Quick Resources

  Online Support Group & Forum
  Find Doctor / Treatment Center
  Helpful Forms & Charts
  Symptoms
  Therapies
  Diet / Iron Content In Foods
  Genetics

Iron Deficiency


Iron Deficiency

You can now purchase FeGGT LifePro™ to determine or confirm both your iron status and the adequacy of your natural antioxidant defenses by either clicking above or by going to our affiliated web site, HealtheIron.com

Per request this section will focus on iron deficiency, which can be acquired or inherited.

170 comments (Add your own)

1. polly wrote:
I believe I have anemia, but my blood work doesn't make sense. My main symptom is feeling cold, and it has got to the point where the circulation to my toes and fingers is cut off in response.

Other intermittent symptoms include chest pain, can't sleep because my heart is racing, constipation, and pain in the upper right abdomen. The medics have done front line tests and come up with nothing, except depression. Of course, I feel low, I don't feel particularly well a lot of the time.

My serum ferritin was 19, but this test was done on a day when I had swollen finger joints and then my whole immune system went into overdrive and I had to calm it down with antihistamine; does that mean my true level could be even lower?

When I started supplementing with iron, there was a dramatic improvement to how I felt - within 30 minutes of eating beef washed down with iron water, I suddenly got restored circulation in my toes which started to hurt as they warmed up again. I woke up the next morning feeling not just okay, but happy.

However, my hemoglobin reading is 15. What's going on? The symptoms match everything on your chart. But low ferritin and normal hemoglobin doesn't match with anything. Can the tests be wrong? I'm at my wits end with my doctor, who just wants to give me anti-depressants. Please help.

Sun, March 13, 2011 @ 4:30 PM

2. Lisa wrote:
I also have low ferritin with a normal hemoglobin. This is called iron deficiency and iron supplements and change in diet can boost your ferritin levels.
Your ferritin level may have been increased because of your inflamation.
You should probably go back on another day when you have no inflamation and have the test repeated to know for sure. The next stage after ferritin (iron stores) have been depleted is iron deficiency anemia where your red blood cells in the marrow are made smaller and therfore cannot carry as much oxygen.
My ferritin level is critical and I have many unpleasant symptoms everyday including depression, pain in joints, numbness in feet and hands, extremely painfull shooting pains in arms, legs and tougue (yes, my tongue) that wake me up at night, restless leg syndrome, extreme fatigue...and the llist goes on.
I got my doctor to agree to an iron infusion and I am looking forward to seeing how this will affect me.

Tue, March 15, 2011 @ 8:38 AM

3. Knowpeace wrote:
Hi Lisa, I have had several iron infusions. They help to ease some of your symptoms as your numbers get better, but that can take a little while. I am prone to allergic reactions, but did not have any. I lay in a recliner, the nurse offered a warm blanket :-), they set you up and you get your iron. I'd get a 'funny stomach' a couple hours after, but I didn't get sick. I just didn't want to eat. The next day I usually slept and watched tv because I'd ache. I have discovered that those symptoms likely had nothing to do with my infusions, but I'm sure you feel that way already because of your anemia. I wish you well. Ask questions, trust your nurse, and relax. It's not a bad experience.

Thu, April 7, 2011 @ 10:23 PM

4. Ronna Sneary wrote:
Hi Lisa, I have just started my first series of iron transfusions yesterday. I am iron deficient. My iron level is 4, my hemoglobin is 8, and my platelets 66. I agree with Knowpeace. The only side effects that I have experienced are swelling in the feet, ankles and hands, and not wanting to eat. I go for my second transfusion today. I know this will take awhile, but hopefully it will help me. I hope it helps you too!!!!

Fri, April 8, 2011 @ 8:35 AM

5. Pat O wrote:
Hi everyone. My name is Pat & I am 65 years old. I have spent all day researching causes of low ferritin levels and those searches have led me to this site. A brief history of my medical saga is that, although I was often sick as a child, after reaching puberty I was disgustingly healthy until the day after Thanksgiving in the year 2000. That Friday I woke up feeling like I'd been run over by a truck during the night & haven't had any long term improvements since. After the first 18 months I was dx'd with an auto-immune condition - Mixed Connective Tissue Disease with an overlap of lupus, scleroderma and sjogren's which was later changed to a definite Systemic Scleroderma diagnosis. Usually skin involvement is the first symptom but I have more of less skipped that part & gone right to organ involvement - esophagus motility, gerd and intestinal inflammation as well as some beginning pulmonary lung tissue hardening.However, overall, the autoimmune stuff has not been as bad as later developments. I next began having TIA's which led to discovery of, not one but two congenital heart abnormalities which were allowing clots to pass through the heart to the lungs & onto the brain. So, these holes were patched up by a fancy new procedure in 2004. Until 2006 I was doing ok with a lot of meds, diet, exercise etc. Then I started having neuro problems and after another 18 months of debilitating symptoms including horrible vision problems, falling over on my face in public places, & staggering around like a drunk & after 5 brain MRI's it was discovered I had a condition called Chiari I which is literally your brain falling out of your skull & pressing on your brain stem which can cause all sorts of really bad things to happen. This was also deemed "congenital" & I was lucky enough to have the one of the best neuro surgeons in the country & he corrected this with a really nasty surgery. Morph to Jan 2009 when I woke up feeling like the truck that hit me in 2000 had backed up over me again. Since then it's been one thing after another including (finally) extremely low ferritin, B12 & D levels BUT with all other blood work being within the "norms". My primary & rheumatologist both thought that I was probably having a GI bleed due to the scleroderma and NSAID use so went back to the GI doc for tests - all ok , then onto scans & MRI's to rule out any gyn cancers etc - again ok. So, my primary bascially put me on supplements including iron & after a few months the b12 & d were back to ok & the ferritin was up to 15 & she then discontinued that even though I was still feeling horrible. In the past year I've been dx'd with Polymyalgia Rheumatica and then Temporal Arteritis which is inflammation of the connective tissues and cranial arteries & have been up & down on high dose prednisone therapy with mixed results.
Thank you for sticking with me so far - that wasn't as brief as I intended - NOW, my questions......since Christmas my low energy level has been going farther down & this week I had my primary do a ferritin check & it came back as SIX!! She said to start iron supplements again but (again) had no explanation as to WHY this keeps happening - she even said to me that "extreme fatigue is not caused by low iron levels". I think this is an unacceptable answer & is mainly because she is as frustrated at this as I am but I'm done with this being a "patient" patient. I "think" it might by Amenia of Chronic Disease but might be Iron Deficiency Anemia instead & it sounds like treatment is different for each. Can anyone tell me what type of doctor I should see to get to the bottom of this?? Is it a Hemotologist? an Endocronologist? or someone else...??? Also, if you have any other advice for me regarding how to deal with this horrible fatigue - any type foods (I don't eat much red meat because it kills my stomach) but am not a vegetarian either. It's gotten so that I cannot exercise at all - walking down my driveway for the morning paper seems like a 5 mile run - & the lack of exercis is just making all of my autoimmune and inflammatory problems worse so I'm ready to try just about anything to get back to my version of normal.

Again, thanks for listening to my soap opera & any help will be much appreciated.

Pat

Sun, April 10, 2011 @ 12:00 AM

6. TOM G. wrote:
PAT.......DO A GOOGLE ON D- RIBOSE POWDER ............(SPECIAL VITAMIN FOR LOW ENERGY ON THE CELLULAR LEVEL)......HELPS MAKE ATP........GREAT STUFF FOR PEOPLE WITH AUTO-IMMUNE PROBLEMS SUCH AS FIBRO-MYALGIA, COLITIS AND POSSIBLY WHAT YOUR SUFFERING FROM......DO SOME RESEARCH AND YOU WILL BE AMAZED AT IT'S PROPERTIES.....I ORDERED SOME FOR MY WIFE ON AMAZON.COM, AFTER LISTENING TO A MEDICAL DOCTOR GIVING A SEMINAR ON ALTERNATIVE MEDICINE......HE SWEARS BY IT!......YOU TAKE TWO LEVEL TEASPOONS (5,000 MG) PER DAY.....USE WITH ANY DRINK YOU LIKE ........I BOUGHT (2) 8 OZ. BOTTLES FOR $41..........EACH BOTTLE IS GOOD FOR 22 SERVINGS.....WILL KEEP YOU POSTED ON THE RESULTS.....

Sun, April 10, 2011 @ 1:20 PM

7. Pat O wrote:
THANKS TOM!! I'll certainly give it a go..Hope this helps your wife & me too. I figure I spend so much money on useless tests that tell me what's not wrong that any money spent on something that just might help is money well spent!

Pat

Sun, April 10, 2011 @ 4:47 PM

8. Nancy wrote:
I have a B-12 and Iron defieiceny and recieve monthly B-12 injections and ferritin infusions as needed. I have developed some significant memory issues and wonder if this may be associated with the iron deficinies?

Sun, May 1, 2011 @ 5:35 PM

9. Faith wrote:
My doctor suspects mds altho 2 yrs ago marrow biopsy was normal. Have had severe id anemia 3 years or so. Several blood transfusions and iron infusions. Yesterday, received another 1000 mg iron infusion. (Ferritin was 3, hgb 8.) This lasts about 3-4 months. Also had the 250 mg infusions over several weeks last year. Also lasted about 3-4 months.
Doc is flumoxxed ... Have also had ,MANY tests that ruled out any internal bleeding. Any ideas?

Fri, May 6, 2011 @ 12:24 PM

10. TOM G. wrote:
COMMENT FOR PAT #7..........D-RIBOSE REALLY DID A NUMBER ON MY WIFE PAT........SHE HAS COMPLETED TAKING A BOTTLE OF THE POWDER THE PAST 3 WEEKS AND I CAN'T KEEP HER DOWN.......SHE HAS MORE ENERGY THAN A PUPPY 3 WEEKS OLD...........BESIDES WORKING OUT AT A GYM 3 TIMES A WEEK, SHE WALKS THE DOG TWICE DAILY, CLEANS HOUSE , COOKS AND SHOPS LIKE THERE IS NO TOMORROW......HOPE YOU TRIED IT AND GOT THE SAME RESULTS.......GOOD HEALTH, TOM G.

Tue, May 10, 2011 @ 2:13 PM

11. Faith wrote:
Update -- took an ambulance ride to ER last Thu. Had to get 2 units blood, spent a night in the hospital. Still a conundrum ... was fibby, shocky, unable to sit or stand ... Now after blood transfusion, I feel better. Still looking for clues about causes. Any ideas, anyone?

Sun, May 15, 2011 @ 6:32 PM

12. Mommy2boys wrote:
I was told, over a year ago, that I have iron deficiency. I have been on iron supplements ever since. My numbers keep falling and symptoms are worsening daily. My last iron level was 25 but hemoglobin has stayed within normal range (last taken on Wednesday June 8, 2011) . As of Wednesday of last week, I have been blacking out, dizzy, weak, feeling nauseated, completely exhausted, headache, and feel like my insides are always shaking. For the past few days I have been in tears and feeling completely helpless. I feel like there is something really wrong. Is all of this normal? Should I be worried that something else is wrong?

Sat, June 11, 2011 @ 2:56 PM

13. Kate wrote:
Hi Mommy, I have B12 and iron deficiency anemia. I take b12 injections every two weeks and 100 mg of iron per day. My iron and ferritin were really low and I felt what you are describing. That internal shaky feeling that made me think I was having constant anxiety (went away as my numbers got better). Wanting to cry all the time over nothing (went away as my numbers got better). I also get weak and feel nauseous often (still experiencing). Exhaustion, headaches both symptoms I was having as well (still have but less severe). As my iron, ferritin and B12 have gone up, most symptoms have all improved. I still have RSL and joint/body aches and am cold all of the time, especially my poor feet. Even when it's 90 degrees out, my feet are so cold! Keep after you doctor to get your numbers up. I think we forget what normal feels like but your doctor should be working with you to feel normal. Remove the symptoms by fixing or treating the cause- not the symptom.

Sat, June 18, 2011 @ 1:02 AM

14. Kate wrote:
I take 1000 mg of iron per day not 100. That was a typo.

Sat, June 18, 2011 @ 1:03 AM

15. Erin wrote:
I have been in the same place as Kate. Doctors can be less than helpful when it comes to iron and anemia symptoms. I have tried dozens of iron formulas and had a bad time with most of them. I have had good results with "gentle iron" by Solgar, 25mg tabs. I take two 25mg iron capsules in the am and 2 at noon and 2 in the pm. I take 400mg of Magnesium and 1000mg of Vitamin C with the iron. I also take a iron free high B vitamin multi-vitamin. I have not had significant change in HGB, HCT or other CBC numbers, but my ferritin went up a lot, 16 to 44. My iron sat and iron are still at 5 and 7, they never seem to improve, with anything. I do feel less joint pain, less RLS, less weepy, but I do still have headaches and fatigue. I would not take this much iron without my doctor's supervision and routinue iron labs, it could be unsafe or deadly for some people. Finally I am having procedures to check for GI bleeding. I am also at a loss for understanding why iron supplements aren't working as well as they should, and why I feel so rotten a lot of the time. So while I search and try to feel better I have had good luck with the gentle iron and the above combination of minerals and vitamins, it is not a cure, but it has been helpful for me. I also have a strict dairy free diet and keep a lighter weight. I hope this information may be helpful.

Fri, June 24, 2011 @ 10:51 AM

16. Julie wrote:
I have been trying to find out information about what the 'normal' recovery time for iron deficient anemia after receiving iron by iv should be. I had been mildly anemic for several years (and I have Sjogren's Sydrome and lupus like one of the people above) and tried oral iron but it didn't do anything. In February, my hemoglobin was 9.5 and hematocrit was 28.8. In May it was rechecked and hemoglobin was 8.9 and hematocrit was 27.7 and my iron level was 3 so my primary care doc sent me to a hematologist.
I have to be honest and say that I wasn't super impressed by his personality (he kind of dismissed what my husband and I said about symptoms) but I didn't want to wait to find someone else because I felt so crappy. I had five treatments over the course of 11 days (and had some of the stomach upset and aching joints that were mentioned but I was okay with it if it worked) and on the last day of treatment, my hemoglobin was 10 and my hematocrit was 31.4. Maybe I'm being unreasonable about my expectations but I was hoping that it would be higher. I have felt a little better since the treatments but I'm having trouble evaluating if it is the treatment or the fact that the school year is over and I'm not teaching 8 hours a day at the moment. I'm trying not to be whiney but fatigue and aches aren't something that you can show someone else so while everyone started out as sympathetic, they're not as much now.
I have been searching everywhere to find out what the rate of increase over the course of the treatment is generally but can't find anything. The hematologist told me that it would work because it didn't have to go through my digestive system but I want some actual specifics. i was diagnosed with lupus 15 years ago and everything that could be weird has been at one time or another but it's so frustrating to be patted on the head and told to go wait. If I had listened to that advice 15 years ago, I would still be diagnosed as 'depressed due to multiple miscarriages' rather than finding out that the miscarriages came from the lupus and that I would not carry to term without medical intervention. I've had two children since the diagnosis and feel to this day that I had every right to be depressed about losing children and still be able to say that something else wasn't right. I hate it when people look at a person and say, 'oh, she's depressed,' instead of 'well, I would probably be depressed too if I hurt everyday for 17 years' - it took two full years of pain, hospitalizations, kidney stones and other issues to force my insurance company into sending me for the tests that finally led to the lupus diagnosis.
Anyway, sorry for the rant. As odd as this may sound, it was sort of a relief to find something after days of searching and that other people are also having some difficulties but are still doing their best to live their lives. I wouldn't say I'm Miss Sunshine but when I'm not exhausted and hurting, I do love teaching, love my kids and doing stuff with them, and love being alive, sick or not. So if you got lost in my narrative - I'm trying to find a place where I can find out what rise in blood levels I can look for after 5 IV Iron treatments. The doctor is going to check 30 days after treatment which is the week of July 19. Quite honestly, since I don't really care for his bedside manner, I want to know what the numbers should be if mine are different.
If someone knows a good website where I can find more than generalities, I would appreciate it. Thanks!

Fri, June 24, 2011 @ 8:10 PM

17. Mommy2boys wrote:
Kate,
Thank you for responding. It is good to hear that I am not alone!

A quick update. I have seen a gynecologist and I will be going to pre-op the first week in July. I have by diagnosed DUB (dysfunctional uterine bleeding). Evidently I have such a heavy period that no matter how much iron I take, I lose too much blood every month for it to do any good. I have been taking only 50 mg of iron daily due to intense nausea. I have found that any more than that and I can't even eat that day or the next (I have spent hundreds of dollars on different kinds with no relief). I have started taking Emergen C everyday with my iron and that seems to give me a little more pep (not like I can go go go, but it helps get a couple loads of laundry done!).

Julie,
I completely understand where you are coming from. I have been fighting the exhaustion battle for almost two years. At first, my husband was very understanding. However, now it has turned out to be a huge burden on my entire family. Because my symptoms aren't visible (like scarring or bleeding would be) my family often forgets how rotten I really feel. Recently, friends have decided that I need to be seen for depression. I don't agree. I think that I am so down because I am sick. It is hard to be excited about things when you feel so bad. I can't wait to start feeling better on the inside and go back to enjoying life with my family!

Sat, June 25, 2011 @ 11:42 AM

18. Tanya wrote:
Hi. I went to my GP last week as I've been feeling very tired physically, and emotionally finding little things very hard to cope with for about 4 or 5 days each month at about the same time in my menstral cycle. My doctor gave me a blood test and wrote to me saying that my blood stores were low and that I should take one or two 200mg iron tablets a day for a few months. I've been taking two a day for a week and they are brilliant - I didn't realise how little energy I had and I'd just put my generally grumpy mood down to psychological issues. So - my question - as I think this is a problem related to blood loss and as my fatigue was noticably different at different times of the month, can a blood test that was taken when I was sort of ok be accurate - i.e. can my iron levels fluctuate every day or are they a pretty constant sort of thing? Also if they do fluctuate then It doesn't seem that sensible to stop taking the tablets after a few months if I'm still losing too much blood. Also (sorry) two tablets is double the dose of one - could I be taking too much iron? Thank you so much.

Fri, July 1, 2011 @ 11:05 AM

19. JG wrote:
My husband has had a number of health issues in the past couple of years. He was diagnosed with Type 2 Diabetes about 3 yrs ago. He lowered carbs & sugar in his diet, started exercising regularly, lost aoubt 45 lbs, got the diabetes & cholesterol levels into better range. But he has been placed on a lot of meds to control high blood pressure and cholestoral (3 different drugs for each), plus 1 med for the diabetes. About 2 yrs ago, he saw a nephrologist because our primary care doctor suspected his kidneys were being affected by the high blood pressure and diabetes. He was diagnosed in Stage 3 of Kidney Disease. Then 15 months ago, he began experiencing anxiety & panic attacks, also digestive problems with pain, pressure and discomfort in his stomach. In about a month he lost an additional 15 lbs., experienced extreme insomnia, and depression. About this same time the nephrologist told him his iron level was too low and the best way to improve it was iron infusions; he had 1 per week for 4 week. However, the other syptoms continued. After extensive tests to rule out gall bladder, colon problems, etc, and 2 trips to the emergency room, he saw a cardiologist. The cardiologist found 2 blockages in his main artery and placed 2 stents in the artery. The pain & discomfort improved immediately; however, due to the insomnia, depression, anxiety, etc, doctors had now added 3 more meds (1 for anxiety; 1 for depression, 1 for insomnia). The cardiologist added a blood thinner & increased his daily dose of aspirin from 81 mg to 325mg. Iron levels were within normal limits for 8-9 months after infusions. Now they are at record lows; all other numbers for cholesterol, high blood pressure, and diabetes are great, But he is now taking 11 prescription meds, aspirin, plus viatmins & supplements, and is scheduled for another 4 weeks of iron infusions. I'm concerned that possibly the medications and all the doctors are causing as many problems as they are helping. He now sees a primary care doctor, cardiologist, nephrologist & psychiatrist every 3-6 months each.

Sat, July 9, 2011 @ 11:16 AM

20. Dani wrote:
Hi poli
Test for hypothyroidism

Sat, July 9, 2011 @ 11:23 AM

21. Dani wrote:
Iron infusion iron gluconate x iron sucrose

After 2 iron infusions with ferric gluconate I had a infusion with iron sucrose.
NO COMPARISON!! With Ferric gluconate I had so many side effects ( nausea, cramps, diarrhea, malaise, extreme fatigue) iron sucrose: nothing at all!

Sat, July 9, 2011 @ 11:34 AM

22. Melanie wrote:
Hi Mommy2boys and Tanya. I had fatigue, no energy, low iron etc. most of my adult life. And it's so true--your family starts to get frustrated with you, because you don't "look" sick. After four children, I also had excessive monthly bleeding (thought it was "normal" perimenopause stuff!). My gynecologist performed a uterine ablation and it was like someone flipped the energy switch on! I also found out I have PMDD (think PMS multiplied by 1000!), which is being helped greatly by Cymbalta. I urge any woman with heavy menstrual bleeding and low energy/fatigue and low iron, Hb or ferritin levels to find a gynecologist who understands the connections between all of these things.

Mon, August 22, 2011 @ 10:29 AM

23. Melanie wrote:
Hi again. This time I am hoping someone can give me advice about my 15-yr old son. His entire life, he has had excessive sleep needs. He will sleep 12 hours a night, be exhausted all day, nap for 2-3 hours at various times during the day and still be grouchy, and then go to bed and fall asleep right away. Until puberty, he was also chubby, even though his diet was (and still is) very good. For the past 6 years, he has seen numerous doctors at the best children's hospitals, had sleep studies, bloodwork, lung function tests, EKGs and psychoeducational testing. This is what the doctors came up with: excercise-induced asthma, GERD, periodic limb movement disorder (PLMD) and ADD. He has been on provigil, Adderall, clonidine, levo-dopa, asthma inhalers and Zantac at various times over the years. We would see temporary improvement, but he hated the side effects. We have discontinued all of the meds at this point. Finally, a doctor paid attention to the periodic limb movement disorder and had my son's ferritin levels checked (Before, bloodwork only checked for Hb and hematocrit and they were always normal). Sure enough, he has low ferritin (first result was 4 mcg/L). He went on iron supplements, and ferritin got up to 15 mcg/L after 3 mths. His PLMD improved minimally, based on sleep study results, and the fatigue and ADD seemed to be helped by Adderall. The doc said he was satisfied with this, but couldn't answer my question as to why his ferritin levels are low. So, here is my query. Is iron deficiency without anemia the main problem we should be investigating? Based on the hours of research I've done, it seems like many of his diagnoses could arise from his low ferritin levels. I'll throw in a few more things--he has always been a huge milk drinker (24+ oz a day), has occasional migraines and has had two dizzy/fainting spells in the last year. These three things can also be linked to iron storage or absorption problems. I would greatly appreciate any advice on what kind of doctor we should see (hematologist, neurologist...) and the next step we should take to unravel this increasingly frustrating situation for my son and us (he essentially is stumbling through life half asleep). Thank you!!

Mon, August 22, 2011 @ 11:05 AM

24. Mommy2boys wrote:
Melanie,

I want to say up front that I am not a Dr. and my medical knowledge is only based on experiences of my own or that of my family...

Having said that. We found out about 8 months ago, through our own investigation, that my nephew (12 years old) has a milk intolerance. He does not get really sick or have hives or anything like that. However, he stays tired, irritable, and we noticed that he was gaining weight around the middle. I have first hand knowledge of food allergies and suggested to my sister she put my nephew on a milk free diet. By milk free, I mean all milk... even the milk that is found in processed foods (to know if it is there for sure you have to learn how to read labels). Within about 4 weeks we noticed a huge difference in his weight and attitude. His waist line decreased and he wasn't so quick to snap. His attention level and tolerance level both increased. That left us with the sleep issue. We started him on melatonin (I would not suggest this without talking to a Dr. because melatonin could interfere with hormone levels and cause different issues).

I guess the one sure thing I would want to check is B Vitamin levels. Have they done that yet? Aside from that, I would try to see if it is something that he is eating. I know it sounds like a stretch, but you would be surprised how much things we eat can affect our bodies! The first think I would cut is milk. It takes about 2 weeks for milk to leave your systems so you will have to be milk free longer than 2 weeks to see any results. If you are interested in trying this, let me know... I have taken two kids and myself through this process and will help if you want.

As for what doctor to see next. Tough one! I have found that even when you go to the same kind of doctor, with the exact same symptoms, you can get a different diagnosis and a different action plan. For instance, my sister had been having major stomach issues. She went to 3 different GI docs. It wasn't until the last one that she found out she has a rare bacterial infection, Strep G.

Best of luck to you and your son!

Sun, August 28, 2011 @ 3:02 PM

25. Valerie wrote:
Hi! Wow I have been have huge revelations about my "low iron!" Doctors have told me for years to "just take iron pills, you're a little low on iron." Now at age 53, I find that I am not even absorbing all that iron in pill form. I also had no knowledge of all the foods that inhibit iron absorption until I found this website and did further research. No doctor ever even said you have anemia, it was "you're just a little low on iron." After another recent blood test I was told I had low iron and I finally challenged what I was hearing and said I take iron supplements regularly, how can this be? The NP finally did listen and did follow up iron tests. Turns out I had a very low iron binding factor-40 when it should be close to 100. I started having numb/cold feet a few years ago and thought it was neuropathy- it is not- it tested negative and my quadriceps fatigue after about an hour of walking. The last doctor said to just wear compression shorts and never checked blood issues. I am now ruling out spinal stenosis before I say this is from anemia. Even my NP who is following up to rule out other neurological causes didn't treat the anemia that seriously. I have had to find resources like this IDI website on my own. I did start taking liquid iron instead of pills and that helped a little to raise my numbers. Now I am watching all the foods that inhibit iron absorption. I now realize I have to demand followup treatment and testing and perhaps go to a hematologist. Any other ideas are welcomed.

Sun, September 11, 2011 @ 6:41 PM

26. Valerie wrote:
OOPs! I need to correct myself in my last post. My serum iron was only 40 and should be about 100. My iron binding factor was also low.

Mon, September 12, 2011 @ 5:59 PM

27. Elizabeth wrote:
Have just found this website. Could someone advise me if I have anemia. I am on ferrous sulphate 325mg twice daily prescribed by my consultant who has said that my serum ferritin is low. It is 26. Have been to see another consultant and was asked as to why I was taking iron supplements as my iron level was normal. I had been told by the consultant who prescribed the iron that it would take 6 to 12 months to restore my iron levels and to feel better. But now I am totally confused as to whether I should actually be taking iron supplement or not. Could someone please advise.

Thu, September 15, 2011 @ 6:26 AM

28. Marty wrote:
I have been under the care of a gastroenterologist since 1986 for Crohn's disease. I also have iron deficiency anemia. I had a bone marrow biopsy done and the biopsy showed "0" iron in the bone marrow. My hgb is slightly low, 10.6 as of last week but my ferritin level stays between 1-3. When my ferritin level is low, I have no energy, itch all over, extreme shortness of breath with exertion, and have extreme muscle & joint pains. I get iron infusions occasionally but only when my hgb. is below 9. My doctor states he doesn't want to give me iron infusions very often "because it could have serious side effects" I can't believe any side effects could be worse than the symptoms I'm having now. I can truthfully say the iron infusions make me feel like a different person. I get 3 doses in 3 days. After the 2nd infusion, I can tell a huge difference in my energy level. I told the doctor I'm going to start bootlegging the iron if he won't give it to me when I feel I need it. I highly recommend iron infusions!

Mon, September 19, 2011 @ 3:15 AM

29. candyt wrote:
I am a 64 yr old diagnosed with primary (genetic) hemochromatosis. Initial treatment was phlebotomy (only 2 1/2 units). Prior to that I also had been diagnosed with chronic Depression, Chronic Fatigue Syndrome and have had weight loss surgery. Fatigue has been a constant and it gets harder to manage My ferritin stays low and has gotten down to to 2 at one point. In the past I was treated with REPLIVA twice with good results, but it has been removed from the market (can't find much info on why) and I do not absorb oral iron. I have had iron infusions several times, but they don't make me feel much better. Has anyone else had similar problems?

Thu, September 29, 2011 @ 12:21 PM

30. Tania wrote:
I have had low ferritin for years. Levels of about 3-9. I have tried every supplement on the market, and my levels are not increasing ( I can imaging what they would be like if I had not taken any supplements). I feel like life is going by, and I can not catch it. I feel like I am going crazy. I am so tired. I am working out, but have gained no muscle in a year. My cardio is horrible. I even feel that certain fabrics on my skin are intolerable. The always wanting to move my legs is so frustrating as well. I am set to have four Venofer infusions, one every two weeks. Does anyone know how long it takes to work? I have two young children, and a husband who need me.

Wed, October 12, 2011 @ 4:53 PM

31. Kim wrote:
I don't see on here where people are being checked for Celiac Disease. This can be done with a simple blood test for transglutaninase Antibodies (tTGA) . This is the most common cause if you can't get your iron levels to increase with supplementation and there is no obvious cause found, i.e. bleeding. Quite possible to be an asymtomatic celiac. My husband has it and only had neurological symptoms, no gut symptoms at all! The villi in the small intestine are damaged and therefore cannot absorb the iron. Must be on a gluten free diet in order for the villi to grow back and takes strict adherence to the diet. It takes a few months for the villi to fully recover so be patient. Googleq celiac disease and anemia. Not many docs are very good at looking for this.

Wed, October 26, 2011 @ 4:26 PM

32. Marcie wrote:
Hello,
New to the site and very frustrated and looking for anwsers, which I guesseveryone is. Dx with Iron def March '10 but decided to try to boost myself with diet. Plus was sick of seeing physicians and having tests (had liposarcoma-no longer have to do frequent f/u-Hey). Anyway had low ferritin/iron levels but hct/hgb were low but never got to bad considering how low my ferritin level was (4). After failed oral started IV Iron & finished 8 infusions (they changed med 3x-once due to a reaction & the other was the change on formulary). Saw my doc who decided on maintenance therapy. I felt better as well and my blood actually was getting red instead of black. Prior to starting maintenance which is every other week Iron infusion for 10 wks I became symptomatic (extreme, very emotional, palpitations, very short of breath, etc.) & y blood was blood was black (noticed when IV was started) Saw the doc who put me back on every week for 10 wks of Iron infusions. Now that decision was made because I called & was concerned on how I felt because my labs were never different. Basically my hct/hgb in normal range as well as my iron/ferritin & TIBC. They could use a boost & be higher but were in normal range. The one value TIBC saturation % basically though has never changed (been very low-from 2 to an 8). I asked why & was told they do not know. My concern is whether they are missing something and maybe I have something else going on. Being worked up for heavy menstrual period for cause but nothing unusual. I am perimenopausal and bleeding slightly more but never really had any issues with my reproductive. Always heavy periods but not convinced that is the culprit. The GI workup is (-) so what else could it be and how do I get it worked up to know for sure. Any ideas or suggestions? Seeing a hematologist but thinking I should see someone else (different speciality) any ideas on that as well.
I thank you in advance for reading & possibly replying to this post. Best to you all n your own challenges with this iron dilemmia.
Marcie

Mon, November 7, 2011 @ 10:35 PM

33. Buffy wrote:
I've been experiencing symptoms of anemia but can't seem to get my doc to take me seriously. He says my numbers aren't low enough for me to be symptomatic. Fatigue, excess shedding of my hair, any basic exertion makes my heart race.... My RBC, HGB, and HCT seem to stay just under the normal range. My FE is 29, and percentage of saturation is 8. But my Ferritin is 51 which is in the normal range. Does anyone have any suggestions? Do these numbers indicate iron deficiency? My menstrual cycle is very regular, but extremely heavy.

Any advice would be appreciated.

Wed, November 9, 2011 @ 7:33 PM

34. Mary wrote:
Hi Buffy - my story is very similar to yours except my ferritin is 40 (still in the normal range). I've been reading that in order to stop shedding & regrow hair, your ferritin should be at least 70, and some information says it should be 100. I'm in the process of eating more iron-rich foods along with vitamin C - I'm desperate to feel better. I'll even eat liver if it makes things better! I am also going to ask my doctor about supplements.

Thu, November 10, 2011 @ 12:19 PM

35. Buffy wrote:
Mary, thanks for the info. I didn't know that about the ferritin level. I also make a point to eat iron rich foods, cook on cast iron (I read that trace minerals can be absorbed), and I also juice kale and spinach and drink wheat grass daily. I'll draw the line at liver though! I remember having to eat it as a child. Good luck to you.

Thu, November 10, 2011 @ 4:47 PM

36. Jen wrote:
I Have IDA as well as most of you and have recently been refereed to a hemotalagist. My blood work is way out of whack Serum Iron was 2 Ferritin 2.6 and Percent saturation of 7. They told me to change my supplement to Ferrus Gluconate and take it twice a day with vitamin c. I was curious if anyone knew what I should expect at the hemotologist visit as they assess me for Iron infusions and how that process would work. Also they told me I may need my bone marrow tested has anyone had that done?

Fri, December 30, 2011 @ 6:03 PM

37. Cindy wrote:
My anemia adventure started back in August 2011. I was feeling really crappy and was having real bad back pain. Went to the emergency room and found out during a bunch of blood work that I was mildly anemic. Followed up with my GP and after a barrage of more blood test was told it was chronic disease anemia. At this time my iron was normal everything out of wak was around my red blood counts and my protein was low. Its been down hill since, because of getting no true cause answers and getting more frustrated and worse by the day started seeing a hematologist by this time I had paid another visit to the ER this time for low potassium and magnesium and hemo was getting lower. I didn't have the energy to do anything started missing a lot of work I was tested for bleeding from my gastro specialist and I found out my beta carotenes were low. Kept getting worse started seeing the hema in November had an Iron infusion first week of December my ferritin serum jumped up to 470 so now its high but my saturation is still low and my hema came up to almost normal 11.8 but I have been fighting a lot of respiratory issues started with bronchitis and than christmas back at the ER and was diagnosed with pleurisy. Specialist retested my beta and now liver counts and my beta is down to 5 so my immunity is compromised right now. I was told 3 weeks from the infusion I would feel like a new woman. Still waiting for that new woman because she never showed up. My husband and I are very frustrated and need answers but so far nothing on what is causing this. As far as my blood work its always been pretty normal accept for by type II diabetes which its the one thing that is under control now. Imagine that! My mom had mylodisplasia syndrome and I am concerned this is the onslot of it but they have yet to do a bone marrow test and I am not quite sure why not. Never feel like I am asking the right questions.

Wed, January 4, 2012 @ 9:02 PM

38. wrote:
I am a 65 year old women who has been in petty good health until some blood tests revealed I was borderline iron deficient. After repeating the RBC a few months later, it was found I had a very low ferritin level--5--but was not yet anemic. My doctor said this was a precursore to anemia and I should get it checked out with a hematologist. I am looking for causes--I know bleeding somewhere in the body could be a cause but I had a colonoscopy in the last 5 years along with a endoscophy which diagnosed GERD and take an acid inhibitor everyday. It was after taking Omeprazle that my blood levels changed so I was wondering if anyone else had experience with a drug inhbiting acid might interfere with nutrient absorption.

Tue, January 17, 2012 @ 11:41 AM

39. Fayth wrote:
I've been dealing with various levels of ID since I was 12 years old. I have been on ferrous gluconate for years to deal with it. In spring 2011 my iron level was at a four fo my doc put me on FerraMax, easier to absorb, when I went back 2 months later my levels dropped to 2. She referred me to a heatologist and changed my oral iron Proferrin, supposedly the best oral iron there is. I got into a special combination clinic held at the Women's Health Centre here, where I am now seeing a Hematologist and Gynocologist at the same time. The hematologist has put me on Venofer treatment once every two weeks, while the gyn is having me get every type of ultrasound available and has put me on cyclokapron during my period to try to control the bleeding. I have had 4 iron infusions and although my iron and hemaglobin levels are up, my symptoms aren't getting any better. I'm still exhausted and freezing all the time, I keep getting sharp pain in the upper left abdomin, always nauseous, no appetite, headahces, ect. SHouldn't my symptoms be alleviated somewhat by now?

I was diagnosed as borderline hypothyroid about 5 months ago and have been taking synthroid ever since. I was also hospitalized 2 years ago with acute cholesystitis and had to have my gallbladder removed. I was 29, not over weight, low-fat diet and had been experiencing episodes since the age of 12 as well.

Should I be pushing for a different diagnosis? Something is obviously wrong.

Thanks.

Fri, January 20, 2012 @ 1:07 PM

40. Dylmansmom wrote:
I have severe iron deficiency. Almost any activity at all causes my heart to race and I am short of breath all the time!!! I have terrible restless leg syndrome, I have a lot of trouble sleeping, constipation and I am tired and cold ALL the time!!! I was told to take 325 mg of iron twice a day but I am unable to take this. Everytime I take an iron supplement I feel horribly nauseous and usually vomit!!! I just cant take this anymore!!! I have never heard of an iron infusion, maybe I should ask my doctor about this. I have depression issues too, I'm not sure if its from the deficiency or because of it.

Sat, February 4, 2012 @ 5:00 PM

41. Kim wrote:
Dylmansmom- I have the same problems with the iron my doctor prescribed makes me extremely sick and I cannot take it. I learned that when pregnant women cannot keep their prenatal vitamins down the docs will have them take the "Flintstone's Children's Vitamins with Iron". I have been taking them and have been able to raise my ferritin level from 2 to 28 in three months. I am careful not to drink milk, coffee or tea or eat any dairy when I take them as these can bind with the iron and block absorption. I also take 3 vitamins at a time and make sure to take with a meal high in iron. I haven't gotten sick to my stomach at all since I started doing this and so far it is working. At least these are better than nothing. Hope this helps!

Mon, February 6, 2012 @ 6:12 AM

42. Lisa wrote:
Have any of you had stool samples done to eliminate a bleed in your bowel.
That's my problem...I am losing more iron via a bleed than I am taking in,
About to have another colonoscopy.

Wed, February 8, 2012 @ 5:27 AM

43. sam wrote:
Ive has several test done to find out why my hemaglobin is always so low i stay at a 7 even tho im getting iorn therapy every month. Im always super tired and never feel good at all and just dont know what to do anymore. What can be causing my rbc to always stay so low my dr is good but he hasent given me an answer on whats wrong with im looking for some answers please help

Wed, February 15, 2012 @ 12:59 AM

44. Anette wrote:
To ALL that experience low iron levels;

Have any of you tried eliminating GLUTEN? You must understand that when you are gluten intolerant, your stomach lining becomes so damaged that vital nutrients such as IRON can not be digested, and your brain literally starves for what it needs to function appropriately. Gluten intolerance is a MAJOR cause of unexplained anemia, thyroid issues, autoimmune responses, fatigue, psychological issues, and much more. Gluten is a major cause of AUTOIMMUNE DISEASES so you must heal your gut first by eliminating gluten from your diet and you will see huge improvements in autoimmune issues, energy levels, and most importantly; anxiety and depression. It's so easy to do and you'll know within 2-3 weeks if you are someone who would benefit from this. Also, you have to understand that gluten intolerance is not detected on a blood screen so western doctors don't know to recommend this. MOST naturopaths are all about this, and after 10 years or feelings extremely anxious and "off" I finally feel WELL thanks to going gluten free.

The crazy thing is that if you're gluten intolerant, each time you ingest gluten you are causing your system to go into stress, inflammation, and overdrive. Imagine how happy your body will be once you take away this toxin. Look into yourself, google gluten intolerance and learn more about it for yourself.

I urge you all to try this. It can't hurt you and it may be the best thing you've EVER done for your health!

Best of luck to you all!
Anette

Sat, February 18, 2012 @ 12:37 AM

45. Susan wrote:
I totally agree with Anette regarding the gluten. Long story short, I went off of gluten twice, once 2 years ago for a short time, only be told by the drs. to go back on, no reason, not to eat it. Fast forward to last October, diagnosed with horrible anemia. Ferritin at a whopping 3. Took myself off of gluten and my tummy has never felt better. The Drs are still telling me that that is not the issue, but to bad, I am actually feeling human again. Now, just finished up my third iron infusion and waiting to see if it worked.

Good luck to everyone!
~Susan

Thu, February 23, 2012 @ 6:50 AM

46. Michelle wrote:
I have recently been diagnosed with iron deficiency anemia. I was wondering if anyone had any advice about what the best/strongest brand of iron suppliment was? I am tired of feeling tired! Want to get started on something effective as soon as possible. My diet is almost totally non dairy, a do green smoothies and juicing. Lots of beans/nuts and some meat...so, I think I'm doing all I can in this department. Thanks for any advice.
Michelle

Fri, February 24, 2012 @ 12:52 PM

47. andrea wrote:
Help! I've read everyone's postings and can relate to most. I am 44 female, w/Ferratin 7.8, RBC 3.98, Hemoblobin 11.4, and HCT 34.4. I realize these are a lot of numbers, even I can't figure it all out! I've had one doctor tell me Ferritin @ 7.8 was reason for iron/blood transfusion. My Internist just keeps blowing me off. Even ER dept. sends me home. I've been Rx'd 50,000 unit vit. D, 325 mg iron 3 x's day (but I usually vomit), and am nauseaus, migraines EVERY DAY. Restless Leg, freezing, depressed, irritable, and I miss having a life. My children and husband have "lost" their mother and spouse. I am so dependent on my husband, I feel like an infant.

Any advice? I'm so grateful...............

Sun, February 26, 2012 @ 5:15 PM

48. Miskin wrote:
Intersting reading all your comments.
I was in hospital yesterday having an iron infusion all day. 6 hours in all after the inicial tester that they do. I had one in Novemwber but unfortunately all the iron i had has dissapeared again. I was diagnosed with water mellon stomach and am waiting to see a consultant to see if this is the cause of the loss of iron. I do not have periods as early menopause so it's not that.been tested for coeliac as runs in the family but was negative. other than that i do have a rare blood disease but my heamotologist says the tummy is the problem, when i had an endoscopy the consultant then said i will need laser surgery/ Problem is i am still iron deficient and feeling like all you other people on this site, feeling done in and fed up.....

Tue, February 28, 2012 @ 1:08 PM

49. shell wrote:
Hi there I have a low b12 and low iron I have jabs of b12 and put on iron tables 3 times aday 325mg I've been taking these every day yet feel nobetter went bk to the doctors had yet other blood test done and I just been told that my iron is still droping so now don't no what to do I feel awful all the time just wanna sleep and I really have to push myself to do anything I get upset tummys and feel sick my head never feels as if it belongs to me . I think I'm 33 yrs old I shudnt be like this I've also dorped from a size 12 to a size 8 .

Thu, March 1, 2012 @ 9:33 AM

50. Miskin wrote:
You need to keep bugging your doctor to get sorted. Sounds like you need an infusion to have a full load of iron all at once......after a few days you will feel alot better. Ive just had infusion and three days on i feel much better. Before like you my head didnt feel like it belonged to me. go to the dctors again!!!

Thu, March 1, 2012 @ 1:58 PM

51. Miskin wrote:

Sun, March 4, 2012 @ 6:03 AM

52. Erin wrote:
For the past few years, I've experienced being really cold, very tired and fatigue and I would chew ice like nothing. I finally was diagnosed with really low iron, it got as low as 1.5 and the Dr. was wondering why I wasn't in the hospital, but I think because my body did it so gradually that it just got used to it, plus I have children and you have to go on about your day. They gave me an iron infusion and it came up a little but then it would drop again over the course of 3 to 4 months. Now I just got back from the Dr. and I have to have another iron infusion, this is the fourth time, and I don't want to continue having these, plus I feel that their just covering up the problem not finding out why my body is not holding on to the iron.They have sent me to my Gyno to check out my periods and they also sent me to have a colonoscopy and that came out fine, but why does my ferritin keep dropping so low but my hemoglobin doesn't. That doesn't make any sence.

Mon, March 5, 2012 @ 4:34 PM

53. Mark Spencer wrote:
My wife has been anemic it seems all her life. Recently she found a Dr. who understood her condition. He did the test and her iron level a 2. he said he did not know how she was able to get up each day.She eats ice constantly and when she doesn't have ice she chews her hair. He started giving her iron transfusions and they really worked. But,soon after that I lost my job and insurance and she can no longer receive the infusions. She has now gotten worse than before.She can barely walk a few steps before she is exhausted. Her heart is skipping beats. She is chewing ice again. She can not see a Dr. because we have no insurance and even if she could there is no insurance to cover the cost of treatment. I am very worried about her as I watch her get progressively worse. Are there any supplements out ther that will help her. Iron supplements make her incredibly sick. So does infusion,but,she tolerates it. If anyone has any advise it would be greatly appreciated. I am very worried about the results if I can't help her.

Wed, March 7, 2012 @ 5:25 PM

54. Marie wrote:
My daughter was recently diagnosed with Celiac and her ferritin level was 4. She is on a gluten free diet. Her doctor does not want her taking any supplements at this point. Does anyone know how long it takes before she will see improvements in the ferritin level?

Sat, March 10, 2012 @ 2:55 PM

55. Debbie wrote:
I am anemic and have had 7 iron infusions. My iron level is still @ 9 with an iron saturation of 1%. Not sure what to do next.

Sun, March 11, 2012 @ 2:27 PM

56. Erica wrote:
I haven't had serious medical issues ever. I'm anemic and have in the past taken B 12 shots but haven't taken iron or B 12 shots in quite some time. Yesterday evening while stopping to pick up a food order, I was cramping a little cause my cycle will be starting soon. I hadn't eaten since twelve that day and it was about 5:15. I went in, asked where the restroom was and the next thing I knew I was on the floor and someone was asking me if I was ok. Paramedics came and they said my blood pressure was 90/6 or something like that. Sugar level was 78 which they said was good. I asked them to take pressure again because it was low at the dentist once and when they did it again it was normal. The paramedics did pressure again and it was 110/68. Could this have been because of low iron?

Thu, March 15, 2012 @ 8:49 AM

57. Dawn wrote:
hi,
for all of us that are unwell and low in iron, i know that if we cooked everything in a cast iron pot/pan that would help and also the dessicated liver you can buy is supposed to be good. I really feel for the gent who's wife needs the infusions and no insurance, do try liver and iron pots. go back to the olden days :)
A lot of my symptoms are due to my thyroid supplements not being used properly in light of my deficiencies. Low ferritin\iron and some other nutrients stops proper thyroid hormone metabolism which equals feeling rubbish.
Then of course on top of that the anemia symptoms and low zinc and ,roteins aghhh I feel terrilble, i am bedbound with fatigue, breathlesness and pain, and even typing this is hurting my arm muscles. So weak.
Blood tests showed liver enzymes so i am a tad worried.
Please get better everyone. Would try the iron pots thing myself but i cannot cook for myself.

From the lady with the racing heart and legs but isn't really moving far`lol.
hugz Dawnx

Mon, March 19, 2012 @ 4:58 AM

58. Tootired wrote:
I have just found your website at 3:00am. I am up again with an upset stomach, insomnia and out of breath. I have had a history of very low ferritin. 2-3. My doctor only pays attention to me when i become anemic. Today's labs reveal I am anemic,really low ferritin 2 , b12, and thyroid numbers moving from hypo to hyper. I am exhausted all the time.
I paid $30.00 for a b12 short and was told i couldn't see a doctor without an appointment. I gave the nurse my symptoms, the doctor told her to tell me to go to the ER if I felt that bad! She wouldn't even speak to me personally.

I had 2 iron infusions in about 1.5 years ago and they worked pretty well. My underlying concern is why the ferritin is so low, and why we have no doctors to tell us what this is a symptom of. Everyone is saying the same thing.

I am also a regular blood donor. Is this a bad idea?

Wed, March 21, 2012 @ 3:20 AM

59. Jakmac wrote:
Hello,
I am 50 years old - Female. My ferritin is 6. Saturation 1%. Hemoglobin normal. (I think he said 130?)
I had gallstones/gallbladder removed at age 18. Dx with Hashimotos at age 25. Have always had symptoms of fatigue. I have been taking B12 shots for 25 years.
I had a hemorrhage after the birth of one of my children (so I am wondering about iron avidity)
Exercise often gives me symptoms of arthritis - but those tests are normal as well.
Last five years have had Roseacea on face.. it actually looks like a lupus rash but the one test I did for lupus came back normal. I've gained 50lbs in the last five years.

What works for me: Magnesium supplements have greatly helped me over the years - I have to take 500mg at night otherwise don't sleep well. Vitamin C usually makes my face go red.
I have recently started taking HCL Betaine supplements with my iron to address absorption problems (WHAT A HUGE DIFFERENCE IN NAUSEA AND NO CONSTIPATION PROBLEMS)
Here is my question:
When ever I start taking iron supplements - I get intense aching in my hips and shoulders after a few weeks. Although I have better energy and less shortness of breath (I have problems walking up stairs or any hills) but I can usually walk on flat surfaces. I am worried that I am getting iron overload - although that doesn't make sense. My fear is that the problem is with the ferritin but not with iron in my body. Does anyone have any information on this?
Jakmac.

Fri, March 23, 2012 @ 9:27 AM

60. Jakmac wrote:
post script about the supplements: I also take 5mg of folic acid fairly regularly. For those people with insurance problems. I buy B12 over the counter - for about $8 - and this has about 10-12 doses in it.. and I give myself the shots in my thigh at home. Not a big deal and much easier than having to make monthly appointments with doctors and nurses.

Fri, March 23, 2012 @ 9:31 AM

61. sickallthetime wrote:
After seeing all of these horrible symptoms, and having them for two years, and having had doctors tell me I was making it up, and try to send me to a mental institution....

..even when they finally ran the tests and, by modern guidelines, my numbers are off, and they refuse to update their practices..

..having had my doctors tell me to ignore my swollen hands, or that maybe it's because I am fat (I gained 50 lbs BECAUSE of being sick. I used to be a highly active 135 pound woman with tons of energy, now I'm fat because I can't stand)..

..my best advice is to realise that you're never going to find a good doctor unless you're royalty or a celebrity, and jump off a bridge. I wish I had done so, when I could still walk well enough to get out to one.

Sun, March 25, 2012 @ 3:55 PM

62. Doodlesquat wrote:
Oh, yeah--I got all the same stuff. Over the past year, I have had 14 iron infusions. Been checked for Crohn's disease, celiac disease, had upper GI series twice as well as two colonoscopies and 2 fecal occult X3 tests. You name it, they tested it, probably twice and ruled it out. I DO have RLS and have had it for 30 years and I DO have migraines also and have had since childhood.

Questions to ask you guys:
Have you noticed the RLS gets much worse as you get more anemic?
Notice breakthrough symptoms during the day and maybe the symptoms become abdominal?
And the migraines increase?

Here's a couple of facts you might be interested in:
* about 25 % of long time sufferers of RLS become iron deficient anemic.
*Several independent research studies point to a genetic cause for RLS and its link to both migraines and the need for iron in the brain.

Thu, March 29, 2012 @ 12:27 AM

63. Farzana wrote:
Hii... i am 5 months pregnant and asked to take iron supplements.. but the problem is wenever i take iron tablets i get violently sick.. infact my body becomes extremely weak.. i start having loose motions too.. n the whole day i have a very heaavy feeling in my stomache... n hence i do not eat anything... please help.. is it ok if i dont tak the iron supplements??

Thu, March 29, 2012 @ 3:51 AM

64. Jakmac wrote:
To Farzana. Many people are able to tolerate a liquid formula called "Floradix' that you buy in health food stores and this is usually just fine for helping keep up your iron stores in pregnancy. However, if you are very anemic and that is why you are being asked to take iron supplements, that may affect your baby and your pregnancy, not to mention you will feel extra tired so you should keep working with your doctor/midwife!

Thu, March 29, 2012 @ 8:22 AM

65. Mamzie wrote:
Could someone please tell me what kind of iron tabs to buy when the dr. tells you to take 325 mgs of Ferrus Sulfate. I had been taking Integra F once a day which did not bring up my Ferrin rate ( at four currently) I am still anemic and my white and blood cell count has halved in two since the needed blood trasfussion back in Sept. All tests have been neg. for bleeding out ect. Thanks Female 53 who is sick of being sick and tired

Thu, March 29, 2012 @ 2:52 PM

66. hopethishelps wrote:
Just a few thoughts.....Low Ferritin that is me..until I went to a blood disorder doc.:
hematologist, that is when I received Iron transfusions..definately a boost to mood, energy.. be persistent, don't give up ..advocating for yourself to feel better.
to the posts who have taken iron rich foods and supplements: but iron level does not improve:
have doc./NP Nurse Practioner check an H-PYLORI test, this is a blood and breath test. if you are + then you will be put on antibiotics. +h-pylori will cause stomach ulcers and inflammation and prevent iron absorption in the gut. (it as thought that ulcers were once caused by stress but it is from a bacteria in gut)!
To the posts who need a good source of Iron over the counter' BIFERA seems to be a good choice,: Keep tryin sister soldiers' and the men who support us!

Sat, March 31, 2012 @ 10:58 PM

67. Nina Gallo wrote:
Hi;
I hope someone can give me some insight. I recently had a heart attack (1mo ago).
I'm now taking Plavix & Aspirin 325, both daily. My recent labs show the following:
RBC...2.75 (low), Hemaglobin 8.6 (low) & Hematocrit 25.9 (low). The odd thing is that my total iron level is 214 (high) & Platelets 359 (wnl). While I feel cold & somewhat tired, thats nothing new & tolerable. I have been somewhat depressed, but that's expected after a cardiac event, I would think. Do you think it's a GI bleed? I'm not experiencing any abdominal pain and my stools look normal. Thanks

Mon, April 2, 2012 @ 4:42 PM

68. hopethishelps wrote:
Nina: why do you take high dose aspirin?... did doc recommend??

this maybe cause of internal bleeding?? i wud recommend GI doc to evaluate.

Wed, April 4, 2012 @ 11:12 AM

69. Emily wrote:
Hi,
I am 17 years old and I know very well that I have anemia through the news of my school nurse. My school nurse had given me a blood test and they had tested it at a nearby health clinic. I got the results back about two months ago which is how I found out. I was prescribed iron supplements (Ferrous Sulfate pills 67mg= a day's worth of iron for a normal person) and have been using them every day for the past two months along with a cup of orange juice.
I signed up for a bi-annual blood drive that has been held at my school hoping that my iron levels were normal. However I was wrong. During that time, the doctors (phlebotomists??) had to check my blood pressure, iron levels, and blood sugar. They used the automated blood pressure machine 7 times on me until they did it manually (weird, huh?). After that they checked my iron and blood levels, and it wasn't until then that the doctor had told me that all three tests showed that I have low but normal blood pressure, low iron, and low blood sugar. Then they had to deter me from being a possible blood donor until I am better.
But that is crazy since I enjoy having some form of glucose (such as chocolate!) every day and have been taking iron supplements since my last checkup.
I told my physiology teacher this but it kind of freaked me out when she said that she heard of a story similar to mines where a friend of hers had the same problem as me, as the friend had it as a result of a stomach ulcer. Now I'm really scared and I don't know who to go to besides a doctor (but I am a slave to the evil medical insurance corporations that frequently changes policies that screw honest people over, so I cannot go). :/
What is going on with me?

Fri, April 6, 2012 @ 4:35 PM

70. Kristen wrote:
I saw a sleep specialist last week because I have been sleeping terribly and am exhausted constantly. I'm foggy at work and it's really starting to impede my performance, which is bad since I recently started a new job. I don't want to lose it over this! My doctor talked to me about my symptoms which, aside from terrible sleep include achy legs that "fall asleep" constantly when I'm sitting still, and an inability to get comfortable. Surprise, surprise, it's RLS. My ferritin was 25 and the doc said it should be over 60 to be normal for me. So, I am going to be scheduling IV infusions (I've struggled with anemia before and I know I can't stomach iron pills). He said I should feel some relieve almost instantly. Is that true? How long does it take to start feeling and sleeping better??

Mon, April 9, 2012 @ 2:27 PM

71. H.B. wrote:
I'm in the same boat as most of you above in regards to the iron and gluten etc. When you've had an iron shot, is it normal to have swelling (like a hard bump about 2 inches) in the location of the shot? I'm assuming yes, but wanted to see...
My B12 shot, no swelling.
Thanks~

Wed, April 11, 2012 @ 12:45 AM

72. Ruth Dorn wrote:
64 yr old have so many surgeries feel frustrated that I feel so bad all the time knee replaced two hips major back surgery pulmonary valve replaced Now I can't walk 25 feet without getting out of breath went to ER blood count so low could have been fatal got 5 or 6 blood transfusions spent almost 3 wks in hospital had colonscopy and upper GI done no bleeding finally said I OD on coumadin was pure hell tied to IV S and heart monitors sent me home did well for 2 wks then gradually went back to the pain in stomache and shortness of breath Just had bloodwork done and everything fine but blood count low again doctor dumbfounded said will consult with a specialist and told me to take iron 325 mg found this site and getting excited hoping found a cure also everytime I had surgery had kidney problems wondering about erythropoitin factor any thoughts? I just have been in this pain all the time and couldn't describe what I felt Hope this is my answer

Thu, April 12, 2012 @ 6:41 PM

73. kraut wrote:
I was very tired all the time until my doctor did blood work for vitimin D and I was quite low. So now I take 4000 iu per day and feel fine. Your can also replace vitimin D by being in the sun. It's the sun shine vitimin.

Thu, April 12, 2012 @ 8:16 PM

74. mommapearl wrote:
I had gastric bypass surgery last June and my iron is dropping every time I go to my follow up. I am taking 2 chewable iron pills a day and 2 ferra sumate iron pills a day. It seems like the more iron I take the more it drops. They said I am ALMOST a candidate for the infusion. Any suggestions?

Tue, April 17, 2012 @ 11:49 AM

75. Tina wrote:
I feel like I cannot even get up without getting so out of breath. Last check my iron level was 20 and hemoglobin 9.6 back in February. I at least could get up and move around before a little bit. I have very very heavy periods which could be the cause. They say I have a Polyp and they say will remove that but want me to gain weight. This all started back in august when I was short of breath so I ended up in ER to find out Potassium was very low had to get 4 bags. I am wondering is my potassium really low again or because I am anemic now is that why I can not even move. I am wondering if I need blood transfusion and some iron injections ? Has anyone been so short of breath and needed transfusions or iron injections right away for it ? I am also afraid of that too.

Mon, April 23, 2012 @ 9:40 AM

76. Julia wrote:
Hi, my name is Julia.
Please ! Is there anybody who can help, I have low iron for over 25 years and don't know what to do because the body doesn't absorb the iron. I take iron pills and eat foods rich in iron but very little is absorbed. What can be done to improve this condition? Thank you.

Mon, April 23, 2012 @ 5:46 PM

77. Renika wrote:
I was at school and on my way to class i started feeling weak & tired in my body. As i sat in my next class preparing to write i was shaking while writing and i went to see my school nurse. I mentioned to her i had low iron & that my cycle was on, she checked my blood pressure it was normal but i still believe that i'm anemic. What do i do?

Thu, April 26, 2012 @ 5:42 AM

78. Emily wrote:
Hi,

I have hypothyroidism, and low iron is a symptom and sometimes a cause of this. This site has been extremely helpful to me and my mom who suffers from the same thing. http://www.stopthethyroidmadness.com/ferritin/

Maybe some of you have hypothyroidism, or adrenal fatigue. I take 30mg of Natural Desiccated Thyroid Hormone every morning and it has changed my life. Read the symptoms on the site I mentioned to see if you have it. http://www.stopthethyroidmadness.com/long-and-pathetic/

Best of luck!

Thu, April 26, 2012 @ 9:56 AM

79. Gina Torres wrote:
I start my 1st iron infusion this thursday. Do I have anything to worry about? Symptoms? Can I return to work the next day?

Sat, April 28, 2012 @ 6:52 PM

80. candie wrote:
Hey everyone. I have been trying to do some research to see if I should consult a hematologist. I was having SEVERE symptoms: dizziness, fatigue, exhaustion, confusion, lack of ability to focus, lack of awarenss of times, bad memory, overall fuzzy vision ect. Had my levels done at the begging of this month.

Iron total 11 out of 40-175 mcg/dl
Transferrin saturation 3 out of 15-50%
Ferritin 3 out of 10-154 ng/ml

Hemoglobin 10.0 out of 11.7-15.5 g/dl
Vit D 25-oh total 4 out of 30-100 ng/ml
Vit B12 serum 232 out of 200-1100 PG/ml

My doc put me on 325mg of iron 3xday with vitamin c and prescription strength vitamin d once a week for 3 months.

She also ordered tests to see if I'm bleeding internally. After 3 weeks I do admit to feeling an improvement but I am starting to feel the exhaustion return.

I'm concerned as to whether I should see a hematologist and at what point a blood transfusion is needed.

I can not go back to how I was feeling and I'm worried that that is the direction I am heading.

Any advice would be appreciated.
Thanks.

Sun, April 29, 2012 @ 4:13 PM

81. Gary wrote:
I have been feeling tired fatigued dizzy weak etc. I discovered I had blood in my stool so had a colonoscopy done and found out that i had a bleeding polyp. Who knows how long it had been bleeding for. My iron levels were all within the normal range but at the very low end, with the exception of my FE which was mid range. My saturation was 15%. I just started iron supplements. I want to encourage everyone to get colon screened if not by a simple blood stool test or a colonoscopy if you are near 50.

Mon, April 30, 2012 @ 2:49 PM

82. Missy wrote:
I used to feel like the odd woman out, until I read all of your entries. I am GIAD (GastroIntestinal Absorbtion Disfunction)- meaning I don't absorb iron from any oral source (e.g. food, oral iron supplements). I also have consistent small intestinal bleeds. I strive to reduce loss of blood any way I can. I have had an ablation to slow menstral bleeding down and I am on prilosec (acid reducer and ulcer healer) meds for the rest of my life along with other intestinal health supplements to optimize healthy digestive tract. I had a hematologist that helped me after the original discovery and diagnosis, who has since retired. When my iron panel levels drop I get Iron IV for 6 weeks and I get back to feeling like a vibrant me. I have a high base line Hemaglobin 14.9. When my Sat rate gets in the teens and my ferritin gets in the low 30"s, I get all the symptoms of anemia (fatigue, palpations, temperature swings, short of breath, leg cramps and restlessness, dizziness). My new hematologist says- "your HGB is still normal range so you are fine. I can hardly sit at my desk and stay awake and I am fine? I am so frustrated. I have to wait until I bleed out and my levels drop to threatening levels in order for my insurance to pay for the Iron infusion. I am so frustrated with the ignorance in the medical field about iron levels. So we all have to wait until we pass out or bleed out to qualify for treatment. If any of you are GIAD, I would be most grateful to hear words of encouragement and Ideas of how to feel better with all the "standard of care" red tape.

Thu, May 3, 2012 @ 1:25 PM

83. Gina Torres wrote:
My Hemotologist told me my iron is in the single digits (what does this mean?) and I will be getting iron infusion weekly for 4-6 weks. I felt like something was wrong with me because I am always tired I look forward to taking naps. I am hoping this is one of the symptoms because I am tired of being tired. Can someone please tell me what to expect after the infusion and is being extremely tired part of the symptoms? My story I had Gastric Bypass and recently had it reversed. Gina

Fri, May 4, 2012 @ 8:01 AM

84. Naomi wrote:
I really just wanted to say I am so glad I found this site. Though my ferritin and hb levels remain low and my symptoms continue, to know I am not alone in suffering with this is a real comfort.
I have been anemic for nearly 2 years and had a lot of misdiagnosis along the way, I have been treated with blood transfusions as I also have a blood disorder but am about to have my first iron infusion and I am really hoping it helps. I have had to be persistent with my doctors and they have acted only because of research I have done a lot of the time!
I suffer with a lot of the symptoms listed above, particularly fatigue and dizziness but it was only when my hair started breaking off (something people could physically see) that I started to get listened too.
Here's hoping that this next treatment works, if not I will keep pushing and won't give up! Good luck to you all. X

Sat, May 5, 2012 @ 5:52 PM

85. t.w. wrote:
Hi. Ive had rls for years and finally saw a sleep specialist who said my ferretin was 12 and said that alone could cause rls. The thing I'm concerned about is he gave me iron supplements 3 times a day but as I gradually increase my dose to that amount a day, it gives me increasing joint and muscle pain. The pain dissipates and then starts up after I take another dose. Does anyone know why it's causing me pain? It otherwise seems to help with my rls and fatigue and strangely enough has helped my depression......

If anyone has any input about the joint and muscle pain after taking iron supplementation please let me know. Thank you.

Sun, May 6, 2012 @ 1:49 PM

86. Emma Mayers, Dallas wrote:
i have a doctor’s appointment in two days. i wonder what’ll happen.

my hgb level is extremely low, even lower than it was the last time i had a blood analysis. i know the doctor’ll want to put me on iron pills but they make me constipated so she can take them herself if she really wants to. i’m not about to feel like shit for the next few years (and i will have to take them for at least a few years because my brother has the same problem and he’s been taking them for at least a year now - he, however, does not have any problems with constipation, which i did when i tried to take them).

also, i’m pretty sure putting me on both iron pills as well as something with a laxative effect (be it actual laxatives or something with the effect) will fuck me up even more. iron pills are already harmful for the liver (ha, the irony).

maybe i’m just way too picky. i don’t eat liver, i don’t eat beetroot, i eat too little red meat as i would like to not eat it at all, i.do.not.like.taking.pills. i would eat spinach if my parents would buy it.

and even though she probably will not say a thing about this because doctors seem to be blind when it comes to illnesses that have started due to mental problems, then if she does ask me if there’s any other reason behind my deficiency (other than genes, as i was already born with low hgb), i fucking hope she won’t tell my mother (who, i think, has a doctor’s appointment right after me - not sure why, though). she can’t, right? i’m an adult, no matter how much i’d like to deny that.

Mon, May 7, 2012 @ 5:18 PM

87. Donna wrote:
Ferritin is 7.5
Hemocrit 35.4
Platelets 354

Does that make any sense at all?

Tue, May 8, 2012 @ 5:10 PM

88. Missy wrote:
Donna- your HGB is probably within a normal range too right now, but with ferritin that low you are becoming fast iron deficient. Think of HGB HCT and Platelets as the Roof. The Frame and support beams of your blood level house are the Iron, Ferritan, Saturation rate, TIBC. As your iron warehouses empty (for whatever reason that is) your Sat, Iron, Ferritan numbers will drop and your TIBC will go up. Then your roof numbers will start to drop. (HGB, HCT, Platelet count, Red Blood cell size). That is why you can feel like crap, but still have "normal range" roof numbers.

Fri, May 11, 2012 @ 7:31 AM

89. Missy wrote:
Naomi, I, like you, felt really alone until I read all of these comments. I have also done a lot of research and have found that I have to push to get doctors to understand that "Normal Range" - is statistical. We, the small percentage out here are outside the statistical range. We get "grouped" or misdiagnosed. My FAVORITE in the the beginning was an old heart doctor that was looking at my good heart tests after I started having lots of palpitations due to anemia. He said to me that Women in their forties often have heart flopping because of stress in their heads, and that if I could just stop "creating" worries in my head then my heart would stop flopping. I sat there in disbelief....was this 1960? Needless to say, I stated politely but firmly that he needed to either retire or get back into med school and I left. Later I found out from a REAL doctor that anemia causes your heart to flop around in your chest like a fish out of water. How hard was that??? We all just have to keep pushing our doctors to step out of their normal comfort zones of "Standard" and make them look at the whole picture. We all know our numbers and bodies and symptoms better than anyone else. Also remember that doctors are not gods. They are human. They have bad days and good days like the rest of us. Don't put them on a pedestal and don't agree with everything without asking questions and doing your own due diligence. In the end, it is your energy and your life that is sacrificed and you cannot share yourself with your family if you don't have the energy to keep your body running right.

Fri, May 11, 2012 @ 7:55 AM

90. Gary wrote:
I had low iron serum (53 mcg, range 45-160) and low saturation % (15, range 11-70). Had a bleeding polyp that was removed a few weeks ago. Red blood cells low at 4.12 range 4.15-5.75. Ive had the dizziness weakness (esp in my legs), tinlging in my hands and feet, vision issues, especially at night. Ive also had some wierd muscle/bone pain in arms and hips. Has anyone else had wierd pains with anemia? Thanks!

Mon, May 14, 2012 @ 10:14 AM

91. Gary wrote:
adding to above post, my ferritin was normal at 152ng (range 22-322), but I read somehwere that ferritin is not a good level to look at for anemia. I also have a reverse T3 problem that could explain the normal ferritin. Tx

Mon, May 14, 2012 @ 10:17 AM

92. Gary wrote:
Also, has anyone ahd any gastro issues with low iron anemia? I had a bad gallbladder removed 6 months ago. Tx

Mon, May 14, 2012 @ 10:37 AM

93. Beth wrote:
Just curious on what people who understand these results would say....my recent test results were: IronBinding Capacity: 558 (250-450 ug/dL normal; Iron, Total 26 L (35-155 ug/dL normal); Transferrin Saturation 5L (15-55% normal); Unbound IBC 532 (150-375 ug/dL normal) and Ferritin, Serum 5L (13-150 ng/mL normal). So it appears there is iron in my body but not being absorbed??? What do I do and what kind of doctor could help me?

Mon, May 14, 2012 @ 11:32 AM

94. Gary wrote:
In my opinion you need iron supplement and to figure out why your iron is low. I would go to your GP or a hematologist asap. Those are some low numbers.

Mon, May 14, 2012 @ 12:36 PM

95. Kathy D wrote:
Hi all,
I've read the majority of the comments, and i sound like so many of you.
Frustration has overcome my body, which is most likely causing me to be very anxious. As many of you, I've been in and out of many doctors offices seeking resolution. I too have gone from digestive problems to low iron saturation. Most recently diagnosed with a rare condition, Erythromelalgia (EM) Which is condtion where the feet burn, and become very red, gets worse in the heat. I do not think that this is the main source of my condition, this may be secondary. My face is very pale in color, my tongue is red, and hurts, fatigued the majority of the time. My last blood tests, determined that my iron saturation was on the low side. I've asked to be referred to a hematologist, but doctors will not refer me. I'm seeing a acupuncturist at this time, and that'sgoing well. She looked at my tongue and said that my vitimins are not being absorbed as needed, and I was most likely in iron. I'm taking additional supplements that are natural. I will keep in touch and let you know the outcome....hope to feel better soon, Kathy ps. in addtion I'm looking into D-Ribose.

Sat, May 19, 2012 @ 1:16 PM

96. Kathy D wrote:
most likely low in iron (correction in above comment)

Sat, May 19, 2012 @ 1:18 PM

97. Gina Torres wrote:
So far I have had 2 iron infusions. I do not feel any different. So I am not sure if it is working. Maybe the 1st couple of days I feel ok, but I feel I am still tired.

Sun, May 20, 2012 @ 11:39 AM

98. hopethishelps wrote:
Just wanted to get an idea if any of you are able to work?

Most of us are women.....with family, house, pets to take care of, and need to work..

Are you able to work? If so how has it affected your ability to work?

Wed, May 23, 2012 @ 12:22 PM

99. cindy wrote:
I recently wanted to donate blood, but i was told tha my blood leve is fery low that i cant donate. so i have been adviced to take Iron supplement tablest, how is it going to increae my blood level??

Fri, May 25, 2012 @ 4:58 AM

100. Gary wrote:
After a few weeks on iron my rcb, hgb and hct have come up:

rcb from 4.12 to 4.79
hgb from 12.8 to 14.2
hct from 40.3 to 46.6

Having my iron levels tested next week and am stopping iron supps today. I also started on Testosterone supplement and I think that can incerase these numbers.

Fri, May 25, 2012 @ 10:45 AM

101. Sick of doctors not helping wrote:
Hi everyone I have been having a ton of strange symptoms that my doctor had no answer for over a year now the worst part is that they seem to come and go so I can never get an answer. But the symptoms always have included shortness of breath bowel trouble fatigue sleeping trouble and waking up with jittery internal shakes. I Aldo had a period of for a bout a month I couldn't sleep because I had shooting pains in my legs below the calf. One doctor said lymes another said it's my thyroid another said menopause. I also have low body temperature and get times where I get waves of goose bumps and thx chills followed by lightheadnesz and sweating . Here is the blood test results iga serum 235 ferritin 27 rdw 247 platelets 247 is it iron deficiency ? I see my ferritin is very low. How could the doctors miss that?

Mon, May 28, 2012 @ 7:59 AM

102. Sick of doctors not helping wrote:
My other symptoms have also been feet hurting inthe morning some numbness in the right side of face and tingling numbness in feet and hands

Mon, May 28, 2012 @ 8:02 AM

103. danielle wrote:
Hey,
I'm very concerned now about an iron deficiency that i was diagnosed with last october. My doctor reccomended I take iron suppliments but.. I ignored her because I eat mainly green leafy vegetables, red meat, lentils, whole grain cereals fortified with iron. I have always eaten a diet high in iron, until october of last year I have always had a high iron count and low vitamin d. Never took the prescribed suppliments for the low vitamin d either and I ended up getting over the deficiency anyways. I eat extremely healthy, i always have. Why all of a sudden did I become iron defficient? And despite my high iron AND vitamin c intake could I still have this defficiency? The onlynmedication i take regularly is adderall 20 mg, but I have been on this medication for nearly 4 years, and acetamenophen lately because I have been getting severe headaches and joint pains, and even more recently chest pains. I have also been unable to sleep through the night or even fall asleep some nights at all for a few months. This has been getting progressively worse and I have tried over the counter sleep aids such as dipenhydramine (carefull not to take this too close to my daily dose of adderall because i know it is a potentiator) but i stopped taking them because they did not help me sleep at all and increased the involuntary muscle.movements and tremmor that I have always had, sometimes causeing a facial tick or increased jerking mothions (i have always had a very noticable tremmor in my hands and arms, but now it is in my feet and i get regular muscle spasms an dtwitches, ive seen doctors about this but they referred me to a neurologist that I could not afford to go see, because they couldn't find anything obvious causing these things like parkinsons.) Lately i have also started noticing digestive issues and stomach cramping, and regular insomnia that is beyond what I cannhandle. 2-3 all nighters in a row is unacceptable, i can barely think and i feel horrible. I also occasionally get numb or tingly fingers and toes, like the sensation when you hit your funny bone.

Could all these things be connected? Does anyone have any idea what is going on with me? I feel like im losing my marbles. And I'm scared.

Fri, June 1, 2012 @ 6:41 PM

104. Carol wrote:
Four years. That is how long I have been seeing drs. hematologist and gastro. I have some internal bleeding but my hematologist does not believe it is main cause of my anemia. Sent to another hematologist for a second opinion and he seems to agree the problem is one of absorbtion. My hemoglobin has dropped to 8. Drs appear to be puzzled. Have had many procedures and a stack of lab reports and inch high. Anyone with similar?

Sun, June 3, 2012 @ 7:06 PM

105. Jenn wrote:
I remember always having slight anemia throughout my life, but I just was actually diagnosed with it after going to the doctor because I have been getting daily headaches, feeling lightheaded almost all the time, nausea.

My lab results say: iron 39 (standard 52-150), TIBC 512 (standard 240-400), % saturation 8 (standard 15-50).

My Vit. D levels were also found to be deficient.

Is this low enough to be causing these symptoms? I have heavy periods which I suspect to be the culprit. I've also had sooo many other mysterious symptoms over the last couple years. I had a weird virus two years ago that usually only people with HIV get (so some mysterious immune thing was going on). I've had a lump in the throat sensation for months, that's gotten a little better but my throat still feel weird (never found the cause), random lymph nodes swelling from time to time. Could these be caused by iron deficiency?

My doc called in Ferrous Sulfate, Vit. D,and Vit. C to the pharmacy for me to pick up tomorrow. Have to admit after reading about so many people having trouble with the ferrous sulfate I'm nervous as I tend to be really sensitive to almost everything I take.

Tue, June 5, 2012 @ 4:05 PM

106. Kiwi wrote:
Hey, you guys..

Well I have had an iron deficiency for awhile now, I have had 2 blood transfusions and ofcourse, afterwards I felt very healthy.. Now after some years I feel horrible, always having headaches, always weak && I feel very fragile.. I take iron pills, calcium pills, && stool softners.. Ill admit I haven't in awhile && when I do it just makes me more sick.. I'm 22 && I feel like I'm dying.. Haven't been to the hospital yet, for some odd reason I'm scared of what they might tell me... But I'm also sick of this pain && weight loss..

Sun, June 10, 2012 @ 12:15 PM

107. Keri wrote:
I have been feeling so unbelievealbly ill for such a long time that I went and saw my doctor.. I have heart palpatations, joint pain, and lots of other stuff. The tiredness is the worst! My doctor has given me some iron medication, but all I do is throw them up. Its very upsetting! I have 2 kids, and husband that doesn't really understand what I'm going through. Niether do any of the rest of my family. I don't know much about some of the tests that I read on here, but she did say my iron was like a 5 or whatever that means. She said basically there is no iron in my body. I tried to see if she would do the iron injections, but she said those could cause some bad risks, and she didn't want to do that. My question is this level low enough to get a blood transfusion, or Iv iron? I am at my wits END! I cry all the time, because I cannot do the things I used to could.. I can't take my kids anywhere for very long, and I have gained weight which is not like me. It's good to see that I'm not the only one suffering from this kind of thing. If anyone has any suggestions at all please let me know. My doctor gave me the tandem plus.. pills I can't take them.. I may find a new doctor! I so need some support!

Thu, June 14, 2012 @ 10:04 PM

108. Keya wrote:
I am 26 and currently pregnant with my second child. I have had problems with my iron level for years to the point sickle cell comes up with every doctor as being an understanding cause. However I have tested negative for sickle cell and even negative for carrying the trait. Last week I went in for my normal monthly appointment and was told by my ob/gyn that they are concerned that they can not get my blood levels up and would like to do an iron study by testing the ferritin level in my bone marrow. Has anyone ever had this done or know what exactly this means for me and my unborn child. I do appreciate any advice or even questions you think I should ask my doctor. I am also glad that symptoms I even had before any of my pregnancies were not just in my head and that others are going through the same.

Thanks in advance!!!!

Thu, June 21, 2012 @ 8:04 PM

109. Tricky wrote:
I have anemia. My hemoglobin level is 9.6. (it's been lower). The rest of the tests haven't come back yet but I feel worse than I ever have. Tired, lethargic, dizzy, pale etc. This time my kidney's feel sore and I have been urinating more often than usual, probably 3times more. It burns a little when I urinate and it's got a foul odor. Is this a symptom of low iron? This has never happened before. What could it be?

Tue, June 26, 2012 @ 11:46 AM

110. firstclassnurse wrote:
My daughter is in her 29th week of pregnancy and going today for her 1st iron transfusion. Quite concerned for her and her unborn child. Her Hgb is remaining low in spite of iron supplementation throughout pregnancy. She has been exhausted throughout the pregnancy, especially the last couple of months. I have not heard her mention her actual ferritin levels. I do know that she has received no dietary instructions to help raise her levels. I have learned more from this site than what her docs have relayed to her. Has anyone else experienced the need for iron transfusions in pregnancy. She also has an elevated PTT. They are now checking her for leukemia and a clotting factor deficiency. Other pregancy related symptoms include gross water-retention especially lower extremities and extreme nausea and vomiting. Any feedback appreciated. Thanks.

Fri, June 29, 2012 @ 11:31 AM

111. Jessica wrote:
I can SO relate to Keri above. I have struggled with being dizzy, memory loss, heart palpitations, anxiety (because of the former items) and utter fatigue and exhaustion. I have 2 kids and work full time and am really struggling to keep it all together.

I will be receiving my final IV treatment today. My doc says I am "not anemic but iron deficient". He says if we looked in my bone marrow, I would have zero stores of iron. My iron level was ok though, at 51 although I was not fasting and the lab results say that my level could be falsely elevated because of that. My Ferritin is 5.6 and TIBC is 561 with total sat of 9. Very low numbers. He also ran a hemocult test which was negative. He has not moved foward with any other tests to rule out other types of internal bleeding issues. I do have heavy periods which are controlled with birth control pills. Doc wants me to have the ablasion or IUD inserted which I am really resisting.

I have not noticed ANY difference in how I am feeling for the better. I have tolerated treatment fine with no tummy upset. However the negative symptoms are increasing, my racing heart, dizziness, headaches and body aches are nearly unbearable.

I understand how I can be diagnosed as depressed. I have had these symptoms for YEARS with no relief. I have been told that I will have to learn to live with feeling this way. It is hard to continue to hold life together when you feel like absolute crap every moment of every day. Today, I am contemplating how on earth I can keep working a full time job with how I feel. It is becoming hard to drive with the lack of concentration, dizziness and heart flutters. I am at my wits end and tearful all of the time.....have another call into my doc with the same complaints I always have, "symptoms are worse, what should I do..." I am only 41 and the thought of living out the rest of my days like this is very daunting. I would never harm myself....I promise - this just seems like a 'safe' place to vent where others will understand and relate. Thank you.....

Thu, July 5, 2012 @ 10:22 AM

112. Lookingforanswers wrote:
As I have been reading all the comments here I am somewhat relieved that there is a world out there that understands the way anemia and low iron affects the body. What my concern is currently is that I have been on this ride for approximately five years with an average level of 7. I share many of the symptoms listed by most of you and quite frankly am just exhausted physically and mentally from this. I have struggled to take the supplements and have been scheduled with the hematologist to discuss infusions, which I am a bit leary of. While it is comforting to know that others have had or are having similar experiences (although I wish no one had to go through the mystery of ID or anemia and all that it entails) I wonder what has been the best answer for some of those suffering with it? I know everyone is different and this is such a complex thing. I am just searching for anything at this point. Has anyone tried any herbal or supplements that worked better than ferrous sulfate? I too struggle with the inability to take the supplements due to belly upset.

Tue, July 17, 2012 @ 5:07 PM

113. Patti wrote:
I have suffered from anemia all my life as far back as the age of 6. I am now 44 and have been told I have gluten intolerant and have intrinsic factor. Will intrinsic factor go away? I have been gluten free for a year but still have troubles with iron and b12. I am giving myself b12 shots regularly. I need help with this. What kind of doctor should I see?

Wed, July 18, 2012 @ 4:51 PM

114. Brenna wrote:
I am new to this however am relieved to know there are other people out there experiencing what I am experiencing! About a year ago I changed my diet and began eating strictly vegetarian (trying to shed the last few pounds) and slowly I began to develop anxiety/panic attacks usually around "that time of the month" or after a long cardio workout. This June 2012 I suddenly felt like I was suffocating in a work meeting and had to run out; this began the series of panic attacks that I am still dealing with. I went to my Dr. and asked her to check my iron since I was veg to be sure I was getting enough; come to find out my Ferritin was a 16. I didn't really know what this meant until I began researching. My Dr. prescribed 325mg Ferrous Sulfate pills to take for 1 month to see if that resolved my anxiety however the very next day the Dr. sent me an email saying all other iron levels were normal so I prob. don't need the iron. Stupid me, I didn't start taking them and over the next month my anxiety has progressively gotten worse. It is now developing into agoraphobia and I can't leave my house, be alone or even drive in a car which makes follow up appointments a lot of fun. I started taking the prescribed iron 3 days ago and am impatiently waiting for it to "kick in"; I can't even go into the grocery story and only 3 weeks ago I was able to. The progression is scary and I'm crying all the time feeling scared that I will have to live like this forever. My Dr. wants me to take Prozac or something for the anxiety/depression SYMPTOMS but for me I want to treat the source of the problem not the symptom. I am a healthy 29yr old female who is very active with a high functioning personality so laying around the house all day for weeks on end scared of another panic attack has me feeling so defeated. Does anyone have a success story of their anxiety/panic going away after restoring their Ferritin levels or at least after taking iron supplements? All other blood work comes back absolutely perfect (thyroid, etc.).

Fri, August 3, 2012 @ 5:53 PM

115. Toni wrote:
my 10yr old son has had intermittent low iron without aneamia, has always complained of leg pain in both legs and frequent infections both viral and chest infections since he was small. Its not diet related deficiency. He had been diagnosed as athsmatic but now the Dr thinks not as his lung function is no different if he takes his inhalers ect or not. Does anyone have any ideas as to why he has iron deficiency or what it could possibly be?

Mon, August 6, 2012 @ 2:51 PM

116. Rinna wrote:
The dizziness has come back… sometimes it’s bad enough that I can barely keep my balance. I think it may be because my iron is low. Most absorbable iron comes from red meat. But because I don’t eat meat at all, I have to find other sources. Low b12 can cause it too. (b12 is often found in animal proteins)

I stopped taking my adult multivitamin perhaps out of laziness (and they’re a little costly… about ten bucks per container of 50 vitamins) and I think that’s the cause of the dizziness. When I was taking those vitamins for a long while, the dizziness stopped altogether.

So I better buy more and get back to taking them… I don’t like feeling off balance. I can barely move or drive when it happens. And some days are worse than others. D:

Sun, August 12, 2012 @ 3:10 PM

117. Kate wrote:
Just read through many of the messages- and wanted to say - PLEASE check your diets... after muddleing for nearly four years with IDA I realised that SO much of what I was eating- was hindering my iron absorbtion...high fibre- healthy greens and NUTS are all culprits due to their containg either Phytates-Oxalates-or Polyphenols....
Coffee- tea-walnuts-spinach-kale and beets...Dairy products...all hinder uptake!
Take iron- if you have gastric distress symptoms try IRON PROTEIN SUCCINYLATE. It is available in the US under the name Ferrets IPS - and has super bioavailablity and is very well tolerated- and tastes great- its a liquid. The actual iron in it is bound in casein- a milk protein- and so its absorbed in the intestine and NOT the stomach like ordinary iron products...
Take it with OJ and do the same when ever you eat iron rich...also have a little alcohol...a glass of something a day is shown to improve ferritin levels....
This is what I have learned so far on this journey to mend my blood...So...on that note...I wish you all healthy blood- reclaimed energy and God bless - Kate

Fri, August 17, 2012 @ 6:37 PM

118. Kate wrote:
oops and drink a tablespoon of ORGANIC UNSULPHURED BLACKSTRAP MOLASSES mixed in a glass of ice cold water every day as a tonic too! x

Fri, August 17, 2012 @ 6:39 PM

119. Charlette wrote:
I'm 35. Just had my 3rd child and 3rd c section in February 2012. I suffered with a subchorionic hemorrhage and lost a ton of blood at the beginning of the pregnancy and was told twice I was miscarrying. I had massive fatigue during my pregnancy and was told by each OBGYN in rotation that I was older now and the 3rd pregnancy was always the worst. One week before delivery, after the hospital did blood work, I was called by my OBGYN who said "oops, I'm sorry, but we missed in your labs that you're anemic. That's probably why you've been feeling so bad." Since then, I've not recovered. Every movement, thought, and focus throughout my days are forced, and I'm exhausted. I finally made an appointment with my primary care doctor, who did an anemia panel and discovered the following: 11.4 hemoglobin; 29 total iron, 3 ferritin, 7 saturation. She said I'm "mildly anemic" but my ferritin level was the worst she's ever seen. She referred me to a hematologist and stated that I'd probably need an infusion. Unfortunately, the hematologist won't consult with me until the 30th. I'm hanging on by a thread here, especially now that I know what's wrong with me. I don't know what to expect. This is all new to me. I'm so tired - work full-time, have 2 sons, a step son, and an infant. My family is trying to relate and be helpful but still doesn't understand my level of fatigue. Any advice, thoughts, ideas, please?

Sat, August 18, 2012 @ 10:44 AM

120. Della wrote:
I, am 48, female and I , too, have IDA with a ferritin of 9 and normal hgb and hct. You can have IDA with nml H&H becasue the H&H are nml b/c they fill up from the iron stores (ferritn). Once the stores are low you start seeing the H&H go down because they can no longer get it from the stores (ferritin). I have similar symptoms as many of you, tired, heavy legs when I do cardio, hepalpitions, lower leg bone pain, first one to go to bed, etc. We need to address the CAUSE of the deficiency - either we are 1) losing blood (heavy periods or gastrointestinal bleed usually the cause) and fix that. HAve your stool checked for blood with simple hemocult cards from Dr office to rule out a gastrointestinal bleed). It can be due to other reasons but thesee are the most common. OR 2) Not absorbing the iron from our diet or the supplement . I AGREE with Annette and Kate who mentioned DIET. LIbe Kate said - watch the combination foods that inhibit absorption of iron. ANd as Annette mentioned, gluten can cause leaky gut ( and malabsorption of all nutrients). On that note, I have found, and new studies show that gluten free foods that are popping up everywhere are NO better and can cause same problems. My answer is stay away from grains and sugars period (read WHEAT BELLY). I think many docs order the iron and infusions but never fix the problem causing it. Myself for one! I have been deficient for years and I think I finally see a light. I am taking Iron sulfate 325mcg three times a day and have had no grain (ok one bowl of oatmeal last week) and no added sugars - I cut my fruit back to 2 servings a day and eating lots of meat, vegetables and increased healthy fats big time. I am feeling better as far as joint pain - practically none - i cannot beleive the difference - but still tired when I climb stairs or try to run. I am hoping to see this improve with the iron supplements in a few weeks along with change in my diet. RBCs live about 120 days so it takes a couple three months to see a difference usually in iron supplementation. I know it is not this simple fix for everyone, we all are different and can have more than one thing going on at a time - thyroid, Vt D etc but I hope I may have put some things in perspective for someone. The first 2-3 days of no sugar or grains was hard but I ate lots of fat and that makes a big difference. If you stop the grains and sugars (carbs) you have to increase the fats, and eat normal amounts of protein. I have no more bloating, gas, stomach cramps or pain. I will post my next test results of ferritin probably.in Dec.

Sun, September 23, 2012 @ 8:34 AM

121. Hannah wrote:
Thank you to every one who has shared the symptoms of iron deficiency anemia. I have recently been diagnosed with this and have for a very long time (6+ years) experienced chronic fatique, breathlessness etc. Most recently I developed restless leg. However, the thing that took me off the the GP (primary health care physician) was pica (non-food).. until I read about the symptoms of iron deficiency I had no idea that the pica could be related. I have noticed that some of you have experienced craving for ice. Has anyone else experienced pica with non-food (e.g. chalk, dirt etc?). I have pica with chalk which is hideous. I have had an extremely strong drive to eat as much chalk as I can for as long as I can every day. It gets in the way of socialising, of being engaged with work and with family life - not to mention the havoc that it causes my digestive system. I am hoping the the ferrous fumarate (200mg/3x per day) that I have recently started will help to relieve this particular symptom.

Tue, October 2, 2012 @ 3:33 AM

122. Rae wrote:
I would like to tell anyone who is having a hard time with iron supplements to try Solgar's "Gentle Iron". I buy it at The Vitamin Shoppe. It was recommended to me by a physician (not even mine, one I happened to speak with one night at a function)...and I can't thank him enough. I can't tell you how many supplements I tried...and threw up every time and that included diarrhea...which left me hopeless. The doc said that this is the best absorbed iron out there for people with sensitive stomachs. He said to take it in the middle of my largest meal of the day (the 25mg), then after a week or two after I've adjusted, to take another one with my next largest meal of the day. He said to take it with orange juice since vitamin C increases the absorbancy. Also, molasses is supposed to be great too. For reasons why I have low iron - I think mine is because since my heart attack, I've been on an aspirin regimen. And even though I don't have massive bleeding, the use can cause small bleeds all over your body, in every organ, but the blood is just absorbed into tissue. Over time, this can add up. Plus, I take Nexium. Which inhibits iron absorption. If anyone here is taking Nexium or similar drug, be warned. I only take it when absolutely necessary. I know when my iron is low...sore tongue, itching all over, restless legs, dizzy, rapid heart rate at just walking, and breathlessness. I have had some chest pain, but I don't know if it's my heart or the low iron. I just wanted to share what I knew as I have found your posts informative as well. Good health to you all.

Mon, October 15, 2012 @ 5:46 PM

123. Char wrote:
Hello...I was just diagnosed as IDA last week and had my first of 4 Iron Infusions last Friday.

Here's my #'s and as you can see I am mildly anemic, but severely iron deficient. I have all the typical symptoms and have had them for years, going to Dr.'s and requesting test after test. They just treated each symptom and never the whole picture.

I am so great full to have found all of you...I was feeling so hopeless, crying all the time, and just feeling so alone.

My dr has referred me to a hematologist and scheduled a sigmoidoscopy (which I am postponing until after my iron infusions).

I have heat flashes, joint pain, abdominal issues, irregular bowel movements, high blood pressure, a resting heart rate of 92-102. I have no energy...just to shower wears me out! Ugh...For the last year or so, I used to tell my husband, "it takes all my energy just to get ready in the morning". I would be ready/dressed/hair/make-up...and then tell my husband and kids to go attend the functions without me, because I was so tired!

They diagnosed me as depressed...but now I am thinking...no wonder!

For the last 2 years my monthly cycle has been way heavier and irregular...so much so, that that they went in last July laparoscopically to look around and didn't find anything in the way of endometriosis.

Component Your result Standard range Units
Ferritin <5 22 - 291 ng/
Iron 17 50 - 212 ug/dL
Iron binding capacity, unsaturated 429 110 - 370 ug/dL
Total iron binding capacity 446 228 - 428 ug/dL
Transferrin % saturation 4 14 - 57 %
WBC COUNT 7.1 3.5 - 12.5 K/uL
Red blood cells count 4.77 3.60 - 5.10 M/uL
Hgb 10.4 11.0 - 15.0 g/dL
Hematocrit 32.5 34.0 - 46.0 %
MCV 68 80 - 100 fL
RDW, RBC 16.4 12.0 - 16.5 %
Platelets count 248 140 - 400 K/uL

I just can't wait to be my old self again! I have gained 50lbs in the last 8 years...and that just makes me so sick!! I want my old energy level back again!!

Any ideas or tips are greatly appreciated!

Tue, October 30, 2012 @ 12:48 AM

124. Char wrote:
Wanted to add, I am 39...mother of 2, wife, and work full time. My Dr has taken me off of work though through mid December...unless my iron and ferritin numbers increase sooner!

Tue, October 30, 2012 @ 12:53 AM

125. Olivia wrote:
It's now been 4 months since my last iron infusion--I had 3--and with each I became so sick, muscle aches, cramps, diarrhea,weight loss, etc. now 4 mths.later I'm stilling having the cramps, diarrhea, bone and muscle pain,and weight loss of 15 lbs. This has been an awful experience.

Sun, November 11, 2012 @ 2:15 PM

126. Sara wrote:
I'm sorry to hear about everyone’s stories about this deficiency. I suffered from Iron Anaemia and Iron Storage Anaemia (3 out of 4 stores where extremely low) for a long time (since 2004) and found that iron supplements from blueskyvitamin.com helped to bring my levels back to normal with the help of an additional copper intake (or by taking half a cup of sunflower seeds twice a day for a year which are full of copper). I was on the verge of a blood transfusion because of my low iron stores, once I started on these iron supplements and increased my copper intake my stores began to fill and I stopped having heart palpitations which weren’t fun. The iron supplements from blueskyvitamin.com are great, they always have them in stock and their customer service is fantastic. I’m just glad I can walk over a meter now, not get tired and not have to sit all the time. My last blood tests were done in 2010 which came back normal, and although they are normal I take one iron tablet each day (and still eating sunflower seeds) to maintain my levels. Now I am living a happier and more active life and I wish the best for you all. Good luck all of you, I know what you are going through.

Tue, November 13, 2012 @ 9:40 PM

127. CDM wrote:
Hello all:

I happened to stumble upon this website and what a God send!! I wanted to drop a line and a few questions about my own low iron due to heavy periods. I felt "at home" reading your posts and comments. Thank You, the feeling of others experiencing what I have been going through is in itself healing. I also felt like I needed to drop a line because in a way I felt like I was evesdropping.

For the last 2 years I knew something was wrong and did the typical blood tests and a referral to a cardiologist for heart like flutters, palpitations with an occasional irregular heart beat and a slight murmur; all of which I never had before. Prior to that chest pressure, intense fatigue, depression, which I have had low moods before, burning tongue, low concentration and occasional visual disturbances, ie zigzaggy lines at the perifery(sp?) of my vision in the AM. I thought was low sugar but tested fine.

Move to a new province in Canada, meet a new Dr tell her I'm feeling a bit down and anxious, can I have something for it? She asks to do some tests, back comes a low ferritin of 18. She calls me back tells me I'm low on iron but not anemic yet and need to take iron supplements. My question is through reading some posts, some of you have said you felt depressed, if so how long did it take to recover while taking supplements or infusions for the depression to lift? And did your Dr. or other medical professional list depression/anxiety as a symptom to low iron stores or ID anemia?

Three days on iron supplements and I could feel the fatigue beginning to lift. My appetite is improving and sleep is a bit better. I am on 100mgs of iron and tolerating well. Is this enough? Also, the heavy periods, through perimenopause is also being looked into. I am so mad that my previous Doc did not investigate low ferritin, which I'm sure has been there for awhile. Like many of you, you know you are not feeling well and 'different' all of a sudden with the same cluster of symptoms.

Thanks and looking forward to any discussion.

Sat, November 24, 2012 @ 8:53 PM

128. C.A. Bouthillier wrote:
Iron is NOT a nutrient, it is a poison. Iron replaces copper in the blood and tissue proteins and accumulates in multiple locations of the body, causing destruction and accelerating aging. Bio-available copper must be replenished to restore health and longevity – to repair the DNA damage.

I encourage you to read: http://www.themessageofhiskingdom.com/PoisoningOfMankindCopperDeficiency.htm

(Those who continue to uphold & defend the fraud are in defiance.)


C.A. Bouthillier
Researcher

Tue, December 4, 2012 @ 7:41 AM

129. wrote:
You, sir, are insane.

Sun, December 9, 2012 @ 1:39 AM

130. GlenT wrote:
Is this comments list still working? I can't seem to add anything

Thu, December 27, 2012 @ 3:55 PM

131. GlenT wrote:
OK - my last comment went through. So there must have been something wrong with what I wanted to add.
It was a lot shorter than some of the other postings.
Could someone perhaps tell me what the limits are for posting iron deficiency postings here.
I can find anything wrong with what I'm trying to post - it's an important question about my iron blood test results.
The website seem to accept my posting with no error messages, but the comment does not appear.

Thu, December 27, 2012 @ 4:02 PM

132. CHICHI wrote:
@ Erin: Caution: Get your doctor to not only check for GI bleeding, but also get a colonoscopy(to check for colon cancer). Colon cancer is a common cause of low iron levels, and the sooner it is detected, the better the chance of catching it early and not dying from it.

I just finished my dietitian internship, and during my internship, I met a lady on the surgery ward who had just had part of her colon removed after it was discovered that she had colon cancer. This is her story: She had had a colonoscopy about 1 to 2 years ago, and was not due for another colonscopy for another 5 years post her last colonscopy. About a year or so after her colonsocopy, she was feeling tired and lab tests showed that she had low iron levels. So she was prescribed iron supplements. Three months later, she had the lab tests repeated, and her iron levels were still low. She asked for a colonscopy to rule out blood loss from colon cancer. He doctor said that it was necessary as she was not due for another one in four years. She got a medical consultation from a second doctor, and got a colonscopy. The colonscopy showed colon cancer in the early stages, so she got surgery to remove the cancer.

Colonscopies save lives. My parents never had colon cancer screening, and by the time the colon cancer was discovered, it was too late. Both by parents died of colon cancer. Don't let yourself be one of them. Advocate for your colon health.

Thu, January 3, 2013 @ 12:03 PM

133. Sfia wrote:
Is this comment thread still active?

Tue, January 29, 2013 @ 5:46 PM

134. Sfia wrote:
I ask because I am writing a book on my experiences as a result of iron-deficiency anemia which I was unable to correct for 14 years. It negatively impacted my life to such an extent (heart palpitations, SVT, restless leg syndrome, depression, floating numb spots, anxiety, memory loss, cognitive impairment, problems with comprehension and communication, mood swings, etc ...) that it affected my studies, work, and relationships. It impeded my PhD work and my career. Since finally finding a doctor who was able to correctly connect the dots, my life has improved so dramatically that I can hardly believe I'm the same person. Every single symptom is gone. My ferritin and hemoglobin levels are normal for the first time since 1998. Mind you, I have been seeking help from doctors, and in recent years from hematologists, since 2002 -- all to no avail. It was 2006 before I even knew I had low ferritin (10 at the time). It was only because I went to a research facility that I was finally able to understand what has been happening and treat it (with a heavy-dose iron infusion). I believe that thousands of people suffer from iron-deficiency anemia and are never properly diagnosed. Thus, the book. I am interested in talking with people who went through similar experiences. I would like to make the solutions to this problem more accessible to people who are suffering. Let me know if you are interested in sharing your story.

Tue, January 29, 2013 @ 5:57 PM

135. Denise wrote:
I have low iron but HIGH B-12 levels. Has anyone else experienced this, and should I be concerned?
Thanks.

P.S. I also have an autoimmune disease called scleroderma :(

Thu, January 31, 2013 @ 9:15 AM

136. Pamela Solanke wrote:
I went to see my Dermatologist, as I was itchig & my Blood Test indicated as below, could I have Anemia?.
My IRON is 2.2 umol/L.
T.I.B.C 106 is umol/L.
TRANSFERRIN SATURATION is 2%.
FERRITIN 4 is ug/L.
HAEMOGLOBIN is 6.5 g/dL.
HCT is 0.223.
RED CELL COUNT is 3.56 x10^12/L.
MCV is 62.6 fL.
MCH is 18.3 pg.
MCHC is 29.1 g/dL.
RDW 21.4
PLATELET COUNT is 553 x10^9/L.
WHITE CELL COUNT NeutrophiIs is 36.1% 1.74 x10^9/L.
ESR is 24 mm/hr
Active B12 is 145.7 pmol/L
Folate (Serum) is 13.3 ug/L

Thanks & KR Pamela

Sun, February 3, 2013 @ 6:35 PM

137. Greg wrote:
A few months ago I began to experience aching in my arms, as well I have had extreme fatigue for many more months. I went to my doctor, did blood work, and was told my iron was high at 470. We repeated this test a month later and it had gone up to 580. I will see a specialist in 3 months for blood work, and am having an untr asound in week for my abdomen. So - anyone have symptoms like this? The worry of course is concer.

Thu, March 7, 2013 @ 8:23 AM

138. Todd wrote:
Very good article by Neurologist Dr. Gominak on Vitamin D, B12 and iron deficiency
http://drgominak.com/vitamin-d. Points out how low vitamin d can cause low b12 and iron

Fri, March 15, 2013 @ 10:11 AM

139. Roxana wrote:
I went to the emergency room because I could not breath the doctor draw some blood and I was very low 8 hemoglobin, but he prescribe two tables a day before food of iron. Every time I take it I start feeling like I can not breath again. I wonder why? I'm doing juicing and molassa and it works better than the pilds. I feel like I get really sick with the iron is 65 mg each one. What do you thinK?

Wed, March 20, 2013 @ 12:41 AM

140. Cheryl wrote:
So glad i found this site, explains a lot!

I started feeling unwell about 7yrs ago after a vertigo attack, was found later when felt no better to have inner ear damage. Over the past 7 years I have been going to my Dr with various unexplained symptoms:

Lack of energy
Migrains
Fuzzy head
Jittery feeling in body
Sore tongue
Tinnitus
Shortness of breath
Heart palpatations
Calf pain/joint pain
Bloating/stomach pain

Over the years all have been explained away with - its your vertigo, you are having panic attacks, you are pre-menopausal

I have had so many dizzy spells when standing up that if not for my family I think I would have been severely depressed!

I am now 52 and have always suffered from heavy periods which have been more erratic over the last couple of years. I felt fobbed off by the Dr's and felt they thought I was a hypochondriac!

6 months ago I saw a woman Dr who ordered a full blood test which showed I was slightly aneamic and low in vit D. Was put on vit D tablets and had appointment for a colonoscopy.

Colonoscopy showed nothing wrong there but blood test showed my platelets slightly high.
Dr was not concerned so feeling increasingly unwell I continued to live my half life (no energy, constantly tired and lethargic)

My dizzines was getting worse to the point that I had a couple of times when I knew if I didn't lay down I would pass out, my energy was a joke, if I had a good day and did too much, the next day I would struggle to have the energy to get out of bed.

12 days ago my family took me out for my birthday dinner, after eating, laughing having a great time I stood up and passed out, was out and looked like death for the longest 15 sec's of my families lives. Like the movies there was a Dr at the restaurant who came to help and called the ambulance. Took me nearly 2hrs to have the energy to get up off the floor. Was checked out, blood pressure fine, sugars fine, not a stroke or heart attack although I felt I could pass out again! Was sent home with instructions to go back to my Dr.

Had been for another blood test before this instance and when seeing my Dr was told that my serum Iron was at 4, given iron tablets 200mg x 2 a day

Have had an ecg done, waiting for a 24hr ecg monitor and appointment for heart x-ray, told not to do much til results are in!

My heart is constantly racing, everything is an effort, constant headache and lightheadedness,
Think the Dr is finally taking me seriously if a bit too slowly for my liking.

I am so glad I found this site because although I am not yet sorted I no longer feel alone in this, my family are very supportive but for something you cannot physically see my lack of get up n go has also been frustrating for them when I used to be the first out the door.

I wonder sometimes if Dr's really listen to us or if they ever connect the dots. I had not realized Iron deficiency could cause all these symptoms.

Just to give you all a bit more background info, we are a family with auto-immune problems, 3 with Thyroid all overactive in the beggining, now underactive except mine which over the years goes slightly over, then under then normal, 1 with chrones desease, 2 insulin diabetics and 2 who have iron injections every 3 months. The 2 who have iron injections have never passed out, just felt tired so I never made a connection.

All your stories have been informative and helpful and I hope in the near future everyone of us gets sorted and feel like our old selves. Take care and don't overdo it x

Sun, April 14, 2013 @ 9:34 AM

141. H wrote:
Pre-natal vitamins contain a large amount of vitamins, including iron. I have begun taking these and feel loads better. Try that, maybe? Obviously I'm not going to have a baby any time soon, but they do have essential vitamins for women, especially since we lose iron during periods.

Thu, April 18, 2013 @ 9:52 PM

142. Tab wrote:
My anemia began with taking Advil (Ibuprofen) every single day for years. Upwards of 800 mg to 1600 mg per day. I started to experience stomach pain and burning, so I stopped it after they found I had developed intestinal bleeding from the advil. The damage was done. A blood panel revealed that my hemoglobin was at a 7.8. I wasn't feeling any symptoms except for tiredness. The doctor sent me home with iron pills and told me to eat high iron foods. I couldn't tolerate the iron, so I simply stopped taking it. I pretty much ignored the tiredness for a few months, when suddenly my hair started to shed badly. I developed RLS (Restless Leg Syndrome), muscle cramps, insomnia, and could hear my pulse in my ears. Still, I didn't do much because I knew the doctor would more than likely direct me back to iron tablets. Then, my periods got extremely heavy and long. I started to have 2 week periods. I believe that this is what did me in.

Then one night, my heart started pounding very hard. No matter what I did, even sitting still, and I had episodes of feeling confused. I couldn't form a sentence and I felt like I was about to pass out. My husband ran me to the ER where I found out that my hemoglobin was sitting at a 5.8. I was very very sick, and the heart pounding came on very fast.

I was given four units of blood, and a 24 hour stay in the hospital. This only brought me up to an 8. The heart pounding and pulsing in my ears immediately stopped after 2 units of blood. A two week period I was at the tail end of, ended 2 days after the transfusion.

I'm going to have to really keep on top of things now, and take better care of myself. That 24 hour stay in the hospital was not fun, and my hair is still shedding.

It is amazing how awful I felt prior to the transfusion. I had so many different symptoms, even depression, anger, and sadness. After the transfusion, my mood has been extremely UP and I feel happier. Like my world is clearer and the dark curtain was lifted.

Sat, May 11, 2013 @ 4:15 AM

143. Dianne wrote:
I just had three blood transfusions. Prior to that I had an iron infusion for anemia with a ferritin level of 7. I've always had a low iron problem,but has become unbearable as now I'm too tired and weak to go anywhere, short of breath and have had hair loss. I've gotten very depressed and grouchy. I'm scheduled this Tuesday for a capsule endoscopy, where I swallow a capsule that contains a camera to visualize the small bowel. I do not have any colon so I don't need a colonoscopy. I'm wondering if this test is normal if I should consider seeing a hematologist. I'm really frustrated after everything and still not feeling well. I also have been taking iron capsules and Vitamin D. Any ideas would be greatly appreciated.

Mon, May 20, 2013 @ 12:30 AM

144. Ljudmila wrote:
Polli, I`m not a doc. but I ´ve done lots of research on the subject .Your problem is identical to mine. In short, CHECK YOUR THYROID. Not only TSH but T4 and T3 as well.

Tue, May 28, 2013 @ 3:19 PM

145. Kathy wrote:
Hi I have had low ferritin and low hemoglobin of 5. I have had many blood transfusions and many iron transfusions but I keep going up and down. Got my hemoglobin to 10 and now it's falling back down to 8. Dr will do test this week to see ferritin level. Has this happened to other? Also after iron transfusion when I pee there is iron in bowl. Drs and nurses say they have never heard of this. Has it happened to others?

Sun, June 23, 2013 @ 3:59 PM

146. Kathy wrote:
Hello again I just got back from hospital hemoglobin dropped to 6.5 so I got 2 pints of blood. Had iron therapy 2 days before dr said she doesn't know whats going on. Doing bone marrow test on Friday. What happens if I just can't absorb iron? Has this happened to anyone else and can they help me? I've had 10 pints of blood in the last 6 months and 20 rounds of iron therapy in 6 months....Is this what others do? I feel so lost and frustrated and not sure what to do. I've seen many drs and they don't seem to know what to do. Please help if you can Thank you

Wed, June 26, 2013 @ 1:25 PM

147. stephanie barnard wrote:
does anyone know if low iron can cause a tia?

Wed, July 10, 2013 @ 3:20 PM

148. Jill wrote:
My Ferritin was 2 and hemoglobin was 8.5. I didn't realize how severe that was or how many symptoms it was causing. I am now taking iron and am no longer anemic. My iron stores are continuing to improve. The following symptoms have disappeared: Extremely heavy periods with significant clotting, shortened intervals between periods, fatigue, shortness of breath with any type of exercise, restless legs at night, feeling of pounding heart, extreme coldness, joint pain and painful lumps in knuckle joints, significant monthly depression and irritation. My doctor thought I was in perimenopause since I am in my late 40's, but with iron these symptoms are gone. After doing some reading, I found that heavy periods can be caused by low iron and anemia which in turn worsen the iron stores and anemia. It is a vicious cycle.

Fri, July 26, 2013 @ 9:22 PM

149. Kelly wrote:
Erin..Iam kind of borderline(not now) anemia. Iron and B12 deficient. Presently iron 96 which is good. have been taking iron supplements (presciption behind the counter Targets) Ferrous Sulfate 325 mg twice a day, I'm supposed to take 3 times a day. I PULVERIZE THE TABLETS WITH A FORK AND THEN MIX WITH ORGANIC CRANBERRY JUICE, ORANGE JUICE WAS TOO ACIDIC FOR ME. this has helped tremendously. Also, for b12 I wear patches I get from a company in Arizona 1-800-604-6766--------No Longer B deficient.

Sun, August 11, 2013 @ 6:24 AM

150. Liz wrote:
Jill -

I am interested in your comment "After doing some reading, I found that heavy periods can be caused by low iron and anemia which in turn worsen the iron stores and anemia. It is a vicious cycle." Can you share the link(s) to where you've read that?

I have iron deficiency and have just started iron loading orally with ferrous biglycinate (ferrous sulfate makes me vomit). My doctor would like me to consider birth control pills to control my mennorhagia (extremely heavy periods) but I am reluctant due to a family history of breast cancer and other cancers. I am interested to hear that the anemia may worsen the symptoms and perhaps if I could get the anemia under control maybe I could avoid the hormones?

Mon, August 19, 2013 @ 11:18 AM

151. John H. wrote:
Just a tip for anyone anyone who has problems getting their iron levels up.

1. Get you copper status checked. Look up "Copper related anemia"

2. Check that you have not got a bacterial infection like H.Pylori as bacteria loves iron. You have a good indication if you feel sick after taking iron (and antibiotics). This cause B12 issues as well.

Most Doctors appear to be totally unaware of the above which accounts for a high number of "difficult to manage" anemia problems.

John

Fri, August 30, 2013 @ 2:11 PM

152. Melissa wrote:
I have been anemic for as long as I can remember. When i was 7, I was diagnosed with ITP. Since my remission from that autoimmune disease, I have been anemic. Recently I have had an ablation to end my menstrual cycles in hopes to improve my levels as oral iron supplements did not help. My blood levels today are low. My hemoglobin is 9 and my ferritin level is 2. I am scheduled to start iron infusions in the next week. I would like to know the underlying cause for why my body is not absorbing iron. Anyone have any suggestions?!!?

Wed, October 2, 2013 @ 12:51 PM

153. Mike wrote:
Those of you with low Haemoglobin and ferritin, do you also have low red blood cell counts ? Have you been tested for Autoimmune Haemolytic Anaemia (AIHA) (Haemolysis) ?

Fri, October 25, 2013 @ 7:42 AM

154. Marsha Hickman wrote:
I am a 52 yr old post menapausel who has dealth with anemia for about 40 years now, I dont abosrg iron, I take 650 mg or gel cap iron a day, and still deal with the fatigue. I am aslo diabetic, have fms, arithit, have thyroid issues, blood pr\essure, have about 18 different dxes, I have been to a hematologits, as well as a gastroenterlogist, but am still dealing with the issues have had numerous blood test, colonoscopy as well as gasstric endoscopy, so any ideas of what ti do or try next., I ave high cholestorl so am supposed to limit meat comsumption. I need HELP I hate to feel this way, the fatigue, is the pits.

Mon, November 11, 2013 @ 9:54 PM

155. Nurse Penny wrote:
People, if your doctor finds you are quite deficient in something like iron, vitamin D, or B-12, and there is no clear and correctable underlying problem that explains the low levels--like celiac disease, Inflammatory Bowel Disease, Pernicious Anemia, or malabsorption problems due to intestinal surgery...etc....then take note:

If you became deficient without an obvious cause, then if you are given supplements by any route (oral, IV, etc.) only until you're back to normal, then you will quickly or slowly slide RIGHT BACK DOWN to where you were before the prescription supplements started. DUH! It amazes me how many providers over look this.

I wonder if they think filling up an empty bank account will keep that money coming forever, without any more deposits, and with mysterious sums leaking out of it, long term.

No, to be kind, they're overly busy and are just not thinking! (They need a good Nurse Practitioner or PA to help them, as doctors are overloaded now, especially primary providers.)

So, if you are put on supplements due3 to a medically-significant deficiency, and then re-tested to see if you are normal again, DO NOT leave the office until you ask and get an answer to, "So, now that we've found my problem, I won't need any supplements to stay normal?" or, "So, if the problem isn't discovered yet or solved, how much of an ongoing daily dose should I be taking to keep my levels healthy? When should I be re-tested to make sure that dose IS keeping me healthy, since until then it's an educated guesstimate dose?"

Wishing you all wellness,
Longtime RN who specializes in teaching people with chronic illness to stay well...and fellow patient with some wacky inherited medical diagnoses. (So I get it.)

P.S. Nurse Practitioners specialize in listening to and taking into account what you know about your own body, and teaching you what (like this) you need to know to be an empowered patient. With NPs, you're the most important member of your health care team. :-) hat's what sets them apart from doctors and Physician Assistants, though to be fair some of them are pretty decent at it from simply caring and teaching themselves to listen. With nurses and NPs, it's a HUGE part of their training and philosophy.

Wed, November 20, 2013 @ 2:43 PM

156. goldlight wrote:
Could you just be low in Iodine? Check out Iodoral and change the night into day. Dr Brownstein can help

Mon, December 9, 2013 @ 10:47 PM

157. Julie wrote:
For those of you who have anemia or are very tired, I recommend seeing a hematologist.

Sat, January 11, 2014 @ 2:22 AM

158. mclenhart wrote:
I have been trying to raise my iron levels since september. Went to the dr. for abdominal pain, and discovered my hemoglobin was really low. As of Jan. 15th, my iron sat. is 2%, ferritin is 6, and my hemoglobin is at is highest in months, at 10.

They just can't seem to figure out what is going on....so frustrated.

Sun, January 19, 2014 @ 4:44 PM

159. Lucy white wrote:
My hb was 7.4 i had a fifteen min iron infusion today and it was hell they had to get a medic to put needle in the top of my arm. because nurse went through a vein. it hurt like hell . to top it off i gotta go again next Monday for the same shit.

Mon, January 20, 2014 @ 6:55 AM

160. mclenhart wrote:
I had a two hour iron infusion the other day. My husband keeps hoping for instant results...constantly asking if I am feeling better. I am NOT feeling any better yet. However, I am hopeful, that in a week or so, I might get some relief and some energy.

On a side note, has anyone ever experienced the horrible, unexplainable abdominal pain that I have been dealing with? I just keep thinking that the anemia and abdominal pain HAVE to be related to each other.

Fri, January 24, 2014 @ 5:05 PM

161. Melissa wrote:
Polly,

Are you seeing a hematologist? I have a lot of symptoms as well and at first glance my levels were normal but the extra testing everything was super low and I was called the next day and set up for a series of iron infusions.

Wed, January 29, 2014 @ 11:03 AM

162. Denise Bukofski wrote:
My renal doctor put me on an iron supplement 27 mg fergon. my iron was 59 (50-212) iron binding capacity 393 (262-474) % saturation 15 low ( (20-55) ferritin 35.2 (11.0-307.0). My regular doctor said I wasn't anemic but if I didn't take the iron I would become anemic. I also have hypothyroidism and have been taking prevacid which I think could be part of the problem because it reduces the stomach acid. I have been taking it for a month and started to get depressed and edgy and yesterday had stomach pain. my question is could it be from the iron or do I need to take the iron longer

Mon, February 10, 2014 @ 10:59 PM

163. Denise Bukofski wrote:
no comment at this time just some feedback

Mon, February 10, 2014 @ 11:01 PM

164. Sidra wrote:
Hi, I am 26 years old. in my school days almost 8 years back I had a big issue with my both legs. I was sleeping one night and then when i wake up in the morning my legs were not moving. I went to doctors and they have done all checkup and mri but they didn't found anything. Now I cant use stairs or run like I used to do before. what should I do now because i'm really stressed out.

Sat, February 15, 2014 @ 8:27 AM

165. J Elle wrote:
Hi Sidra, have you had your vit B12 levels checked? If they are low it can cause many problems with numbness.

I am wondering if anyone else has had problems with an internal tremble, it's as though it's just behind my nose, I notice it more at night going to sleep and waking in the morning, I am currently taking ferrous sulphate twice a day as has very low iron & anaemia, if these trembling feelings are down to my low iron (which I believe they are as no other symptoms of anything else wrong, & doctor dismissed it as all related) when will it go away? I've been taking the tablets for 9 weeks now, I know they say 3 months to correct anaemia and iron levels in the blood, then another three months to build stores, but I really want this trembly feeling to go because if where I feel it it's hard to fall asleep, any help would be greatly appreciated, thank you for reading xxxx

Tue, February 18, 2014 @ 3:21 PM

166. Arthur Van Tassell wrote:
I had Lung Cancer surgery in late DEC. Was in the OR 6 hours (lung removal). I'm not sure but I guess because of blood loss and loss of appitite from the surgery and severe constipation after my iron count went down to a very low point. I was given the first of what is going to be several "Iron Transfusions" this past Tues. I am now going through a strong appetite loss, and a general blah feeling.

Question: Could this be from the infusion and if so how long before it passes?

Thu, March 6, 2014 @ 7:21 AM

167. Denise Bukofski wrote:
my iron is 51 (50-212) ibc 353 (262-474) saturation 14 (20-55) tsh 1.01 (.44-4.21) free t4 .95 (.60-1.40) b12 323 (180-914) I also take prevacid. I have been taking fergon once a day past week having diarrhea and loose stools every few days then feel really tired. I had 2 colds in the past 2 months. I wonder if the problem is because of the iron problem or the iron I am taking.

Sun, March 9, 2014 @ 10:14 PM

168. Rachelle wrote:
Hi, Ive been dealing w IDA for 19 years & 2 months now! Yes, @ this point, as my symptoms, # of dr specialists, diagnosises, scripts & many other things continue to add on top of eachother (that most, when researched, can be put together under a diff (although more severe bcuz auto immune) category and treated differently where I may actually benefit and see improvement..UGH..I AM COUNTING.. I was diagnosed with anemia at 15, my mom noticed my breathing during a nap sounded like I was running a marathon..@ the urgent care my HGB came back @5.3 3x..they thought their machine was broke cuz I walked in n seemed ok..sent me to Hosp..Dr's @ hosp had IV in me within 5 min,within 15 they were tellin me I needed blood transfusions, (learned later that within 20 they had told my parents based on my vitals if they didnt get oxy-rich blood in me I was within minutes of a heart attack!)..I had complained for months about tired,dizzy,headaches,was SO pale I prolly glowed in the dark, chewed so much ice..THAT'S all I ate..etc..did nothing except school & softball (& that is why Dr's said I was able to walk in on own..)..so mom shrugged off everything to the point of that serious. (I'm a mom now..point in prev..we have own struggles..pls dont disregard what our kids say..we dont know it all..my mom not the cause of this but she still upset with self that she almost lost me..and that I'm still dealing with it..I dont blame her can't take her guilt away thou).
Ive had 8 transfusions.. 4 that time 4 in 08. Over 1000mg ferrous sulfate/day had 2 rounds of infusion therapy..2010 then 2013..best my HGB has ever been is mid 11's right after blood or IV iron..pills r useless for most part..stay bout 8.
Been diag. Narcolepsy, Fibromyalgia, Migraines, Hypothyroid, Generalized Anxiety , Social Anxiety, Depression, Restless leg, GERD, there's more I can't think of my other meds..more frustrating is that 99% of dr visits I'm told what I dont have and I do A LOT of research on my own..and ask questions and ask for explanations and for blood tests and even hematologist has straight ignored and kept right on his own path..won't even look at swollen legs..tells me see a dermatologist.. Rheumatologist combats me..n I only a year where I live..n there r almost 0 specialists in a 30mile area..so I'm like stuck..gonna slip the cracks..
Not being treated but diag; Hyperflexive Joints, Disc Degeneration, Tendonitis in Shoulder, Menscal tear and fluid on knee

Sat, March 22, 2014 @ 6:31 AM

169. Kitten71 wrote:
I have low iron but am not anaemic. I asked my doctor why my body couldn't store iron anymore and she just said 'it sometimes happens'!! I get heart palpitations, restless legs, shortness of breath and extreme tiredness but she said none of that was related to my iron deficiency! I beg to differ! She tested me for coeliac disease but that came back negative and she diagnosed me as having IBS instead. She thought I might be gluten intolerant and advised me to cut it out and eat a probiotic yoghurt each day to reset my stomach! I'm worried about my iron deficiency as I can't cope with feeling rubbish every few months, then trotting off back to the doctors to be told my symptoms couldn't possibly be anything to do with it but here's a course of iron tablets anyway. I feel fobbed off and let down by my doctor. I think I need a second opinion to put my mind at rest!

Sun, March 23, 2014 @ 3:56 AM

170. Wendy Pierce wrote:
I am 37 and I've been getting iron infusions for almost 4 years now, I've had every test done thinkable, bone marrow biopsy, Colonoscopy and EGD, biopsy of my intestine to check for Chrones disease, cilliac disease, checked w a urologist to see if I'm bleeding through urine, Nothing has come up , nothing , I'm probably on my 30th infusion and nobody knows the cause, my hemotologist just says after child bearing years sometimes they become anemic. I'm actually having a 5 hr infusion tomorrow, it doesn't matter what I eat or if I take iron , it doesn't help, my tips of my fingers and my nose, toes are always cold, I'm in constant of having constipation which I know I now take something for bc I do get the infusions, constant headaches, I'm beyond fatigue like never wanna get out of bed feeling or want to sleep for days feeling. My heart is always racing, my hemoglobin is at a 11 and my ferritin just came back at 9. So any suggestions or anyone have this? Because I don't know anyone that gets infusions for iron at my age.

Tue, April 8, 2014 @ 7:31 PM

Add a New Comment

Enter the code you see below:
code
 

Comment Guidelines: No HTML is allowed. Off-topic or inappropriate comments will be edited or deleted. Thanks.