autism and more. And the doctors normal range is too low.

Mon, January 19, 2015 @ 5:35 AM

215. jessica wrote:
This is all new to me I knew I had anemia but the other day it got bad to the point I went thru a 5 lb bag of ice and horrible dizzy spells and head aches I went to get my iron tested it is extremely low they want me to get an iv of iron every other day till it gets up my problem is I'm allergic to iron pills and iv both make me itch and swell up they informed me I needed it severely and that they would give me benadryl as I take it I'm kinda worried about this does anyone else have this problem?

Wed, January 28, 2015 @ 9:18 PM

216. Julia wrote:
@ Jessica:

I'm scheduled to have my first iron infusion on Monday, hoping it won't cause any bad side effects, so I don't know if I have your problem. I have had anemia on and off for years (maybe longer as I was tired and had low stamina as a teen but never checked for anemia). Since they know you have an allergic reaction and are taking precautions, you must put your trust in them, however hard that may be! Because I'm feeling much like you've written, dizzy, head achy, plus don't want to get out of bed, hearing my heart beat in my head, very short of breath when I get up, etc., so I know I'm quite anemic, and you must be feeling horrible. In my case it's my heavy periods, I'm at the end of one, and they have been getting heavier over the last two years. I also cannot tolerate iron pills (not allergic but digestively oppressed) and just ordered an iron supplement called MegaFood Blood Builder that I am going to try out. If you go on Amazon.com they have many positive reviews about this supplement, check it out. Maybe because it's a better quality product, with no nasty fillers, you will not be allergic to it, and it will help you a little. I'm hoping it will help me with ease of digestibility.
I know you must be feeling worried, maybe even scared (I know I am!), about your IV infusion sessions, so good luck and feel better!

Thu, January 29, 2015 @ 3:22 PM

217. Jane Baker wrote:
IIJust found out that I am a nemic and in my blood test they found that I was bleeding. Now I am going to do a stool test for blood to see where the bleeding is coming from. I think my drinking beer is my problem. I drink at least 8 beers a day; I just like beer. I have cut the beer out for the last 3days and I go back to Doctor when stool test comes back.If I stop the beer I hope the bleeding will too. Does anybody ever heard of this before?

Thu, February 5, 2015 @ 11:20 AM

218. jason wrote:
My wife just had a baby 2 month ago she was told she was necessary and had low blood count and all her musles hurt. Is that all to do with her having the baby

Mon, February 9, 2015 @ 9:18 AM

219. arlene oskarsdottir wrote:
i have very rare blood cancer called JAK2-PV. Overabundance of red blood & ill-formed cells. Hem-Oncl decided that is they depleted Iron thru Low Ferritin - at 5 for 5 years - that would slow down HCT production and drop my HCT counts. Never worked in me. What the 5 Ferritin over 5 years did create was Severe Restless Leg and Central Apenea which means my brain does not properly detect Carbon dioxide so i don't breathe properly during sleep. NOW - I have to take Ropinirole, a Parkinson Med - to help me sleep. My Sleep Doc and My Neurologist, insisted my Ferritin had to come up to the Low Neurology Ferritin level of 50. I am scared of these western iron meds. My Doc of Oriental Medicine told me to buy jar GrandMa's Unsulphured Molasses and add to coffee; little each day. WORKS ! ! ! ! ZERO Side effects. Got Ferrtin to a five year high of 23. I do feel better. Then i had PV treatment which dropped Ferritin 4 points in like 1 day. so now at 19. AND ~ I know how to raise slowly, surely, naturally, no side effects. i would consider molasses and more ferritin checks VS. some of these iron meds.

Fri, February 27, 2015 @ 1:14 PM

220. arlene oskarsdottir wrote:
it is extremely important to have the broad spectrum Iron Testing. Here is what Univ of Rochester Med School recommends:

your doctor may also order other blood tests, including:

Serum iron level to measure the iron in the liquid part of your blood.

Total iron binding capacity, or TIBC, to measure the amount of transferrin in your blood. Transferrin is the protein that transports ferritin from the gut to the cells that need it.

Hemoglobin to measure the number of your red blood cells.

Complete blood count, or CBC, to evaluate many different qualities of your blood, including the size of cells.

HFE gene test to screen for hemochromatosis.

Zinc protoporphyrin to measure the part of the hemoglobin that needs iron to carry oxygen. If iron is low, zinc attaches to the protoporphyrin instead.


Fri, February 27, 2015 @ 1:33 PM

221. Michelle wrote:
Hi, I'm 36 with 2 children and I've had my tubes tied, I have been feeling low on energy for around a year and then my mouth was really sore, so I finally went to the doctor, she took my blood and my iron level was 5.1. I went to the hospital and had a blood transfusion, got it up to 8.1, now I'm currently taking iron supplements but the OBGYN wants to give me an IUD to stop my menstrual cycles., my question is they don't know for sure why my iron is low, I would like to make sure it's my menstrual cycles before I go do something that I don't need. Does the doctor need to do a colonoscopy or endoscopy to make sure everything else is ok before I go through getting my uterus abrased??

Mon, March 2, 2015 @ 3:13 PM

222. Julia wrote:
@ Michelle,
It does sound like they're just jumping into something without taking everything into account. Are your periods heavy? Because that's my problem, and a big fibroid that apparently is causing a lot of clotting when I get my period. If your periods are heavy, then yes, it could really help to stop your menstrual cycle.
If you don't have heavy periods, then it sounds like they haven't found the source of the loss of blood, and you should go to a hematologist who has the expertise to find this out.
Also, you should be aware of the side effects of an IUD before you consent. You can research the side effects online, if you haven't already. Drs. don't usually talk much about that.
Good luck!

Fri, March 6, 2015 @ 9:52 AM

223. Ludmilla wrote:
Hey everyone,

I have been feeling really bad lately so I did some blood work which got me even more confused. I'd appreciate if anyone could shed some light before my hematologist appointment in April.

I have attroffic gastritis, thus B12 defficiency. I take daily sublingual tablets and my B12 levels are back to normal

Dizziness, shortness of breath, arrithmia, artralgia (joint pain), nausea and fatigue

Blood test results
Hemoglobin 10
Serum ferritin 4.2
Serum iron 254
Transferrin 316
TIBC 394
LIBC 140
TS 64%

How can I have iron defficiency and have iron overload at the same time?

Thu, March 12, 2015 @ 7:00 PM

224. richard urban wrote:
So Im a 23 year old male who was treated for unexplained iron deficiency (ferritin below 3, Iron 17, Erythropoetin 60, TIBC 421) with 8 Iron Ivs. Last Iv was end of January. I was retested in February and my iron was good at 100. I got retested again yesterday and my TIBC was slightly high at 288 (range is 191-257), my Iron slightly low at 64 (range for my doc is 65-175), and saturation was low high at 23%.
My doctor is waiting for my ferritin but could this mean Im starting to become iron deficient again? Ive been having increasing fatigue the last two weeks.

Tue, March 24, 2015 @ 8:47 PM

225. Ruth wrote:
I've read all these comments and it floors me there is no mention of the highest food sources of iron. I had anemia and the inside of my lower eyelids were *completely* white. I was so weak my husband had to put me in a wheelchair if we had a lot of walking to do and I had no clue I was anemic. For exactly one month now I've eaten 1 "iron meal" for lunch everyday consisting of---clam linguine (I do not add tomatoes because supposedly they interfere with iron absorption) or clam chowder or smoked oysters/smoked clams/smoked mussels (in the can) along with lemon water. I also take 3 T of black strap everyday. I take a slow release 45 mg iron pill with juice per day and that's all. Exactly one month to the day, a very noticeable thin red line appeared inside my bottom lids and the overall white is now rosy pink. I feel stronger and I'm now beginning my second month. I intend to do this another few months, then continue to eat my "iron meal" 2 or 3x a week along with 3T blackstrap every day with oj. I put little faith in supplements and believe that iron from these foods are the best remedy. My simple clam linguine is made as follows...one half can whole baby clams, rinsed, plus 1 teaspoon lite mayo, 1 serving cooked pasta (also adds iron), zero sodium chicken powder boullion, oregano/basil/garlic powder...this way it has no calcium. I don't mind eating it (or my other "iron meals") everyday since I can see and feel the difference. My prior diet did not include these foods plus the oj and I have permanently readjusted my diet. I hope this helps anyone reading. All I can say is, it's working for me.

Sat, March 28, 2015 @ 7:35 PM

226. Heather wrote:
Hi I'm heather and im 18 years old. I don't know what's going on but I think I have an iron deficiency I've been on my period for about 6 months now (constant bleeding) and I think I'm becoming anemic I have very bad dark circles under my eyes at all times, I get dizzy very easily and feel like I'm going to faint, I get numb a lot like pins and needles through my body, I feel sick all the time and constantly have a headache I don't even know what to do I've been taking women's vitamen things to give me extra iron in my body but nothing seems to help I just am scared my body will get worse

Wed, April 1, 2015 @ 12:35 AM

227. April wrote:
I have been anemic for a very long time so I Dont remember what it like to be normal. I do know I have been exhausted. Never feeling rested. For years I suffered from heavy periods. When I had my first baby, I noticed when I breast fed, I had no period all the way until I weaned him. And so I mad sure to breast feed all 6 of my children that I had every two years to breast feed to avoid mentrating for a year. Also providing me with birth control. Now that I'm done with having children, I notice how a pulled muscles and actually tore my meniscus in my knee. This forced me to get a primary care Dr. She sent me to an orthopedic doctor. He sent me to rheumatologist. She did a blood test and I had bit d deficiency and iron deficiency. My ferritin level was a 2. Iron was a 8. I had headaches. Sore muscles. Muscles spasms, charlie horses,fainting spells,dark circles under my eyes ,exhausted, I appeared lazy. My heart beats fast when I laid down, and I began to have restless arms. The worst symptom fro me was losing my hair. I had my fist infusion last week. I had a boost of energy. I was doing multiple things. I felt great the first week. Now two weeks later, I. Exhausted again.

Thu, April 9, 2015 @ 6:41 PM

228. Rosalie wrote:
My siblings and I discovered we have Thalessemia. We had the blood test done so it is diagnosed. I take B12 & Iron and feel fine when I do and achy when I don't. Also, I went to my gynecologist as my doctor suspected I was having heavy cramping, heavy menstruation cycles, and insomnia. The GYN doctor found a fibroid and polyp in my uterus which was the cause of my complaints about fatigue and chest pain- on account that it was worsening my anemia. Hope this helps.

Fri, April 17, 2015 @ 8:25 AM

229. Susan wrote:
Had my first iron infusion at the University of Tennessee Medical Center. Anemia - got down to 8.2. Have 4 more infusions - 1 per week for 4 more weeks. Had periodic anemia all my life. Taken iron and B injections in my 20s. Hoping and praying I've IV Venafor works well for me. Weary of being tired - heartbeat pounding in ears etc.. No strange cravings. Hemotologist told me he had a patient who chewed tire rubber! Praying that all on this thread get the correct diagnosis and treatment and enjoy renewed health and energy and a long joyful life. Jesus bless you all! g. Susan in Knoxville. TN

Fri, April 17, 2015 @ 2:34 PM

230. mary ann wrote:
If your Ferritin levels are under 50, your hair may also start to thin out. See a Endocrinologist for complete blood work, including full iron panels (Ferritin) - PCPs usually will usually not detect or recommend this type of testing. For good quality hair your Ferritin levels should be at least 75. If you are taking iron supplements prescribed by your doctor, stay on them and have your Ferritin levels checked every 6 months to ensure they are stable and are not increasing too much or falling below the needed levels.

Fri, April 24, 2015 @ 2:29 PM

231. Lori wrote:
Hello everyone,
So I've been having FE infusions for the last three wks.(once a wk) I get horrible headaches and fog the day of and after, but other then that not so bad. Until yesterday! I had my third on Tues., then yesterday (Thurs) I had a horrible stomach ache and went to the ER. I have bilirubin in my urine? Not sure if that has anything to do with it all? My Hgb has gone down and my RDW went up?? I have been able to work full time w/o too much trouble until i left to go to ER, but had to call in today...I am so tired! Not sleepy, my body is heavy & so tired. It's horrible!! My MCV has gone up. My Ferritin was <2% before my FE infusions started, I will see the hematologist and have it rechecked after my last (hopefully) infusion next week. What can I do to get through this?? Anybody??

Fri, April 24, 2015 @ 2:51 PM

232. Drema wrote:
Have you guys heard or tried Pur Absorb'? It's an iron supplement that comes in a packet. It's water from a source in Whales that is naturally high in iron. It is very easy to absorb & doesn't cause constipation like other forms. I'm so sorry you guys are suffering & the stories about Doctors thinking you're nuts - I have Chronic Fatigue....which is a real disease but it can also be a 'catch all' when you haven't gone through all of the other testing it takes to determine if it is NOT something else. My dad has had trouble with iron going low so I found Pur Absorb. He takes it with some water and swigs it down, but I put some juice in with it. Just not grape because that interferes with iron absorption. I found this post because tonight once again I had heart racing out of the blue. I know I have problems with wheat but haven't gotten serious. Reading these comments is giving me the push I need. By the way when I get relatively low to moderate amounts of sodium my heart races and what brings it back to normal is Blackstrap Molasses (see another post above saying same thing.) and I eat a banana. Now that I have liquid Magnesium I take some - I missed my dose yesterday and had several foods with more sodium than normal. I never eat fast food. We do have a cheese in the house that is extra salty, salted cashews, I ate a bunch of saltine crackers and some milk - 70 mg per glass. And I salted my eggs. Just going into this in case it helps jar somebody's mind. I also had a B12 injection and there could have been sodium in that, too. Take care everyone and please do not give up hope. I found it particularly interesting the comments on low iron and hair falling out. My dad is even noticing and he never notices anything. I think I'll look for a Doc. I wonder if a consult with a Doc or Physician's Assistant (sometimes they're better!) would reveal if they are the type of person who is a detective and will not stop till they figure out what is going on? We need Docs and medical personnel who are detectives because what is coming out of Medical School is NOT working.

Tue, May 5, 2015 @ 11:03 PM

233. Mazz44 wrote:
I feel so sorry for all those suffering on thid site. Please keep in mind that the amino acid L-taurine is necessary for the human body to utilize iron. Many people are deficient in Taurine. It is a conditionally essential amino acid. Lastly, iron bisglycinate will not give you the bad side effects. The brand name is called Ferrochel. I hope this helps.

God Bless

Thu, May 7, 2015 @ 3:13 AM

234. Darcy wrote:
I have very low ferritin which is 2. I have been complaining for 15 years that I am total tired and can't stay awake. The only way I found it was low was my Chiropractor. He deals with Alternative options and figured it out. It seems like since my Hemonglobin was in the safe range that the doctors never test for the Ferritin. I would suggest that maybe start with Alternative ways to take care of it and see if that helps. I am only 2 weeks into it, feeling better being off Dairy and wheat. But still very tired and my body is not storing the Iron. I think that I am going to try the Drink mix suggested by someone and see if that helps. D-Ribose Powder. I have nothing to loose by trying it. Good luck everyone and I am glad that I am not the only one out there with the same symptoms. My doctor also told me I am depressed, seems like most of us have been told that. Well, I am sure they would feel that way to if you kept telling people how you were feeling and now one would listen. We are tired not depressed.

Thu, May 21, 2015 @ 11:13 AM

235. Leo wrote:
• Iron and hypothyroidism: a large group of Thyroid patients, men and women, have been surprised to discover that being hypothyroid also results in having too low levels of iron, a very important mineral in many ways! Iron deficiency anemia is a common type of a condition in which blood lacks adequate healthy red blood cells which carry oxygen to the body's tissues.

Iron deficiency in non-pregnant populations can be measured quite precisely using laboratory tests such as serum ferritin, serum iron, transferrin saturation and transferrin receptors. However, these tests are often not readily available and have limitations in their interpretation in some settings and conditions. Particularly where infections are present and during pregnancy.

Serum ferritin concentration is an indicator of iron reserves. Ferritin is a blood cell protein that contains iron. A ferritin test helps to understand how much iron your body (mainly liver) is storing. In pregnancy, serum ferritin levels as well as bone marrow iron fall even in women ingesting daily supplements with high amounts of iron! A serum ferritin concentration of less than 12 µg/litre in adults is accepted to indicate low iron stores, even during pregnancy.

If it is higher than normal (15-200 µg/litre for females), it could indicate that you have a condition that causes your body to store too much iron. It could point to liver disease, rheumatoid arthritis, other inflammatory conditions or hyperthyroidism. Men normally have higher levels of iron and ferritin (30-300 µg/litre). Some pathology companies use different ways to measure ferritin and so the "normal levels" change.

Each test does not correlate closely with one another because each reflects a different aspect of iron metabolism. Serum Iron -- the circulating iron. Serum Ferritin -- Iron within a storage protein. Total Iron Binding Capacity (TIBC) -- Elevated in iron deficiency and low in chronic illness, cancer and infection. Transferrin saturation -- Iron absorbed from duodenum bound to a transport protein.

How do I prepare for iron labs? Testing -- although the vast majority of doctors, medical websites and even lab facilities will state -- to be off iron supplements for a good 12-24 hours before testing -- the American Hematochromatosis Society says: "Refrain from iron pills for a week prior to the tests" (ie you want to see what your body is hanging onto, and treat that). Five days is probably enough.

This gives you a general idea of what you are looking for in all these labs. Lab results have nothing to do with just "being in range"! Can I only measure Ferritin and treat my Iron based on it alone? Big mistake! You can have so-called "normal" or even optimal serum iron and saturation levels, even normal hemoglobin and hematocrit, yet a low Ferritin. Some patients report continued problems raising ferritin level with just low desiccated thyroid remedy, while the other labs look good.

• Googled and used info from ... http://www.stopthethyroidmadness.com/ferritin

Mon, June 1, 2015 @ 12:13 AM

236. Tracy wrote:
I was diagnosed 11 years ago with Hemochromotosis. My doctor had me give blood twice a week for a year and every month for 10 years. I switched doctors and I now have a doctor who deals with blood. He said my other doctor took to much blood out of me. He said I never had the disease, I now have iron deficient with anemia. He said the doctor never saw that my ferritin level is 6 and has been for 10 years. I have not been able to breathe well for a long time, I have lost a lot of my hair. I am very sick and mad at the doctor that allowed me to get this sick. I need help to understand how to feel better.

Thu, June 4, 2015 @ 9:55 AM

237. Jazzy wrote:
I have low iron. I have every symptom that comes with it. Almost all the symptoms have gone away except for weakness, short of breath and rapid heart rate when I try to brush my hair, shower, clean, fold laundry basically anything that requires use of my arms or any type of fast exertion. How long until the rapid heart rate/tachycardia goes away? 3 months? a year?. So far I have had this problem for 2 months and have now been supplementing 2x a day Vitron C with oj for the past month. I have had blood work vit d was low, b12 and iron. I am taking meds for the deficiencies. I have a full cardio work up done and everything came back normal. I cant even go grocery shopping or wash my hair with out my heart racing out of my chest.

Fri, June 5, 2015 @ 5:37 PM

238. John wrote:

There is no doubt you were overbled. Twice a week extractions are generally for those with a seriously high starting ferritin (over 1000), and can generally be slowed to weekly, bi-weekly, or monthly after a few months when ferritin is around 500. And maintenence phlebotomies are only supposed to be 4-8 a year, certainly not 12. However, the fact that you survived that massive overbleeding suggests to me that you certainly had some sort of iron overload to begin with, if not one of the genetic loading disorders. Your focus should currently be on upping iron, hemoglobin, and other vitamins and minerals lost, but I would trust the second doctor's diagnosis that you never had hemochromatosis in the first place.

If I were you, I would get on dessicated liver AND a quality multivitamin AND a B complex. I'm very wary of supplemental iron (both in fortified foods and supplements), but it might be necessary in your case. Eat lots of red meat. Go ahead and take vitamin C with meals. Avoid pairing any sort of iron inhibitors with meals (eg, calcium, milk, tea, coffee, red wine, phytate, and such). Make sure you're getting plenty of protein. Also, shoot for a daily caloric surplus. You might gain some weight, but you probably need to regain health. Remember, these are likely temporary measures, I'd re-evaluate in three months or so. Also, you should probably have your ferritin levels checked a few times over the next year. You may indeed have some sort of iron loading disorder, but any maintenience blood extractions should much more infrequent, maybe 4 times a year, if needed.

Tue, June 16, 2015 @ 5:21 PM

239. John wrote:
Sorry, that should say I WOULDN'T trust the second doctor's diagnosis that you never had hemochromatosis.

Tue, June 16, 2015 @ 5:22 PM

240. LIsa wrote:
Elizabeth: Anemia is based on your Hemoglobin levels, not your Ferritin level, so you could have low Ferritin, but not be "anemic" per se. Usually if your Ferritin gets really low your hemoglobin goes down as well, but not always the case. Right now my hemoglobin is 131 which is decent, and my ferritin is 17 which is low. I've been trying to get my Ferritin up for years now.. on a complete anti-inflammatory diet (no sugar, no dairy, no caffiene- no life) which was supposed to enable my body to absorb the iron better but I've been on that strict diet for almost a year now and my iron went up a few points, then back down again. I"m staying on the 150mg ff iron and hopefully once I hit menopause and stop having heavy periods my Ferritin will go back up. I have a decent amount of energy, probably because I'm not anemic.. I have been anemic in the past and know how horrible that feels. So, all that to say, if you have good energy and low Ferritin but not anemic, that may be why your doctor is not too worried about it.

Fri, June 19, 2015 @ 12:24 AM

241. LIsa wrote:
Darcy: you should definitely get on an Iron supplement! when my iron was 2 I was exhausted!! I'm on all the natural diet to help get more iron in but even that combined with Iron supps is a very slow process so get on a high dose of iron now so you can start getting your number up.

Fri, June 19, 2015 @ 12:30 AM

242. Kia wrote:
after a long struggle with these symptoms :racing heart (even at rest ), chest pain, shortNess of breath , extremely cold feet & hands,fatigue and etc...I went to the doctor and I was told I'm iron deficient I was given iron supplements, the problem now is I still have a racing heart and cold feet, how long will it take for my heart to go back to normal?

Sat, June 20, 2015 @ 6:52 AM

243. Jazzy wrote:
Went to a cardiologist turns out I have p.o.t..s. That explains the fast elevated heart rate. Being iron deficient made all my symptoms much worse.

Sat, June 20, 2015 @ 2:10 PM

244. Jess wrote:
I'm 17 years old and have been feeling tired, my heart racing and had my period very heavy for 3 weeks. I'd come hime form school and sleep for 3 hours and then wake up and not be hungy. The doctor said im grossly fatigued as I told him I usually have 9 day periods. I didn't tell him about the 3 week one Tho. He put me on the pill and I started it straight away havig the normal tablets not the sugar pills. I still have my period but it is much lighter. What is going on and how do I stop it?!? Please help im stressing x

Mon, June 22, 2015 @ 5:27 AM

245. Malika wrote:
Strange is what I'll call my case. I have very low ferritin level (3.5) and I experience none of the symptoms explained by experts and patients all over. My breathing is normal, can absorb basic physical activity without exhaustion, no constipation, sleep well, no leg moving syndrome thing, no craving for ice cubes. The only thing I can relate to is, cold feet.

I really want to raise my ferritin readings to the normal range. But am still intrigued about why people have so severe symptoms while I don't have them?

I hope there's a logical explanation for that, and a positive one. :)

Tue, June 30, 2015 @ 2:49 AM

246. Prisca wrote:
my HGb is 12.1 but I have really scary symptoms: rapid heart beat ( even at reat),chest pains( sometimes my heart hurts), my feet and hands are always cold, extreme shortness of breath, I crave for dirt a lot (dust, ice, chalk etc) and extreme tiredness. I recently started taking iron supplements but I still have all those symptoms. I had really bad side effects of taking iron supplements I started to have a throbbing sensation over my body and I sometimes have a funny movement near my heart and sometimes I have this itching sensation in my heart (I know this sounds crazy ).my life is just miserable but I just trust in the Lord for my healing.

Wed, July 1, 2015 @ 2:21 PM

247. Prisca wrote:

What is your HGb level? is your heart also racing at rest?

Wed, July 1, 2015 @ 2:24 PM

248. Jazzy wrote:
just found out my ferritin was at 22 still very low.

Sun, July 5, 2015 @ 2:13 PM

249. Pamela wrote:
Hi I just want to ask if there is any explanation that everytime they send sample catches from iv it's always give high iron but the truth is not. Is pressure causes false increase?

Fri, July 10, 2015 @ 3:38 PM

250. Ashley wrote:
Can ferritin level of 22 cause symptoms?

Sun, July 12, 2015 @ 2:56 PM

251. Michelle wrote:
Hello everyone

I have noticed my hair falling significantly within the past year. Over 200 strands just when I shower. I am 20 years old. I found out my hemoglobin was at 8.4% in January and have been taking an iron pill ever since. My hemoglobin is now at 12.6% which is in the normal range. I haven't noticed a decrease in hair fall, however. I have normal ranges of protein and my thyroid is normal as well. No family history of baldness either. How long will my hair keep falling? Shouldn't I have seen at least a decrease in my hair fall? I am very sad about how much my hair has thinned. I used to have thick, thick hair. Now it is very very thin.

Wed, July 15, 2015 @ 8:30 AM

252. Bonnie wrote:
I had my first iron injection and have felt horrible ever since. I am still very exhausted, funny feeling in my stomach, headaches, body aches. This is hard because I also have fibromyalgia. Are the symptoms just the normal ones or should I be concerned? I keep losing hair also, bruise easily. My B12 is normal which is good. They told me I was dangerously low. Feeling frustrated not feeling better.

Tue, July 28, 2015 @ 7:43 PM

253. jjhelp wrote:
son age 17 has low ferritin ,top of the range serum iron and normal hemoglobins and rbc...he is exhausted ,detached from people, doesn't exercise, moody, sleeps a lot,tired, has headaches, doesn't eat right,drins lots of milk, and was b12 deficient but normal with supplements....dr said to ignore low ferritin since all else was normal....IS THAT CORRECT????? has a elevated tsh of 6 but this free t3 and free t4 is in the upper range....so he said he isn t hypothyroid although his tsh is slightly elevated.

Thu, August 6, 2015 @ 8:52 AM

254. Michelle Barker wrote:
I have been suffering from iron deficiency anemia for 2 years. At first iron infusion s would help for 2 months. Since April 20015 I seem to have escalated.. iron infusion only lasted a month haemoglobin dropped to 6.8 and since then I seem to be only getting worse. I had my first hospital admission this week and received. 4 units of blood. Which makes a total of 14 blood transfusion s since April. Have been checked for gluten and all other blood disease. Have had GI work up. Swallowed the camera to look at small intestines. I can not get a hemoglobin above a 9 since april. My whole life revolves around doctors. I have tried supplements and homeopathic treatments. I still work full time but it is getting harder. My whole life has changed, I am fearful to go to a store do not know if I have the strength. I am depressed because of the changes but afraid tottake medications for it because I do not know what us going on with my body. Just had blood drawn for auto immune diseases yesterday going to repeat GI consult. I am 59 all other tests say I am healthy, just can not keep iron in my body to make RBC. Any suggestions would be welcome.

Sat, August 8, 2015 @ 10:50 AM

255. tharasa wrote:
3 years ago i noticed my black hair turning brown suddenly and its going on till now,recently my ponytail volume reduced to about half,even my hair thickness is reduced,its not growing in length and so i got a check of my Hb,thyroid and b12. My Hb was 12.3,total rbc 4.1mill/cumm(4-6.5mill/cumm) and b12 was 61pg/ml(180-914pg/ml),so i was prescribed with shots of neurokind plus,after i had a check of my serum ferritin levels and it came up as 19.4ng/ml(11-306.8ng/ml) and above all i am a vegan.I cant get a sink of these results and i dont want to lose my hair anymore,so please could anyone suggest what i'm supposed to do.

Mon, August 10, 2015 @ 1:35 PM

256. will wrote:
I'm trying to figure out what's going on,I'm not expert but my numbers seem to contradict themselves. why is my Ferritin and saturated iron levels so low.

IRON 31-144 mcg/dL my level >>> 75
TRANSFERRIN 174-364 mg/dLmy level >>> 282
TIBC, CALCULATED 261-462 mcg/dLmy level >>> 353
% SATURATION, IRON 15-62 %my level >>> 21
FERRITIN 22-274 ng/mL my level >>> 18
HEMOGLOBIN (HGB) 13.0-16.5 g/dL my level >>> 13.8

Tue, August 25, 2015 @ 8:30 PM

257. Leanne wrote:
Hi just wondering if any one could help. My son is 2 next month and has just been diagnosed with anaemia. His haemoglobin levels at 6.9 and ferritin is 3 ( this is all we've been told) he has been put on a 3 month course of syctron at 3.5mls 3x a day. Iv been giving him this now for two weeks and found his appetite is increasing as he also developed pica (which I presumed was normal for a two year old boy) however the fatigue and tiredness is increasing with a yellow tint to the skin. I just wondered how long before his fatigue improved and is it ment to increased? This was all discovered from multiple breath holding spells with seizures.

Tue, September 15, 2015 @ 12:07 PM

258. Chris wrote:
Two years ago I pretty much passed out on an airplane. Thankfully the flight attendant offered me a ginger chew..which did give me energy until we grounded. My doctor ran a five hour glucose test which was normal. Then I received a call that she was sending me to an oncologist as there was an irregularity with my red blood cells. Immediately my husband and I prepared for the worst. The oncologist walked in and basically said, "I think this is an easy fix". Then he explained that he was also a hematologist. To a physician my iron seemed fine but what he was able to piece together with all of my crazy levels was low iron storage. I was to receive two iron iv's weekly for 5-6 weeks. In my case because he was concerned of an allergic reaction they were super slow and lasted three hours. However, after the first one I had a reaction where every joint in my body ached so bad and I had swelling of my joints, especially my wrist where the iv went in. He tried another variety of iv iron and ran a benedryl iv beforehand the next time and it was better. I did complete my 6 weeks and felt better but had to return in six months. One year later I had to receive the iron iv's again but had a reaction of a rash and hard to breathe. I felt it was because it usually took me five hours total with the benedryl iv but this day it took less than three hours so the iv was moving quickly.
Needless to say my doctor decided that two reactions was too many and said I would have to wait for a new iron to be released in 2016?? They told me the only thing to try right now was over the counter. I cannot take vitron - c as recommendded so I tried others. I found that Rite Aid has a slow release table of 45 mg which I can take. I take it twice a day but I chew a vitamin C chewable tablet beforehand to help with absorption. So far it's working.(rite aid runs buy one, get one sales so I load up on these)
I have had IBS since I was 19 and what I noticed was : when my iron level was brought back, I had normal bowel movements. When my iron is low, I have loose bowels. I haven't found anything to document that but I am mentioning it in case anyone else recognizes this symptom.
For anyone who is unsure of where to go.. find an oncologist and see if they have an on site lab and iv clinic. That worked well for me. They would test my blood before I even had an iv and get the results in 15 minutes. But as the oncologist told me... he is a hematologist as well.. He studied blood. Another I still do today... i keep ginger chews in my bag and use them daily. They do perk you up and give you a little bit of energy. Good luck.

Fri, September 18, 2015 @ 11:16 AM

259. Jenn wrote:
Let me start with a brief history- I have hashimotos (hypothyroid autoimmune disease). I have been feeling awful lately and started seeing a new Dr and had blood work done. My ferritin levels are 5, my b vitamins are very low and my reverse t3 is very high. My dr wants me to give myself b12 shots every 3 days as well as doing iron IV and Meyer IVs. Has anyone done these IVs? I am terrified that I am going to do the IV and have horrible side effects of nausea and sickness. Thank you for your input and responses.

Sat, September 19, 2015 @ 12:13 PM

260. patty wrote:
Been anemic for years tried all the iron pills had blood tranfusion,the only thing that has helped me is flintstone vitamins with iron,my dr.still cannot believe my bloodcount is getting better with every visit,please try these vitamins take them every day,it will take time but it may work on you also,god bless you all.

Wed, September 30, 2015 @ 7:01 PM

261. Les wrote:
I feel horrible, so weak like I have the flu-I had labs done a few months back and ferritin was 6 and just went on supplements now. Can ferritin cause you to feel full body weakness like when you have the flu? Ive had bouts of this on and off for awhile.

Wed, October 7, 2015 @ 1:47 PM

262. mj wrote:
Hi everyone - hope this is helpful if you have a low iron count. (And especially if your blood test shows Ferritin (that's what stores iron in your body and releases it in a timely manner) is on the low side of normal.

Be sure your doctor also tests your Vitamen B-12, because if that's also low, you may have Pernicious Anemia. (B-12 enables your body to hold on to and retain the iron you injest from food and suppliments.)

In addition to eating iron-rich foods, the therapy for Pernicious Anemia is usually a combination of B-12 injections and Ferritin infusions. How often they are administered depends on your body and your doctor's decision.


Mon, November 9, 2015 @ 9:06 AM

263. Tracy wrote:
I lose my iron every year. It started about five years ago, I was very sick and I lost 35 pounds of muscle very very quickly and my iron dropped to zero and I was 95 pounds each time. This happened twice. And now I have been losing my iron ever since. And no one knows why. I have to get intravenous iron now two three times a year. I sure wish someone could help me. I live every day in chronic pain and chronic fatigue. I don't stop I just keep going because I have to.

Tue, December 15, 2015 @ 7:24 PM

264. sara wrote:
Hi all,
I need your help. I am 24 years old with HB of 12 but my ferritin level is just 1.08.
I will start taking oral iron supplements. Is there any recommendations?

Thank you.

Thu, December 17, 2015 @ 5:22 AM

265. Jean Abugov wrote:
I am 93 years old and I have anemia which is treated by iron pills. Is it okey for me to have blood work done a couple weeks apart? Will it effect my iron level?

Mon, February 8, 2016 @ 7:20 AM

266. Angelene Cardinez wrote:
I'm 29yrs ...and have been diagnosed with amnaemic as well as I was told I have low pressure low sugar and low blood count I don't know what to do

Wed, February 10, 2016 @ 10:28 AM

267. Julie wrote:
Hello,so glad to be on here ,my case is over 30 years of horrible debilitating fatigue ,to the point that it has stolen my life dreams ,my mom has it too ,so it's inherited or genetic or something ,I worked for years in a supermarket ,going back n every day holding myself up ,forcing myself to stand up , I've probably had my whole life and it's just gotten progressively worse . My problem in and out and in and out of Drs offices ,all my tests say nothing wrong with me ,no dr believes me ,calls it depressed ,ya you'd be depressed if u felt like this forever ,it's the most prominent thing on your mind because it's reminding you how bad you feel ,my favorite sayings "all I want to do is lie down" . I'll be in line in a store and have to sit on the floor to while waiting to pay . After a while I got sick of trying .my mother spent endless money on me for colon cleansing, a upunture,sorry acupuncture ,vitamins,supplements ,message ,and finally naturopaths ,although I didn't find the complete answer from them ,I got more understanding ,compassion,time from them and got closer to the answer ,.they steered me toward the all natural foods diet and no sugar,dairy,gluten. Still I wasn't completely well,and taste buds always pull between the battle between good and evil for me .so one day I joined a weight loss clinc and they did blood work ,told me I have low thyroid (hypothyroid)and high cholesterol .i was ecstatic ,finally I had an answer ,all I had to do was find an endocrinologist and surely he out me on thyroid pills... I found one an old time dr schooled in the 60s ,I didn't like this ,he's very by the book,not open minded ,anyway since my test was very borderline he didn't take it very serious so I had to fight tooth and nail to get him to put me on the pill,after he concluded I have hashimotos ,which stems from autoimmune (leaky gut) from bad foods,of course he didn't see it that way . But my happiness at being on the thyroid pill (and soon was told my levels were back to normal ) was short lived :I DIDNT FEEL ANY BETTER! Now I don't do to him and I stopped pill . Next I went to naturopath ,of course insurance doesn't cover them ,so I couldn't go much,she wanted food tests ,and adrenal tests ,etc ,all expensive saliva tests for adrenals , so everything I described to her low blood sugar attacks ,exhaustion ,hard time waking up and of course athe thyroid adrenal connection .so recently I'm reading up on my stymptoms ,cold and tired is thyroid ,but heart palpitations and gasping shortness of breath? So I go to primary care I tell her I need CBC ,anemia checked ,and beyond anemia ,I'm crying saying this has gone on for too long ,of course I knew when they called me back what they were gonna say yup my CBC is completely normal ,I said now I asked her to test iron and serum and andferritin ,but the nurse nope they didn't test those even though I was very and specific and my idea was I really want to see a hemotologist ,nope ,no such luck ,the ,I figured a hemotologist could really give me some insight into reading blood work like a pcp can't ,nope if my hemoglobin is normal then they won't go any further ,period,and I called the hemotologist directly ,nope I have to be referred by pcp ,and the hemotologist said "we don't diagnose ,we just treat after referral". And the pcp did say that my thyroid is low ,duh. Then I started reading about the connection between low thyroid,adrenal fatigue ,anemia ,low iron, and hashimotos and this interesting thing keeps popping up: Drs do a great disservice to us by missing the fact that our iron is low ,but it doesn't reflect always on routine tests ,and I thought about that it's funny I went to donate at Red Cross and they denied me ,isn't that funny that they can detect but Drs can't ! And how iv got the classic shortness of breath and heart palpitations ! Thank you for listening ! Any suggestions? Anybody similar to this scenario? And of course I learn to not talk about it because we don't look sick,we sound like hypochondriacs and when are we gonna get over this?

Sun, February 14, 2016 @ 3:05 AM

268. Kathryn wrote:
Hi, my name is Kathryn and I am new here. I've recently felt tired, annoyed, weak, need naps (not cool), itchy...stuff like that. I went to doc and she did blood tests. I felt it might be perimenopause (I am 50 and still regular periods and stuff.) Anyway, my counts were all low. Here they are. My doc
s clerk called and said I need to go in on Monday to meet with her. Here are my results, what doI need to ask her? I'm a little worried.

02/16/2016 Ferritin, Serum Low Ferritin.: 4.7 NG/mL Final

02/16/2016 CBC W/ Auto Diff
Wbc: 7.0 10^3 cells/uL Final
Rbc: 4.9 10^6 cells/uL Final
Low Hgb: 11.1 g/dL Final
Hct: 36.2 % Final
Low Mcv: 74.0 fL Final
Low Mch: 22.7 pg Final
Low Mchc: 30.7 % Final
RDW-CV: 17.3 % Final
Mpv: 10.80 fL Final
Plt: 273 10^3 cells/uL Final
Ne%: 54.7 % Final
Ly%: 31.4 % Final
Mo%: 10.6 % Final
Eo%: 2.6 % Final
Ba%: 0.7 % Final
Ig%: 0.3 % Final
Ne#: 3.8 10^3 cells/uL Final
Ly#: 2.2 10^3 cells/uL Final
Mo#: 0.7 10^3 cells/uL Final
Eo#: 0.2 10^3 cells/uL Final
Ba#: 0.1 10^3 cells/uL Final
Ig#: 0.0 10^3 cells/uL Final
02/16/2016 TSH, Serum Tsh.: 3.12 IU/L Final
(07/09/2014 TSH, Serum Tsh.: 1.49)
(03/19/2001 TSH, Serum Tsh.: 1.50)

02/16/2016 Iron + Total Iron-binding Capacity (TIBC), Serum Low Fe.: 25
ug/dL Final
Tibc: 459 ug/dL Low Final
% Saturation: 5 % Low Final

02/16/2016 RBC Morphology, Blood
ABNORMAL Aniso: slight Final
ABNORMAL Micro: slight Final
ABNORMAL Ovalo: slight Final
Plt-est: adequate Final
ABNORMAL Poly: slight Final
Comment 1: few large platelets present Fina

Fri, February 19, 2016 @ 5:21 PM

269. Matt wrote:
Similar to Kathryn in many ways, long drawn out task to get things sort, but i have a few differences.

Haemoglobin 11.5
hemocrit 37.7%
MCV 76.3
MCH 23.3
MCHC 30.5%

few differences
serum ferritin 6 - this was at 190, 6 months ago
serum iron 4
TSI 5%
transferrin 3.4 g/l

in addition my white cell count is 3.3 whilst my platelet count is 356 - you had though both would be low, but i used to be a platelet donor.

in addition my Vit D is only 18.1

I've had 2 gastroscopies, a colononoscopy and a capsule endoscopy in the last year, with loads of biopsies. There is no internal bleeding from top to bottom (literally), and there are no signs of malabsorption problems, so if this is "simple" iron deficiency as the consultant says, where's all my iron going to?

I'm a full omni-carnivore and eat a good diet, and have lost 50 lbs recently by choice.

i've had 2 GPs look at my blood works over the last few years and they believe something is up, but trying to get a specialist to take an interest is hard.

I've been referred on to a teaching hospital, but have to go through the gastro route again, rather than direct to a haemotologist.

i went for a 5 mile walk at the weekend - and then had 2 days in bed - boy, my body cant talk that minimal level of abuse.

any one got ideas?

Thu, February 25, 2016 @ 5:28 AM

270. Julie wrote:
I'm hoping that someone can help. My husband found out a month ago that we was anemic. His hemoglobin level was 6.8. He received two units of blood that got him to a 9.5. He had an upper GI scope and a colonoscopy that found nothing. He also had an xray of the small bowel that showed nothing abnormal. His biopsies showed no Celiac disease or anything else abnormal. He was put on iron supplements, but his levels have dropped again. He is scheduled for a procedure where he swallows a small camera to get images from inside his GI tract. He also received IV iron and will go back for more.

Does anyone have any experience with something like this? It seems like he is not absorbing iron rather than bleeding. He has no signs of bleeding. His ferratin was very low. He has "classic" labs of iron deficiency anemia.

Sun, March 13, 2016 @ 7:40 PM

271. Angelia wrote:
Well the day has finally arrived I have my 1st Iron Infusion and I'm so anxious. I'm very newly diagnosis with Iron Deficient Anemia. My Hemoglobin level came in under 5 and my Ferritin was -3!! Needless to say the Doctor was a bit concerned.

Thu, April 7, 2016 @ 8:38 AM

272. Carolyn wrote:
Angelia, don't be afraid. You will feel like a new person after the infusion! I have had it done 3 different times so far usually every 6-8 months. It's worth it. Good luck!

Fri, April 8, 2016 @ 9:29 AM

273. Linda wrote:
Does anyone know what it means? My iron is very low 2 /minimum is 7/, ferritin is normal. I take a lot of iron tablets and ferritin is growing, but not iron.
Haemoglobin is 8.6 /minimum is 11.5/ I have found some websites about anemia of chronic disease, the second biggest after anemia of iron deficiency.
With anemia of chronic disease or anemia of inflammation you cannot take iron tablets. It can be harmful and fatal. Does anyone know more about it?

Wed, May 4, 2016 @ 8:55 AM

274. Mairead wrote:
Hello i was diagnosed with very low iron levels. I was utterly depressed all the time. Sheer exhaustion. Anxiety. I am 50 years old and have always enjoyed perfect health. My diet was iron rich and full of organic and well prepared ingredients. I couldnt understand how i had such low levels my doctor said a gluten intolerance might cause malabsorption. I decided to immediately dump all gluten from my diet. 30 days later my iron levels were healthy. My energy restored so i could go back to my running. All depressive symptoms gone. No longer cold. I am a new person!!! Interestingly the gluten intolerance test came back negative but i will not revert to using any again. 100 percent abstinance over 30 days might be worth a try. Oh and i lost 18 lbs too!! Best of luck to everyone.

Thu, May 5, 2016 @ 5:39 PM

275. amy wrote:
Hi my names amy I have 2 children 7 and 4 I was recently diagnosed with pernicious anemia I feel out of breath all the time find it hard to walk far and going out with my kids or family I have iron tablets but they make me feel sick I wonder if I had iron drip at hospital would feel better ?

Sat, May 21, 2016 @ 4:25 PM

276. Steve Dobson wrote:
I have polycemia Vera as well as essential thrombosis, I have had a camera pill as well as an scopes to try and determine what the issues are with no results. Could someone please tell me some options as I am getting very frustrated. This has been an issue for the last 5 yrs.


Tue, May 24, 2016 @ 4:21 PM

277. Brenda wrote:
Very Grateful! This courageous man, Dr. Eitan is a healer, pathologist, herbalist, biochemist and naturalist, who immigrated from Jerusalem(Israel) and who has committed his life to the service of helping people cure their diseases. In essence he teaches his patients how to use nature to take care of their bodies. i want to inform the public how i was cured from (HERPES SIMPLEX VIRUS) by Dr. Eitan, i visited different hospital but they gave me list of drugs, Zovirax, and Valtrex which is very expensive to treat the symptoms and never cured me. I was browsing through the Internet searching for remedy on HERPES and i saw comment of people talking about how Dr Eitan cured them from ALS, CANCER, HERPES, DIABETES and so on... when i contacted him he gave me hope and send a Herbal medicine to me through courier service that i took and it seriously worked for me, am a free person now without problem, my HERPES result came out negative. I pray for you Dr. Eitan. Am fully cured. you can also get your self cured my friends if you really need my doctor help, you can reach him now: dreitanhealingcentre212@gmail.com THANK YOU FOR YOUR HELP TO CURE MY (HERPES SIMPLEX VIRUS)AM SO GRATEFUL!

Wed, May 25, 2016 @ 9:55 PM

278. Bri wrote:
Hi everyone.

I am 20 years old and have severe iron deficiency anemia for about 3 years now. I receive iron infusions every couple of months because my body doesn't absorb it. I tried supplements and foods, and nothing works except for these infusions. I first had iron venofer infusion and after the first round of treatments I was fine. The first treatment of the second round my arm swelled and I broke out in hives. They then switched me to the iron ferritin infusion and again I went the first round with no problem and the first one of the second round I had 6 minutes left. As they were pushing it down the tube I got really stuffy in my nose and within 30 seconds I couldn't breathe, and my whole body was swollen along with my eyes being swollen shut. My left arm and left leg were blotchy and completely purple.. then my right side did the same thing eventually. I had such bad pain in my back and chest that I couldn't inhale so I was holding my breath. The doctor said it would go away in 15 minutes. After about 55 minutes, he called for an ambulance. When I got to the hospital, they said they don't see too many reactions like mine. Also, they said if I had a reaction to the ferritin there's a greater chance I would react to the dextran, which is my last option. Did any of you ever go through anything like this before? And if so what else can I do to get the iron I need? My levels are a 7 right now, so I need to figure something out. Please and thank you in advance!!

Wed, June 15, 2016 @ 6:03 PM

279. Momena wrote:
I am at a really really helpless stage. i did not come to know anything about my iron deficiency since i had a badly severe hair fall and not only from my scalp but from my facial hair as well which means from my eye lashes and eye brows (daily 10 to 15 fall off) its been months i have not used any product on my skin, i only wash my face and my lashes and brow hair fall off, when i sleep awake my lashes are on my face, my hair fall from head in only fourth to what actually they were. i got my ferritin level tested. it was 3. i am working on that, i am taking supplements and have three IV yet. and i have heavy period too. but my main concern is, does the low iron level cause this kind of hair fall from scalp and especially from face? because when i read here, there are all other symptoms that people are mentioning, like fatigue, lethargic, nausea and all. please if some one could answer. :(

Wed, June 22, 2016 @ 1:18 AM

280. Michelle R. wrote:
I'm second the state that Momena is in. I'm at an helpless stage. Due to my bypass surgery, I can't absorb iron. I've tried pills, liquids everything. My health is really taking the hit (lost hair, brittle nails, craving ice but always cold). My ferritin serum level from my lab work in 8/15/14 was >1. I had to have iron infusions to get it back up. After 3 of the 5 week sessions it moved back up to 33 as of 3/25/15 but my lab on 10/3/15 showed it at 14. That is a huge dip in ferritin in that short time. I don't know if infusions are the continued answer or is there something else. I've put off going back to the doctor but I'm feeling very weak all the time. I'm trying to learn more about iron and what would be the worse case scenario if it keeps declining. I'm trying to seek any help but finding resources is not easy. Reading some of these blog comments is helpful because I see I'm not alone.

Thu, June 23, 2016 @ 3:59 PM

281. Carla wrote:
Hi. I have struggled with low iron and heavy periods for almost 9 years. My ferritin is now at 5. I did not want to go on birth control or have the uterine ablation since there were times I thought at age 52 that I was close to menopause. I cannot take most iron supplements due to diviticular disease. Has anyone tried a supplement that does not cause even mild constipation? I want to also say that I have been laughed at by heart doctors and totally ignored when I asked them to check my ferritin levels. I was so short of breath that I had a echo stress test. They blamed everything on being overweight. I am glad to finally get some answers to my issues. Has anyone's blood pressure increased with this? I may go right to infusions so I can get better faster. However, I am a little discouraged by some of the experiences expressed here though.

Sat, June 25, 2016 @ 9:30 AM

282. Laureen wrote:
Awesome! The great man who cures all known diseases, Dr Sebi is a healer, pathologist, herbalist, biochemist and naturalist, who immigrated from Honduras and who has committed his life to the service of helping people cure their diseases. In 1988, he took on the Attorney General of New York in a Supreme Court trial where he was being sued for false advertisement and practice without a license after placing ads in a number of newspapers, including the New York Post where he had announced: "Aids has been cured by the Usha Research Institute, and we specialize in cures for Sickle Cell, Lupus, Blindness, Herpes, Cancer, Als and others. Pre-trial, the judge had asked Dr. Sebi provide one witness per disease he had claimed to cure however when 77 in person witnesses joined him in court, the judge had no choice but to proclaim the Doctor NOT GUILTY on all accounts, proving he did in fact have the cure to all the diseases mentioned in the newspapers. Several celebrities have sought out healing through the Doctor including: Michael Jackson, Magic Johnson, Eddie Murphy, John Travolta and the deceased Lisa Left Eye Lopes who proclaims in the video: "I know a man who has been curing AIDS since 1987".. i want to inform the public how i was cured from ALS(MND) by Dr Sebi, i visited different hospital but they gave me list of drugs which is very expensive to treat the symptoms and never cured me. I was browsing through the Internet searching for remedy on ALS and i saw comment of people talking about how Dr Sebi cured them from ALS, CANCER, HERPES, DIABETES and so on... when i contacted him he gave me hope and send a Herbal medicine to me through courier service that i took and it seriously worked for me, am a free person now without problem, my ALS result came out negative. I pray for you Dr Sebi. Am fully cured. you can also get your self cured my friends if you really need my doctor help, you can reach him now: (drsebiherbalisthealinghome12@gmail . com) You are indeed a HERO!

Thu, July 7, 2016 @ 6:59 PM

283. Ron Hawk wrote:
I have, over the past twelve weeks received iron infusions.I can say that it helped me to have more energy.....but.....I am tortured by severe itching on my body.It is unmerciful to say the least.It may start out on my forearms....then to my back then to my belly and then to my lower legs.

I have used everything imaginable..How long will this last??????????my Wife purchased calming lotion,special soaps etc. but they just temporarily take care of it.benadryl helps me get through the night.

Please can someone out there on the planet help me?Is there anyone out there that experienced the same ??????

Thankyou and God bless you and everyone that posted on this site.

Mon, July 18, 2016 @ 2:05 PM

284. Silver wrote:
Dr. Pls am scared I had operation early in 2015 of anaemia and now I noticed there is another growth on the same spot I had operation on, now the growth is few month and I was told I was not suppose to have growth on the side in which I had the operation.
i think I have issues with my system, Dr.what do you think is the cause and what do you think I should do about it ?
Am on high blood pressure drugs for 15years and am 68 years.

Fri, July 29, 2016 @ 10:00 AM

285. Paola wrote:
I'm 45 and for the last 4 years have been getting iron infusions after each treatment I am sick ...they even give me drugs for reactions and side effects ....takes a week before nausea leaves me....I was regular with the transfusions until it became unavailable in Canada ...now I wait and my ferin is at 7 or less I have no idea what my hemoglobin is at ...but I can imagine as I am weak and so very tired ...I get dizzy all day and now the nausea has set in....I have a swallowing disorder so eating is not working ...the food I do eat is iron enriched but I am not absorbing it ....does anyone else have this ? The doctors think I am starving myself and I am not I eat well last two days not so much cause I feel so sick ....I've also been drinking the enrich drinks but they make my heart race and add to feeling sick ...my body is weak so I can't take much of anything ..it reacts....super frustrated....really depressed ...

Sat, July 30, 2016 @ 6:18 PM

286. Deborah wrote:
I have been diagnosed with low iron and my doctor said it was just 7%. I do get very tired. I am 67 years old. I eat lots of green leafy vegetables daily, I love beef liver and I eat this twice weekly and fish.
Please explain what a normal iron levels for a woman my age. Two years ago this happened and I had several iron injections and it worked for awhile but it is back again.
I need to know how to talk to doctors and how to ask the right questions. Can you help me.

Thu, August 18, 2016 @ 12:02 PM

287. ravenu_2006 wrote:
My 4 year old son has struggled with low iron since we first saw low hemoglobin when he was 1 year old. He started on iron supplement at that time. During the last 3 years it has been a roller coaster of low iron and increasing his iron supplement. He has signs that I can tell when his iron is starting to dip which is usually 3-4 months after they increase his supplement. He is now up to 75ml a day. He has had two upper and lower scopes done and all have showed no signs of Celiac or any other issue or bleeds. His last iron serum showed Iron at 22 (range 50-120), transferrin 196 (range 200-400), TIBC 245 (range 250-450) and saturation 9% (range 20-55). And those ranges were on 60ml of iron supplement. Anyone else had any similar experience? Iron deficiency that doesn't improve with iron therapy?

Mon, August 29, 2016 @ 8:27 AM

288. Rebecca Kingston wrote:
my wife was looking for IRS Instruction 1040 this month and located a document management site that hosts lots of fillable forms . If people are looking for IRS Instruction 1040 too , here's a http://goo.gl/xcf7Cr

Thu, September 1, 2016 @ 6:58 PM

289. Igor Marek wrote:
For all people suffering from iron deficiency, this way we would like to introduce our very unique mineral water from Slovakia which contains high volume of natural iron. Natural springs, where this mineral water originates from, are duly registered and certified by Ministry of Health of Slovakia as sources of healing mineral water. This water has been used very successfully since 1853 to treat anemia. Our doctor in Canada stated that about 90% of her iron deficient patients cannot tolerate supplements since they get all sort of problems. When she gave then this mineral water to her patients, everyone of them was OK and without any side effects. She stated that this is the best source of natural iron and very easily digestible. Just one 1.5L bottle provides for 147% of recommended daily intake of iron for women and over 200% for men. More information about our water can be found on www.korytnica.ca . This mineral water won award on World Exhibition in St Louis in 1904 already and has been imported to USA since then. The import stopped after WWII. We started now importing this mineral water to Canada and would like to introduce it also to people in USA, who are suffering from iron deficiency. Should anyone be interested, our contact details can be found on www.korytnica.ca

Mon, September 19, 2016 @ 3:27 PM

290. Mrs. Sulan wrote:
My father who is 87 years old is allergic to B12 and his heomoglobin is at 8. two weeks back it dropped to 6 and we had to give him blood transfusion.
i give him all the right veges and meat and liver but cannot jack up the heomoglobin level.
Could someone please advise how to brig the levels up without transfusion?

Wed, September 21, 2016 @ 10:03 AM

291. Linda wrote:
I have been suffering from chronic anemia for 8 years. I have had several series of iron infusions over the years. I get 5 infusions over the course of 5 weeks when my hemoglobin and ferritin numbers are below normal range (I am tested monthly). I have found them to be of great help. I usually start feeling better after the 3rd iinfusion of Venofer. First I went the oral route of taking pills for a year (Feramax, double dose) but my numbers were getting worse not better hence the infusions.. The longest my numbers stayed in the normal range has been a year. I felt like a different person! I am just finishing up with another round of 5 infusions and starting to feel more energetic after the 3rd infusion with 2 more to go. I am posting to give hope to others. Good luck!

Sat, September 24, 2016 @ 9:25 AM

292. Vanessa wrote:
I have gone from healthy to feeling unwell literally overnight, since 7 months ago. Symptoms of internal body tremors, low energy, heart palpitations and now in the last 2 months discomfort in the chest kind of a heaviness and a cough. I have considered myself health in that way of diet and exercise. I have been to many doctors and had many ER visits. Everyone seems to think its anxiety, even after having an iron studies done and knowing the results. My iron was normal but my Ferritin was at 6 and my Iron Saturations were low. There are days that I feel like I am dying and yes there may be anxiety. I have been on Feramax 150mg 3 times a day for 3 months. My naturopath doctor has me on a whole bunch of supplements as well for the past month. I don't seem to be getting any better and feel like maybe its not the ferritin levels. However, I do suffer from extremely heavy periods. This time period has coincided with when I went off the birth control pill. I went back on it in 3 months ago to control bleeding. Just concerned about they symptoms and the length of time it seems to be taking. Does anyone else have these tremors and chest discomfort/cough due to low ferritin or iron? How long does it take to feel some reprive from iron supplementation.

Wed, October 19, 2016 @ 5:37 PM

293. Laureen wrote:
Read my story. Am happy to share my testimony! The great man who cures all known diseases, Dr Sebi is a healer, pathologist, herbalist, biochemist and naturalist, who immigrated from Honduras and who has committed his life to the service of helping people cure their diseases. In 1988, he took on the Attorney General of New York in a Supreme Court trial where he was being sued for false advertisement and practice without a license after placing ads in a number of newspapers, including the New York Post where he had announced: “Aids has been cured by the Usha Research Institute, and we specialize in cures for Sickle Cell, Lupus, Blindness, Herpes, Cancer, Als and others. Pre-trial, the judge had asked Dr. Sebi provide one witness per disease he had claimed to cure however when 77 in person witnesses joined him in court, the judge had no choice but to proclaim the Doctor NOT GUILTY on all accounts, proving he did in fact have the cure to all the diseases mentioned in the newspapers. Several celebrities have sought out healing through the Doctor including: Michael Jackson, Magic Johnson, Eddie Murphy, John Travolta and the deceased Lisa Left Eye Lopes who proclaims in the video: “I know a man who has been curing AIDS since 1987”.. i want to inform the public how i was cured from ALS(MND) by Dr Sebi, i visited different hospital but they gave me list of drugs which is very expensive to treat the symptoms and never cured me. I was browsing through the Internet searching for remedy on ALS and i saw comment of people talking about how Dr Sebi cured them from ALS, CANCER, HERPES, DIABETES and so on… when i contacted him he gave me hope and send a Herbal medicine to me through courier service that i took and it seriously worked for me, am a free person now without problem, my ALS result came out negative. I pray for you Dr Sebi. Am fully cured. you can also get your self cured my friends if you really need my doctor help, you can reach him now: (drsebiherbalisthealinghome12@gmail. com) You are indeed a HERO!

Sun, November 6, 2016 @ 2:02 AM

294. Christine wrote:
Hi - maybe someone can help me.
In 2011 my ferritin level was 7. I was prescribed Yaz (so I could skip my period) and cellafer. I took this but it never really helped.

In July this year, after being sick every month of the year and on antibiotics, I went to have my vocal chords checked because I sing and antibiotics ar ereally bad for you. OK, so my ferritin level was 4.
I went for an iron transfusion (I dont know why no one has done this for me before because I complain about being tired ALL THE TIME). After that the doctor wanted my ferritin to be 40. I was put on Ferris Forte 2x a day and skipped my period for three months. After the transfusion my ferritin level went up to 28.
Last week I started feeling dizzy again and tired all the time and I dont want to get up out of bed.

I tested my ferritin again = it is now down from 28 to 17.

I am just wondering= HOW? I am on pills, I eat well etc etc. Where is it going? What doctor can I see? I was at a specialist. A hematologist? What else?

Please help

Wed, November 9, 2016 @ 4:38 AM

295. Laurie wrote:
I've got a seemingly unusual Iron reading. My Serum Iron is below the normal range but my Ferritin is always very much above normal. Not dangerously so. but as I try to raise my Serum Iron my Ferritin, the stores, go up but not my serum iron. I've suffered from chronic fatigue for many years probably as a result. It seems that the Transferrin is not doing its job, I wonder. Any clues anybody?

Sat, November 12, 2016 @ 2:57 PM

296. Becca wrote:
Really need some advice, im in my Mid 20s, but literarlly everytime I stand or walk my heart just races and races... There has been times where I have felt extremly faint, one time I did black out, as my heart was racing so fast and my body tempature shot up suddenly, in seconds I couldnt feel my hands or feet as they were going numb and tingling. My ears started to ring I couldnt hear anything and the world closed like a tunnel and went black, complete weakness took over and I couldnt see and feel over in the street... then woke up with some people around me.... Was extremly embrassed and tried to pretend I was better and just slowly walked away....

I have gone to several docters and they all told me I most likely just have anxiety problems and it will take A LOT OF MONEY and tests to rule out other things... But that I should go to therapy............

Recently I went in and picked out my own blood tests.
This is my results I purposely took these when my iron would be the highest so not close to period.

Iron 3.3
Ferritiin 6.2
Hemoglobin 113
Hematocrit 35%
MCH 26
Platelets 308
MCV 83%
lymphocyte ratio 49%
neutrophil ratio 37%
D 24.9
B 156

Any help or feedback is really appreciated..
Ive had this getting worse for some many years and my heart is just racing and its so hard to breath for me even when just walking up stairs ):
Doing any tasks take a ton of energy.. I am overly emotional lately and can cry easily when I never used to be that way ):

Thu, November 17, 2016 @ 6:48 AM

297. Hareem 90 wrote:
I hv been diagnosed fibroadenoma of 7mm two months before.I hv dark circles,my dermatologist did serum ferratin.My serum ferratin value is just 3 n he prescribed iron supplement.Now, am worry if I ll take iron supplement it ll enhance breast benign disease or malignancy.Now what to do for this low serum ferratin n fibroadenoma???Can anyone guide me in this.

Mon, December 5, 2016 @ 1:01 PM

298. sueconaghan wrote:
My sister who is 68 yrs old has severe anemia for the last 3 years. She has had several iron infusions as well as blood transfusion. She has had her heart and lungs checked as well as several tests to see if she is bleeding in her stomach or colon. She just got back from the Mayo Clinic who did all the tests again and they could not find where the blood loss is coming from. They said she needed to keep on top of the iron infusions to get her hemoglobin reading to 10 or more. When her levels drop she has trouble breathing and even walking a short distance she is huffing and puffing.
I have done a lot of research about anemia. I have read that a lot of different drugs such as proton pump inhibitors can prevent the absorption of iron into the blood because they prevent acid production and your stomach needs acid to digest food where the nutrients can be absorb in your body. The tests that have been done on this are inconclusive but there have been people that got off the proton pump inhibitors and their iron levels returned to normal. I am just hoping if anyone reads this they may want to check out any drugs they are taking that could prevent iron from being absorbed in the intestines. When all the medical tests have been done to rule out disease and the doctors are scratching their heads, it maybe time to check out what drugs you are taking and do some research. You have nothing to lose and maybe everything to gain. Good luck to everyone.

Tue, December 6, 2016 @ 6:59 PM

299. J.c. wrote:
I don't know if anyone else can relate to this but if you can I would love some answers...
I have been struggling with low ferritin levels for 6 years since I had my first child. My hemoglobin got really low too after my second child and about a year and a half ago I had 8 iron infusions. I had an anaphylactic reaction to the first and felt really ill with the rest. I slowly started to feel better and my heart palpitations went away. Then recently I had blood work done and my iron serum is high. The binding capacity is too low and the saturation level is too high. My hemoglobin is ok but my ferritin levels are low. This doesn't make any sense to me. I feel exhausted, the heart palpitations are back and I feel cold all the time and dont want to eat. Has anyone else had similar results?

Sun, December 11, 2016 @ 2:10 PM

300. malinda jane wrote:
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Sat, January 21, 2017 @ 10:35 AM

301. wilson kita joyce wrote:

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hiv/aids,perkinsons disease, ALS,CANCERS,HERPES. contact him with his email via droziherbalcurehome@gmail.com or whatsapp him through the following contact on +2348060858046

Sun, January 22, 2017 @ 8:10 AM

302. wilson kita joyce wrote:

MY NAME IS WILSON KITA JOYCE FROM THE UNITED STATE OF AMERICA,I AM USING THIS GREAT OPPORTUNITY TO SAVE LIFE BY SHARING MY TESTIMONY THAT THERE IS A CURE FOR HIV/AIDS BECAUSE I AM A LIVING TESTIMONY,I SUFFERED FOR HIV/AIDS FOR GOOD ONE YEAR AND TWO MONTHS AFTER LOOSING HOPE THAT I CAN NEVER GET THE CURE BEACAUSE THE DOCTORS SAID THERE IS NO CURE FOR IT,BUT THANKS BEEN TO THIS GREAT MAN CALLED DR OZI WHOM I READ A TESTIMONY ABOUT ON HOW HE CURED HIV/AIDS WITH HIS HERBAL MEDICINE,I NEVER BELIEVE THIS BUT I DECIDED TO CONTACT HIM THROUGH THE STATED EMAIL,(droziherbalcurehome@gmail.com) and he send to me a herbal medicine and ask me to drink and bath with the herbal medicine for one 3 weeks but to my greatest surprises, i went for a medical test after two weeks and my status was negetive till today i cant keep sharing this testimony please brothers and sisters there is a cure to hiv/aids, contact this man for what ever you are going through, what ever sickness you are suffering from, like
hiv/aids,perkinsons disease, ALS,CANCERS,HERPES. contact him with his email via droziherbalcurehome@gmail.com or whatsapp him through the following contact on +2348060858046

Fri, February 3, 2017 @ 4:36 AM

303. Ray Steffanus wrote:
I found out that in Sept. my iron level was 6.5 and in February it was 8. My doctor wants to send me for a G.I. and I thought this is pretty extreme. Isn't there an easier way to find out if anything is blocking the absorption? I'm on 325mg ferrous sulfate and just put myself on an iron rich diet. How long would it take to find out if this is working?

Mon, February 20, 2017 @ 9:29 AM

304. Ray Steffanus wrote:
I found out that in Sept. my iron level was 6.5 and in February it was 8. My doctor wants to send me for a G.I. and I thought this is pretty extreme. Isn't there an easier way to find out if anything is blocking the absorption? I'm on 325mg ferrous sulfate and just put myself on an iron rich diet. How long would it take to find out if this is working?

Mon, February 20, 2017 @ 9:32 AM

305. Ray Steffanus wrote:
I found out that in Sept. my iron level was 6.5 and in February it was 8. My doctor wants to send me for a G.I. and I thought this is pretty extreme. Isn't there an easier way to find out if anything is blocking the absorption? I'm on 325mg ferrous sulfate and just put myself on an iron rich diet. How long would it take to find out if this is working?

Mon, February 20, 2017 @ 9:33 AM

306. Stephanie wrote:
My iron level was at 3. I had 2 infusions done, tested again and it's only 4. Im exhausted, dizzy, and
cold all the time. Where is all my iron going?

Wed, March 1, 2017 @ 9:05 PM

307. CindyK wrote:

Have the doctors check all levels of thyroid function too. Thyroid stimulating hormone is the only one they normally check. T3 and t4 should also be checked as TSH can be completely normal and one of the others can be way off. My daughter's quit and she was near impossible to wake up!

I am currently fighting iron deficiency anemia. First infusion with iron sucrose yesterday. They say it takes a couple weeks, maybe longer, but I felt better last night already. Not normal, but I actually cleaned two rooms without needing to sit down. I have endometrial ablation in a week and a half...i can hardly wait to see if it gives me more energy! My great great grandma and mom both died at 52...i seriously wonder if it wasn't a direct result of being severely anemic. Ggm had a stroke and mom had a heart attack. Fingers crossed that we can stop the cycle of early deaths in my family!

Sat, March 18, 2017 @ 11:04 PM

308. Barbara wrote:
I have been extremely tired for months (likely more like years... after awhile it just becomes the new normal) and just had my labs done. They came back at MCV 73.8, Iron Sat 3%, Iron 17mcg, Ferritin 2mcg, HGB 8.1g/dl. I spoke to the doctor's nurse and he said he didn't think that it was low enough for a blood transfusion but I'm not so sure. This seems extremely low to me... I currently am not taking any iron supplements, they all make me nauseous. I'm not sure what the next step should be.

Tue, March 21, 2017 @ 5:04 PM

309. Daniel wrote:
Hi Guys, I'm helping a friend who's suffering from Anemia. Does anyone ever tried using cannabis as an alternative meds? I have read many articles suggesting highly concentrated cannabis oil can be effective for people suffering from Anemia. So far northern lights strain is on top of my list. I got it's details from http://www.ilovegrowingmarijuana.com/northern-lights/. Any help or personal testimonials is much appreciated. Thanks

Mon, March 27, 2017 @ 11:07 AM

310. Victoria C wrote:
Hi . For the past 11 yrs my ferritin has been 2-24 . Over the years fatigue, tired, cold, restless legs muscle and joint pain. Occasional low Hb- treated with short courses of ferrous gluconate until Hb improved .
Diagnosed underactive thyroide 2010.
Recently increased breathlessness palpitations and inability to exercise .
I've started ferrous gluconate again - Hb 106. Ferritin 4.7
My question is - why has no gp/endocrinologist / cardiologist ever batted an eye lid about ferritin - in fact actually dismissed its relevance at all!!! And can these symptoms be put down low ferritin but normal Hb?

Tue, March 28, 2017 @ 4:04 PM

311. kristy wrote:
My daughter is 24, she is tube fed, so she is on a formula diet.
She is having to have IV iron infusions every month. Her ferritin level will fall to 6 within a month. We have had a upper EDG, but would be too hard to have a colonoscopy. We have tried iron supplements, etc...
Any thoughts out there?

Wed, April 5, 2017 @ 11:56 AM

312. Cierra wrote:
EVERYONE. YOU'RE COPPER DEFICIENT. Copper and Iron compete. You most likely have Iron hiding away and you NEED Copper to MAKE IT BIOAVAILABLE. I've suffer from Iron deficiency all my life. Any Iron supplement, pill or liquid I feel HEAVY, my body becomes a TON of bricks. I feel so horribly fatigued on Iron supplements. Add 4mg-9mg of Copper and you will see all the fatigue and symptoms go away. There are OTHER minerals not just Iron- that play a role in Anemia. I was even tested for Low ferritin and Iron. Trust me. Google Copper Deficiency Anemia. Other minerals that play a role are Cobalt. Minerals compete, its about balancing them and not HYPER focusing on what were told from a doctor. Be your own doctor, educate yourself. Another mineral that competes with Iron is Calcium. Start connecting dots, don't rely on outside sources, you need to know things yourself for YOU, not money!

Thu, April 6, 2017 @ 4:02 AM

313. Cierra wrote:
Copper Deficiency Anemia - http://www.ithyroid.com/anemia.htm I have tons of bookmarks on this matter. Sites, forums, all. This is just a new one I came across though.


Thu, April 6, 2017 @ 4:20 AM

314. Ter wrote:
I have recently been diagnosed with iron deficient anemia, moderate ferratin at 7 my dr has prescribed ferrous fumarate I started taking them Monday today is Thursday I feel worse I just want to stay in bed and I cry when someone asks me about it. I called my dr and she advised I should not be having these symptoms that I managed for at least a year to function can anyone share if they have had a similar reaction or if there is something more wrong with me..

Thu, April 6, 2017 @ 3:54 PM

315. Rakecia wrote:
I'm only 17 years old and Today I got my Ferrous Gluconate the green pills.. I knew I had low Iron cause I was always Breathless and Dizzy.. It's 6:15Pm is it okay for me to take a pill now and before I go to bed? Then start taking them Once in the morning before breakfast and before supper?

Tue, May 2, 2017 @ 6:15 PM

316. James Eller wrote:
I am a 77 year old male. I have had mild iron deficiency anemia(IDA) for 4 years. My RBC,HGB,HCT and ferritin levels have been below the reference level for that long. I am discusted at my doctor not telling me until recently that I have IDA. I have complained about my low ferritin levels but my doctor said it was not low enough to be concerned. I finally got him to do a CBC test that revealed the low RBC,HGB and HCT levels. He sent me to a hemotologist who recommended an iron supplement. I take a liquid iron on an empty stomach between meals no closer than 1.5 hrs from a meal. I take it with apple cider vinegar, 1500 mg of Vit C and water. I have been taking it for 25 days and my Iron Panel says my Iron is going up. ie TIBC,Iron Serum and Iron Saturation. My Ferritin has not budged. It is still at 26. I understand that the first sign of IDA is low ferritin. I also understand that hypothyroidism will not go away unless the IDA goes away. Also I have found out that a high ferritin can be caused by inflammation. You can still be low in ferritin if you have inflammation and a good or high ferritin reading.
I will be going to do a colonoscopy and endoscopy to check for bleeding. The doctor cannot believe that a male would get anemia without bleeding.
I would like to tell the person who was taking something to lower stomach acid. You need stomach acid to digest iron and other vitamins and minerals. Often acid indigestion is actually caused by too little acid. I take 5 betaineHCL tablets at every meal to give me enough acid. Some people have H-pylori or don't have enough acid producing cells in the stomach.

Sun, May 14, 2017 @ 6:20 PM

317. Ernie wrote:
Hi, and in relation to (#31, Kim), re: Celiac Disease and Low-Iron; I am glad that your husband was able to get diagnosed of Celiac disease, and hopefully with the GF diet, his state of low-iron will improve. I myself have Celiac disease - was diagnosed 20 years ago (through biopsy only; the tTGA blood test did not show Celiac positive in my case) - and 2 of my siblings have it as well. 1 of them only found out she had it b/c her blood tests came back with a Ferritin level of 0, and b/c of family history they did testing (to come to her concluded) Celiac diagnoses.
Since she has been on a GF diet - over 6 months now - her Ferritin (iron store) levels have improved. So that is good news and hope for your husband that's in a similar boat/situation.

For myself, who has been on a STRICT GF diet since diagnoses 20 years ago, I have low Ferritin levels; so unfortunately, a GF diet does not help all with Celiac disease - if that is thought to be your cause. *I have been re-tested and my villi and intestines are in good shape now. I was told ~ 5 years ago I had low levels but was not encouraged to take supplements or infusions; nothing was encouraged to be done at that point. Within the last couple of weeks however, my energy (and some other low-iron symptoms the rest have described above) was very low and I was very out of sorts. Upon going to a walk in clinic with a different physician, a quick blood test said my levels were quite low, and iron supplement recommended right away. I am yet to try the supplements, but am hopeful that they will absorb and help my symptoms. Fingers crossed!! :). Otherwise, I will talk to my doc about transfusion; but hopefully that will not be needed. We shall see. At least someone didn't say again, you've really got nothing to worry about...very annoying and unhelpful that had been.

Mon, May 22, 2017 @ 10:07 AM

318. Lisa wrote:
I wanted to thank you for this wonderful work priest. After years of trying to conceive and a failed IVF and a failed FET, I ordered your Pregnancy Miracle from your website http://iyareyarespellstemple.webs .com/ . According to my infertility doctor it was "very unlikely" that I could be pregnant with my own eggs. But here I am, pregnant for the first time in life. I got pregnant naturally just 3 weeks after my failed FET and after using the pregnancy herbs you sent to me. I am now 3 month pregnant. I am spreading this miracle story to whomever I meet and who suffers from infertility. Kind regards and thank you priest for everything

Wed, June 14, 2017 @ 9:14 PM

319. Jae wrote:
Try Megafood's blood builder... Has done wonders for me, my sister, daughter, and friends. I have been anemic for years. Symptoms are low energy, memory issues, hair loss, joint pain, etc. Blood builder, since taking them, has done wonders for me. It's a whole food supplement, so no upset stomach or constipation and can take on an empty stomach or with food. I take a higher dose during menstruation. Hope this helps someone the way it's helped me. Such a simple change saved me money and corrected health issues you wouldn't think were related.

Mon, June 19, 2017 @ 6:00 AM

320. judith wrote:
I am testifying of how i got cured of amyotrophic lateral sclerosis [ALS], I got infected with als disease the year 2015,i visited several hospitals, spiritualists and pastors for cure but all to no avail, The world was gradually crushing down on me, my son searched google and read about possible ways to get cured. and he saw a post in a health forum about a herbal spell doctor called DR OSEWE who cure all kind of deadly diseases including HIV AIDS, HERPES TYPE 1 AND 2, MND, Epilepsy, Leukemia, Asthma, Cancer, Gonorrhea e.t.c, at first i got shocked when my son told me about it,but when i read about the doctor myself, i thought of giving him a try because i was really desperate of getting cured. to cut the long story short, when we contacted this herbal spell doctor via email,he prepared a herbal spell portion and sent it to me via courier service, when i received this herbal spell portion, he gave me step by step instructions on how to apply them, so i did without missing any of the step. To my utmost surprise i was cured of this deadly disease within 2 month and some days, I am now ALS Negative (-) all thanks to doctor OSEWE, he is indeed a God sent. you can also contact him at oseweagbonifo@gmail.com

Wed, July 5, 2017 @ 11:01 AM

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Sat, August 19, 2017 @ 7:04 AM

322. Karen wrote:
I am not sure what is going on. I am an active 48 year old. I had blood work done and my hemoglobin returned 7.3. I started taking 65mg Iron Supplements then. 5 days later, I felt so much better, I was blown away at how much better I felt. I took another blood test and my Hemoglobin is now at 7.0 and my Ferritin is at 5. I don't know what this means and/or if I need to be worried. My fecal was clear. Can anyone advise?

Fri, August 25, 2017 @ 6:02 PM

323. Pushap deep singh wrote:
Hi everybody.
I recently got my CBC and found that my haemoglobin is 12.8gm% and RBC count is 5.05×10^5/mm^3
So anybody can tell me what's the problem of low haemoglobin and how to cure if any?
Thank you

Sat, October 14, 2017 @ 10:40 AM

324. MNichola wrote:
Hi there; this is the first time ever that I contribute to a blog, but I would like to understand my condition better.
I have low ferritin and normal haemoglobin. I have had this condition for about 30 years (early 20's)
I have done every test under the sun. So my whole digestive system has been checked inside out and there is no reason for me to lose this much iron. I don't seem to take up any iron orally and the only thing that works at times is to have a transfusion.
I seem to be sensitive to wheat. I go red and heartburn. Could the inflammatory reaction I get when I eat bread cause this iron deficiency?
I suffer from tiredness, depression, weakness, dizziness, restless legs etc.

Sun, November 19, 2017 @ 10:45 AM

325. Ali wrote:
Hello! So today I received my blood test results. It seems that I have so little iron in my blood that it is actually undetectable. Meanwhile, my hemoglobin is within the normal range. How can this be? Is the test wrong?

My doctor has reccommended iron infusions as soon as possible and supplements, but should I request a secondary blood test to make sure this is right?


Wed, January 17, 2018 @ 10:48 PM

326. helena alfred wrote:
Hi everyone,i am Helena Alfred from uk,work with the ministry of finance.I am shearing this testimony because it's a task and promise from me to the world at large because i have gotten a solution to the problem i have been passing through for six(6) good months.
My man left home for his mistress and i was left alone without a man to nourish my urge.Tried all sort of help i could but to no avail until i came across a testimony of a lady that was passing through same stress i was into and she got her positive result with the help of this great woman(Mama Kalaki),i quickly contacted her and she cast a spell that brought my man to me that same day begging me to forgive him.She is real and plain,contact her on: mama.kalakisolutiontemple@yahoo.com or https://mamakalakisolution.wixsite.com/spell ,call her now on: +2349069347158...

Thu, January 18, 2018 @ 7:59 PM

327. Patsy wrote:
I am low ferritin/ hemoglobin also very low iron saturation I take 3 324 mg of ferrous sulfate a day last blood work showed some minor improvement in levels, but I have noticed when my levels are low or drop my BP goes up high.like this past weekend I ran out of my iron meds, after two days I was back to being weak and lifeless also BP went up and I know people are going to think I am crazy, but I'm serious my legs get so hot my husband said to hot to touch and he meant really hot being serious, why would this happen I cant hold my legs still the ache and burn. anyone have answers or similar symptoms thanks Patsy

Mon, January 22, 2018 @ 2:54 PM

328. Rhema wrote:
Hi my name is Rhema and I am only 15. My iron is extremely low and the doctor said I need an infusion as soon as possible. No one in my family has ever had this done so I'm a little scared. I just want to know if because I am younger it will have a different effect on me??

Mon, January 29, 2018 @ 7:05 PM

329. Rhema wrote:
Hi my name is Rhema and I am only 15. My iron is extremely low (7) and the doctor said I need an infusion as soon as possible. No one in my family has ever had this done so I'm a little scared. I just want to know if because I am younger it will have a different effect on me??

Mon, January 29, 2018 @ 7:09 PM

330. MaryC wrote:
Folks - I've read your emails over the years and many of you sound like me. I have a low ferritin, but other levels are "within range", but low. I've been lethargic and dizzy, I have Hashimoto's (thyroid condition) for which I take Synthroid, GERD, skin problems, joint problems (costochondritis, neck inflammation, and calcification of the shoulder), I'm cold all the time, my hair falls out periodically, I eat iron foods, I take iron with vitamin C and my levels drop again, I stay away from milk and tea/caffeine, etc..... but I NEVER heard of chronic disease anemia. NO other website or doctor has ever mentioned this, and it TOTALLY describes what I've been going through. I hope it helps at least one of you out there. It opened my eyes and I hope it helps you. God bless and keep you all.


Fri, February 2, 2018 @ 3:30 PM

331. Pals wrote:
i had ferinject transfusion 2 days ago and i could not sleep that night . My lower back was so painful 2 days later the pain has not gone away . sleeping walking sitting does not mke it better . has anyone experienced this before . How can i get rid of this pain

Sat, February 10, 2018 @ 5:26 AM

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Tue, February 13, 2018 @ 10:39 AM

333. Michelle wrote:
Hello, I'm looking for someone who may be in a similar situation. I had a duodenal switch surgery in April of 2015, no complications and have had amazing weight loss and maintenance. However, over the past two years my hemoglobin (10.3), hematocrit (31), RBC (3.4) and ferratin levels (5) have been tanking, along with my Vitamin A (23) and D (20) to add insult to injury my B12 is over 2000 (and I don't take any additional supplements). A well known side effect of this type of surgery is malabsorption. I have tried several different OTC iron supplements but my numbers continue to slip.

While it hasn't been specifically discussed at any of my appointment (yet) I fear IV or injections are in my future. This scares the daylights out of me because of the side effects as well as my understanding is it is not a pleasant experience in the least.

Has anyone else experienced this type of malabsorption? Are there prescription supplements or will the fact that I'm not absorbing yield them useless as well? Are there any liquid alternatives (thinking something that absorbs more readily). I already try to maintain an iron rich diet with beef products and lentils. Any other suggestions out there?

Thu, February 15, 2018 @ 12:37 PM

334. Michelle wrote:
I should clarify I don't take additional vitamin B12 supplements. I do take a bariatric surgery specific multi-vitamin from Celebrate that is high in ADEK, as well as an Iron +C 60mg Chew, Dry A, and vitamin D sublingual daily.

Thu, February 15, 2018 @ 1:50 PM

335. Neicey wrote:
#40 Dylmansmom try test for hypothyroidism

Thu, February 15, 2018 @ 2:10 PM

336. Neicey wrote:
#40 Dylmansmom try test for hypothyroidism

Thu, February 15, 2018 @ 2:11 PM

337. Michelle wrote:
I have hypothyroidism that is currently being treated, however, my dosing is difficult due to the malabsortive nature of the surgery. I'm currently on 240mg of Armour (Thyroid), I've done, Synthroid, Levoxyl and Naturethyroid.

Thu, February 15, 2018 @ 3:52 PM

338. Michelle wrote:
I've had hypothyroidism for years that was well managed until shortly before my surgery. My dosing is difficult due to the malabsortive nature of the surgery. I'm currently on 240mg of Armour (Thyroid), I've done, Synthroid, Levoxyl and Naturethyroid.

Thu, February 15, 2018 @ 3:53 PM

339. Vickie wrote:
my daughter supposedly has nmo or devic disease. She has had a couple of I.v Iron large doses.. Although her iron levels are major high she is still fatigued out of this world.. Her body is storing the iron somewhere, but where.. She has been to every doctor known to man, but havn't found an answer to where the body is storing the iron.. Does anyone have the same issue or an answer.. Yes she has been to a hematologist..

Mon, February 19, 2018 @ 12:08 AM

340. eddie wrote:
I have been suffering from (HERPES) disease for the last four years and had constant pain, especially in my knees. During the first year,I had faith in God that i would be healed someday.This disease started circulate all over my body and i have been taking treatment from my doctor, few weeks ago i came on search on the internet if i could get any information concerning the prevention of this disease, on my search i saw a testimony of someone who has been healed from (Hepatitis B and Cancer) by this Man DR Joel and she also gave the email address of this man and advise we should contact him for any sickness that he would be of help, so i wrote to DR Joel telling him about my (HERPES Virus) he told me not to worry that i was going to be cured!! hmm i never believed it,, well after all the procedures and remedy given to me by this man few weeks later i started experiencing changes all over me as the DR assured me that i have cured,after some time i went to my doctor to confirmed if i have be finally healed behold it was TRUE, So friends my advise is if you have such sickness or any other at all you can email DR Joel on drjoelhome@gmail.comsir i am indeed grateful for the help i will forever recommend you to my friends!!! with your lovely Email Address drjoelhome@gmail.com or you can also call him on this number +2349038503545

and he cure the following virus

Sat, February 24, 2018 @ 4:35 PM

341. wrote:
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Sun, March 4, 2018 @ 11:00 AM

342. Stephine Cruz wrote:
I have being suffering from a dangerous disease called HERPES for a very long time now, And ever since then i have being on treatment but i notice that everything was becoming worst, which make me so confused and don't even know what to do anymore, and i was always seeing my self going down, then i knew that there was no hope for me anymore. But all thanks to God that push me to go on a search on the internet where i saw series of testimonies about Dr.Ezra and the wonderful work his herbal medicine have being doing for people. with all the amazing testimonies i saw on the internet i decided to give him a trial, then i contacted him and he assure me that within 3 to 4 weeks of taking his herbal medicine that i will be well again. Then i started taking the medicine he sent to me. But to my greatest surprise i saw my self coming back to life, and when i finished the medicine as he instructed me, i went for a medical checkup and my result came out negative i couldn't believe my eyes. Dr.Ezra you are indeed a great and powerful herbalist. I cannot thank you enough for bringing me back to life. You can Get to Dr Ezra on this Email Address: drezraherbalhome@gmail.com or message him on WhatsApp on this Tel.NO: +2348116755255. During my communication with him he said he can cure all manners of disease like:

Cerebtospinal Meingitis
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Preterm Birth Complications
Diabetes Mellitus
Diarrheal Disease
Lower Respiratory Infections (LRI)
Coronary Artery Disease (CAD).

Sat, March 10, 2018 @ 10:19 AM

343. Shellie Johnson-Hood wrote:
Hi everyone, I have suffered with low hemoglobin and Ferritin, but diagnosis was not addressed for some of my numbers were boderline low. I have since learned Feritin is your iron stores in your organs as a protein, which is the important number for it is the most accurate reading for low iron. If ferritin is high you might have iron over load, symptoms are very much the same, this can become very serious. If you have low Hemoglobin, but high ferritin it could be a sign of chronic disease and not just low iron. If ferritin is low and nothing else it's usually diet related, but not always. I finally was so frustrated I did extensive research and started b12 injections which greatly alleviated my symptoms. B12, folic acid, and other b vitamins aid in the synthesis of iron and oxygen and cell rejuvination. Also b12 will not build up in system like other b vitamins so safe to take even if your levels are normal. After all the research and personal experience I feel the b12 assisted the iron and hemaglobin while my iron levels are being elevated. If you have high to normal Hemaglobin, ferritin, b12, folic acid, and other Bs made need to be tested. It is synergistic and if your levels stay low for long periods of time, eventually lead to other levels being low. By the way ferritin 50 should be the cut off, not 40 or 20 like some doctors say!!! Many people are symptomatic at 50 and under!! I feel for so many women who suffer and medical practices don't take this seriously. I mean, yeah you probably are not deathly ill, but everyone who suffers with this says the same thing, YOU FEEL LIKE YOU ARE!! Also, thyroid can have an bearing on these levels, chronic disease, b12 deficiency (methylmalonic levels) internal bleeding, heavy menstration, diet, malabsorption, or genetic disorders, could be the culprit. Also, heavy menstration can lead to serious issues, so please take that as serious as any of the other serious possibilites. I wish each and everyone good luck and may God bless you in this journey.

Tue, April 17, 2018 @ 11:15 PM

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