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Some iron disorders are inherited and can be confirmed with genetic testing. Examples of these inherited iron disorders where genetic testing is available to the public include sickle cell disease, thalassemia and hemochromatosis. We encourage patients to learn all that they can about genetics through organizations and agencies that specialize in genetic issues and counseling. Visit our News section and Iron Library for more information about genetics, especially the HFE (hemochromatosis gene)worksheets.

Links to important genetics information:

Human Genome Project

Genetic Information Nondiscrimination Act of 2008 http://www.genome.gov/24519851

Washington, Wed., May 21 2008 — The President has signed into law the Genetic Information Nondiscrimination Act (GINA) that will protect Americans against discrimination based on their genetic information when it comes to health insurance and employment. The bill had passed the Senate unanimously and the House by a vote of 414 to 1. The long-awaited measure, which has been debated in Congress for 13 years, will pave the way for people to take full advantage of the promise of personalized medicine without fear of discrimination.

Talk with a Professional

The National Society of Genetic Counselors (NSGC) website allows you to locate a counselor in or near your community using US zip codes.Genetic Counselors are properly trained to help you understand the complexities of this type of information.