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Highlights:Midwest Regional Hemochromatosis Conference


Highlights:Midwest Regional Hemochromatosis Conference

In this Issue:

  • "My life with Anemia": Vashti Ray
  • "My Journey into the world of Hemochromatosis": Jane O'Brien
  • Benefits of acupuncture for pain relief: Dr. Ben Zappin
  • Excess Iron Contributes to Bone & Joint Disease
  • Highlights: Midwest Regional Hemochromatosis Conference
  • Awards for outstanding effort in Ohio community

Download this Issue

34 comments (Add your own)

1. Milly wrote:
Until I found this I thought I'd have to spend the day isndie.

Mon, October 24, 2011 @ 12:29 AM

2. cathi benassi wrote:
I ALSO HAVE HEMOCHROMATOSIS, THIS WAS FOUND IN JUNE OF 2011.

I HAVE ALOT OF JOINT PAIN IN THE KNEES. SWELLING ALSO. XRAYS HAVE BEEN TAKEN. DRS. SAY NO ARTHRITUS. WHY DO THEY HURT SO BAD. I
CAN HARDLY GET OUT OF A CHAIR. MOSTLY EVENING TIME. RIGHT KNEE DOES NOT SEEM TO TURN.


ANY HELP???????? OR IDEAS??????????

PLEASE EMAIL ME.
THANK YOU CATHI BENASSI

Sun, February 12, 2012 @ 7:18 PM

3. Leaverinpeace wrote:
Hi there

I am 47 and have HH and was diagnosed in 2010. I had a venesection almost every week for 12 months and reduced Ferritin from 836 to just below 50 - my target. I never felt unwell really I went to doc to discuss hairloss and stiffness. In recent months though my joints have become unbearable, my forefingers are swollen and my hips are the worst. I have arthritis in my right hip but the lack of strength in my joints is worrying. I am small, lightweight and very fit, but i fear that the fitness is going to wane if I can't move so well! My ferritin is still around 50 (with venesections planned at 3 month intervals). I am going to see my Consultant next week and hope to tell him about my symptoms and hope he can help.

Sun, March 25, 2012 @ 2:43 PM

4. Aildinhakelly wrote:
yumm this looks goodhope u feel beettr soon, its the weather i feel totally the same and i have the same iron problems :( i do a really quick spinash dish which is yummy and tasty, i usually do it in my wokput some oil in the wok. take one onion and slice it finely and put it in the oil, take a couple of garlics and slice it also and put it with the onions until they stars to caramelize.take a bag of spinash and put it in the wok on top of the onion and garlic and stir, lower the heat so the water starts coming down and take a potato and cut it in small wedges and put it with the spinash and let it cook all together, put salt, black pepper and nutmeg. when cooked put some chopped coriander on top... quite yummy with steak, which is also an excellent iron booster :) xox

Sat, August 18, 2012 @ 10:48 PM

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